Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the familiesofangelmansyndrome group. File...
121
Kelley Smith
kds8465
Aug 28, 2003 1:39 pm
My daughters docter has said go ahead, but he did not say to stop the clonodine. Do you give the melatonin with the clonodine. I was told to start her at 2.5...
120
bwieckowski2003
Aug 28, 2003 2:02 am
... She ... does ... Kelley, I have a 9 year old who also takes clonodine. We add melatonin per his doctor at night. His sleep pattern has changed. He...
119
kds8465
Aug 26, 2003 3:40 pm
I have a 6 year old Angel, she takes clonodine to help her sleep. She is at her limit, I was wondering does anyone use melatonin and does it seem to work....
118
timmysmom1298
Jul 10, 2003 4:49 am
My name is Kathy and I have a four year old son whom we believe may have Angelman Syndrome. We have been through so many different tests and still learned...
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kathy graham
klyngraham
Jun 26, 2003 6:29 pm
hello thanks for your letter my day are hectic too with little kids i have a helper but she only comes two times a week. does your son talk? my daughter says...
116
wsj88
Jun 26, 2003 2:35 pm
Hi and welcome to the group. My name is Wendy and I am a mother of a 10 year old son with AS. I understand totally about feeling alone sometimes and we are...
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klyngraham
Jun 25, 2003 3:45 pm
hello i have a just turned four year old daughter who is deletion positive and just want to talk to other mothers of angels i feel so alone at times. thanks i...
114
Jamie
glaciermeow
Jun 2, 2003 7:41 pm
I'll look there and see what I can find. Thank you for the welcome and the info! :) ... you become a member you recieve a list of professional's in your state....
113
Kathy Leonard
candlecrazy_...
Jun 2, 2003 5:27 pm
Hi Jamie welcome to the list! Have you been to the national ASF site? When you become a member you recieve a list of professional's in your state. I looked on...
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Jamie
glaciermeow
Jun 2, 2003 4:47 pm
My name is Jamie, I have two kids, Amber who will be 5 in August and Jacob who will be 3 later this month. We live in Georgia. I am hoping to find a doctor...
111
lapdancemag
May 7, 2003 4:37 am
www.geocities.com/angelman942002/index.html...
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Laura Shovein-Brown
lshoveinbrown
Mar 9, 2003 10:53 pm
Thank you, Kathy! I forwarded the information to my friends and really appreciate you taking the time to be so helpful. Bless you and your family! Laura Kathy...
108
Kathy Leonard
candlecrazy_...
Mar 6, 2003 8:06 pm
Hi Laura, Sorry it took me so long to respond to this,,, i've been a little busy but here are the link. http://www.mhmr.state.tx.us/default.html This will...
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Laura Shovein-Brown
lshoveinbrown
Mar 6, 2003 3:30 am
Hi Kathy- Thanks so much for your encouraging message. My friends live in Houston, TX. I'm sure they will be excited to hear about your information. Many...
106
Kathy Leonard
candlecrazy_...
Mar 5, 2003 3:43 pm
Hi Laura, I guess I missed the first post on this, but if you are interested in researching respite care for your friend, let me know what state they live in...
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Laura Shovein-Brown
lshoveinbrown
Mar 5, 2003 5:27 am
Stacey- Your wisdom, kindness and strength bring a new braveness to others who are recently introduced AS. Thank you very much for writing me back and please...
104
Stacey Vogele
momonaquest
Mar 5, 2003 1:38 am
We are still new in the ball game and sometimes, you just live day to day. My best advice for long-distance friends, is to show you support and/or care. Call...
103
lshoveinbrown <lsh...
lshoveinbrown
Mar 3, 2003 7:14 pm
We just found out our very good friends have had their 2 1/2 year old son diagnosed. We live in CO and they're in TX. Any ideas on how best to show support,...
102
wsj88
Feb 21, 2003 4:02 pm
Hi everyone....just a quick note....when Matt was just months old he was not gaining weight either....the doctor had us put Karo syrup in his food/drink...it's...
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Stacey Vogele
momonaquest
Feb 19, 2003 7:41 pm
Hi Thanks for your note. I'm sure we have a ton of stuff in common. Our Tana had her Nissen (Stomach wrap) at 9 mos for failure to thrive and reflux. She was...
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rocketwatts2003 <r...
rocketwatts2003
Feb 18, 2003 7:39 pm
A formal diagnosis has been a blessing for us. It helps us procure services, allows us to get access to specific info and support groups, has gotten us...
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rocketwatts2003 <r...
rocketwatts2003
Feb 18, 2003 7:32 pm
My name is Meagan and our Angel is Phoebe. She is 14 months, and although we didn't have any trouble with our diagnosis, the symptoms you describe do seem...
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momonaquest <SVOGE...
momonaquest
Feb 4, 2003 2:28 pm
Hi: We are the parents of a 21 month old girl who at this point has a clinical diagnosis of Angelman's. Her chromosone FISH test came back normal. I've found...
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Kathy Leonard
candlecrazy_...
Jan 11, 2003 11:47 pm
Hi, What type of AS does your son have? If you provide more information I would be glad to answer your question Kathy Mandy 11, Angie 5, Rocky 19 months, all...
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cjennykelly34275 <...
cjennykelly3...
Jan 11, 2003 9:06 pm
we have just find out i'm preg and i have a son that has angelman syndrom can you have another one with angelmanssydrome....
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angelmum01
Nov 5, 2002 7:06 pm
Dave, My daughter is Clinically Diagnosed with Angelman Syndrome. For us, that makes not difference in how we work with her. She is high functioning and is...
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Dave Adams
adamsdp1
Nov 4, 2002 4:47 pm
I am a new member with an autistic son. A local geneticist has been recommending to parents with autistic kids that they be tested for mecp2 (Rett syndrome),...
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Kathy Leonard
candlecrazy_...
Aug 26, 2002 12:39 am
Hello, It's great to hear a teacher looking for advice! I'm sure the parents appreciate you taking the time. You don't say what age this child is you work...
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patty153
Aug 25, 2002 2:20 pm
Hi, I am a special educator of seventeen years. This year will be my first year teaching children in a "Life Skills" class. That's what we call the class in...
