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· Families of Angelman Syndrome - A place to talk about Angelman Syndrome
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Special Needs Families
Founded: Jun 28, 2000
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Hi. My name is Cameron. I signed up for this group site awhile back. I never posted before. I have a step daughter who has angleman'
s. She is 11. I...
Apr 1, 2004
Hi all, I live in Australia, my name is Elizabeth and my younger sister Bernadette has AS. She is 19 years old and in the past 1-2 years has been showing...
Jan 27, 2004
I am a mother of a child with angelmans and I chose this group for support not for porn. All the emails I recieve are about sex. I will be contacting The...
Jan 20, 2004
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Dec 19, 2003
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Dec 16, 2003
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Dec 14, 2003
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Nov 11, 2003
My Special Angel
Hello I am mum to a Special angel named George, (aka Gorgeous George) although at times i do wonder if his halo has slipped a little LOL. He is 4 and a half...
Nov 2, 2003
What are the active groups?
My husband and I have just learned that our son, Nico 2 and 1/4, has Angelman Syndrome. We noticed below that there is a DC Angelman'
s group but it is...
Sep 27, 2003
Dantes hospital visit
Hi everybody, sorry I havent got back to any of you that replied to my initial post but Dante was hospitalized for a week and things have been pretty hectic...
Sep 27, 2003
hi My name is Pam
I am a mother of 4 little girls and my youngest has angelman syndrome.She has recently reached so many milestones I am so excited .She pulled herself up on the...
Sep 12, 2003
I have a 6 year old Angel, she takes clonodine to help her sleep. She is at her limit, I was wondering does anyone use melatonin and does it seem to work....
Aug 28, 2003
My name is Kathy and I have a four year old son whom we believe may have Angelman Syndrome. We have been through so many different tests and still learned...
Jul 10, 2003
i want to talk to other mother's
hello i have a just turned four year old daughter who is deletion positive and just want to talk to other mothers of angels i feel so alone at times. thanks i...
Jun 26, 2003
Hi, new here
My name is Jamie, I have two kids, Amber who will be 5 in August and Jacob who will be 3 later this month. We live in Georgia. I am hoping to find a doctor...
Jun 2, 2003
new angel in the group(Christopher Martin)
May 7, 2003
Re: [Families of Angelman Syndrome] Digest Number 17
We are still new in the ball game and sometimes, you just live day to day. My best advice for long-distance friends, is to show you support and/or care. Call...
Mar 9, 2003
Friend of newly diagnosed
We just found out our very good friends have had their 2 1/2 year old son diagnosed. We live in CO and they're in TX. Any ideas on how best to show support,...
Mar 3, 2003
Re: [Families of Angelman Syndrome] Digest Number 14
Hi Thanks for your note. I'm sure we have a ton of stuff in common. Our Tana had her Nissen (Stomach wrap) at 9 mos for failure to thrive and reflux. She was...
Feb 19, 2003
New member - is genetic testing useful?
I am a new member with an autistic son. A local geneticist has been recommending to parents with autistic kids that they be tested for mecp2 (Rett syndrome),...
Feb 18, 2003
can you have another angelmansyndrome child
we have just find out i'm preg and i have a son that has angelman syndrom can you have another one with angelmanssydrome....
Jan 11, 2003
Teacher of a child with Angelman'
Hi, I am a special educator of seventeen years. This year will be my first year teaching children in a "Life Skills" class. That's what we call the class in...
Aug 26, 2002
Hi....I am new to this group....
My name is Sandi and I have a 16month old son who has been diagnosed deletion positive. We are starting a research study this week at Children'
s Hospital in...
May 13, 2002
Hi Kathy, Thanks for the reply. What is the name of the other group? I am definitely interested in the chat on Wed. evenings. I am in the process of getting...
May 9, 2002
Angelman Syndrome Presentation
yndrome Members, I am a graduate student in Speech Language Pathology. I am doing a presentation on Angelman Syndrome for one of my...
Apr 25, 2002
New here with a few questions
Hi, I have a 3.5 yr old and we're just looking into whats wrong with him. My doctor seems to think its mild autism but reading a little about angelman syndrome...
Apr 18, 2002
Lamictol for Seizures in Angelman
I have a seven year old daughter with Angelman Syndrome. She recently had her first seizure. The Neurologist has recommended putting her on medication....
Apr 9, 2002
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