My name is Jamie, I have two kids, Amber who will be 5 in August and Jacob who will be 3 later this month. We live in Georgia. I am hoping to find a doctor...
Hi Jamie welcome to the list! Have you been to the national ASF site? When you become a member you recieve a list of professional's in your state. I looked on...
I'll look there and see what I can find. Thank you for the welcome and the info! :) ... you become a member you recieve a list of professional's in your state....
hello i have a just turned four year old daughter who is deletion positive and just want to talk to other mothers of angels i feel so alone at times. thanks i...
Hi and welcome to the group. My name is Wendy and I am a mother of a 10 year old son with AS. I understand totally about feeling alone sometimes and we are...
hello thanks for your letter my day are hectic too with little kids i have a helper but she only comes two times a week. does your son talk? my daughter says...
My name is Kathy and I have a four year old son whom we believe may have Angelman Syndrome. We have been through so many different tests and still learned...
I have a 6 year old Angel, she takes clonodine to help her sleep. She is at her limit, I was wondering does anyone use melatonin and does it seem to work....
... She ... does ... Kelley, I have a 9 year old who also takes clonodine. We add melatonin per his doctor at night. His sleep pattern has changed. He...
My daughters docter has said go ahead, but he did not say to stop the clonodine. Do you give the melatonin with the clonodine. I was told to start her at 2.5...
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Hi, I have just joined this group and quite frankly dont know if I belong, but I hope someone can help. My name is Wanda and I have a 11 mnth old son named...
I am a mother of 4 little girls and my youngest has angelman syndrome.She has recently reached so many milestones I am so excited .She pulled herself up on the...
Hi Pam my name is Wanda and I just oined this group. (you can read the mssg I just posted for details) How old is your dghtr? pam danko <pam_d28@...>...
Riley is 2 wanda coletta <wandacoletta@...> wrote:Hi Pam my name is Wanda and I just oined this group. (you can read the mssg I just posted for details)...
Do you have messenger? wanda coletta <wandacoletta@...> wrote: Hi Pam my name is Wanda and I just oined this group. (you can read the mssg I just posted...
Hi Wanda, Welcome to the group! What you describe reminds me of my girls. their development was a bit slower, but my son when he was 11 months old is about...
Hi Pam, Welcome to the group! How old is your daughter? My oldest started having words at about 9 years of age, and my younger daughter started having words at...
I am so sorry I guess a light bulb just clicked and said that these emails go to the whole group anyhow i am a new member and my daughter Riley is 2 years old...
Hi Kathy and thanks for the reply. I have started reading some of the prior posts to get familiar with people but your to quick in responding so forgive for...
I do have instant mssg but I am not aure how to use it. Do you need my email? pam danko <pam_d28@...> wrote: I am so sorry I guess a light bulb just...
Wow Kathy you sure have your hands full But I bet you have one of the happiest houses in the world I know Riley makes my day all the time and hearing that...
Hi Wanda, I don't post much to this list,, if ever,, it's not very active. If you suspect your son has AS, i would ask for the FISH test, this will pick up a...
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My husband and I have just learned that our son, Nico 2 and 1/4, has Angelman Syndrome. We noticed below that there is a DC Angelman's group but it is...
Hi everybody, sorry I havent got back to any of you that replied to my initial post but Dante was hospitalized for a week and things have been pretty hectic...
Hi, By active group it sounds like you mean in person? Or are you talking about on the internet? I've never heard of a group like the one that is in DC that is...
Hi Kathy, thanks for responding. I *was* talking about getting hooked up with groups on both the internet and in-person. When I did a search for Angelman...