Hi all, I live in Australia, my name is Elizabeth and my younger sister Bernadette has AS. She is 19 years old and in the past 1-2 years has been showing...
I am a mother of a child with angelmans and I chose this group for support not for porn. All the emails I recieve are about sex. I will be contacting The...
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Hello I am mum to a Special angel named George, (aka Gorgeous George) although at
times i do wonder if his halo has slipped a little LOL. He is 4 and a half...
My husband and I have just learned that our son, Nico 2 and 1/4, has Angelman Syndrome. We noticed below that there is a DC Angelman's group but it is...
Hi everybody, sorry I havent got back to any of you that replied to my initial post but Dante was hospitalized for a week and things have been pretty hectic...
I am a mother of 4 little girls and my youngest has angelman syndrome.She has recently reached so many milestones I am so excited .She pulled herself up on the...
I have a 6 year old Angel, she takes clonodine to help her sleep. She is at her limit, I was wondering does anyone use melatonin and does it seem to work....
My name is Kathy and I have a four year old son whom we believe may have Angelman Syndrome. We have been through so many different tests and still learned...
hello i have a just turned four year old daughter who is deletion positive and just want to talk to other mothers of angels i feel so alone at times. thanks i...
My name is Jamie, I have two kids, Amber who will be 5 in August and Jacob who will be 3 later this month. We live in Georgia. I am hoping to find a doctor...
We are still new in the ball game and sometimes, you just live day to day. My best advice for long-distance friends, is to show you support and/or care. Call...
We just found out our very good friends have had their 2 1/2 year old son diagnosed. We live in CO and they're in TX. Any ideas on how best to show support,...
Hi Thanks for your note. I'm sure we have a ton of stuff in common. Our Tana had her Nissen (Stomach wrap) at 9 mos for failure to thrive and reflux. She was...
I am a new member with an autistic son. A local geneticist has been recommending to parents with autistic kids that they be tested for mecp2 (Rett syndrome),...
Hi, I am a special educator of seventeen years. This year will be my first year teaching children in a "Life Skills" class. That's what we call the class in...
My name is Sandi and I have a 16month old son who has been diagnosed deletion positive. We are starting a research study this week at Children's Hospital in...
Hi Kathy, Thanks for the reply. What is the name of the other group? I am definitely interested in the chat on Wed. evenings. I am in the process of getting...
Dear familiesofangelmansyndrome Members, I am a graduate student in Speech Language Pathology. I am doing a presentation on Angelman Syndrome for one of my...
Hi, I have a 3.5 yr old and we're just looking into whats wrong with him. My doctor seems to think its mild autism but reading a little about angelman syndrome...
I have a seven year old daughter with Angelman Syndrome. She recently had her first seizure. The Neurologist has recommended putting her on medication....
