Hey Robin my son Christopher is 4 and is the same way. Usually I can get him in time to stop any impulsive behavior but its really hard. We were at Walmart...
Hey Robin my son Christopher is 4 and is the same way. Usually I can get him in time to stop any impulsive behavior but its really hard. We were at Walmart...
Hi all, I have tried looking up the difference between AS 1 and 2. I can't find anything on them. Can anyone tell me the difference? Thank you, Kristina...
Susan, We started using cups with straw for Brandon when he turned 3. It was really hard to get him off the bottle because as we all know angels have a hard...
Robin, Our little angel loves to do the same grabbing and pinching. Brandon is almost 6 and SO STRONG!! I would love to know where the strength comes from....
Nicole, Thanks for your help, do you remember if there were any specifics to get him to suck from the straw? Did you hold his mouth a certain way? Ian wants...
Hello, My angel is 2, Ian, he can hold his bottle, feed himself with his fingers, and if I set him up with a toy between his legs, can play with a toy and stay...
Do any of you have days where you just feel like giving up? Days where you just want to run out of your house and run away as far as you can go before you run...
Dear Donna, Don't give up. Train someone to give you a break. Ask the doctor for something besides melatonin or increase dosage to 5mg or try Valerian Root. My...
Donna I think everyone has days like that even weeks. I know how you feel Christopher also sleeps in the bed with me and he has to have me when it gets dark...
Donna less than a year ago I wrote a very similiar letter to yours.Being the parent of any child is challenging and a parent of an angel is rewarding and...
I have a child that has angelman syndrome he is 9 years old , I feel the same sometimes I just take it day by day, its hard sometimes to deal with everything,...
I have a child that is 9 that has angelman syndrome, he loves to pull hair, pinch , bite, and throw things, that is our biggest problme, just out of the blue...
As soon as I find the time I want to reply to all of your kind emails personally but, for now I will send out a mass post to let everyone who replied to my...
January 3rd, 2007 Well today we were fed our hearts on a plate. Madie's test results came back postive for Angelman's Syndrome. And as much as I do not want...
I totally understand what you are going thru. My son Devin is 6 going on 7 in May. We got his diagnoses 3 yrs ago. Very heartbreaking to say the least....
Natalie for our son's drooling he wears bandanas around his neck, we hang them low enough to catch the drool and keep him dry, they work well. Tami ... ...
The only thing I worry about that is if you tie it.......I don't want my son to grab the back and pull on it making it tighter to choke himself. Do you have...
Hi, do you have other little children around the house. I have 2 little ones, Alyssa who is 5 and Devin, my angel who is 6. Devin started walking from...
I had to do the same thing with Devin. Try playing with the straw with him. Show him what you are doing with the straw. Like when you suck in your checks go...
Hi Nicole, where do you live? My son Devin is the same way. He is 6 going on 7 and he is super strong. We call him our little "Bam Bam" from the flinstones....
Hi Natalie! I just thought I would answer to your question on bread :) My angel loves bread too! Especially with lots of butter :) Sandi mother of Harley, 15 ,...
Natalie- I live in Spring Hill Florida. I know of one other little girl in our area with A.S. I have heard there is another child but I have yet to meet...
Hello, My daughter's drooling has significantly improved with the use of straws too. When sucking they are building muscle and gainig control. Sara ...
That is hilarious about the hamburger. Devin throws the burger on the grown too. Even hotdogs. He will eat the bread and not the hotdog. The bread doesn't...
Well I have a whole household of kids because I have a home daycare but that doesn't seem to phase him right now. I have a walker/gait trainer that we got...
Hello I am the big sister of an Angel that is now 22 and I'll tell you that from what I saw growing up drugs are not the answer they ether don't do much for...
Hello. My name is Donna and my son Joshua is 3. He was diagnosed with Angelman Syndrome a month before his 2nd Birthday. It is hard to swallow. It is your...
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