The Congenital Heart Defect Families Assocation was created to support Kansas City area families whose lives have been touched by congenital heart defects. Our goal is to support local families online and person to person. We also engage in activities to promote awareness of Congenital Heart Defects such as having a team walk in the local American Heart Association Heart Walk.

This list has a restricted membership policy. Kansas city area families with a living family member or one who has died are welcome. Introductions including the name, age and heart defects of your family member must be made to the listowner before membership is approved. New members will have their posts moderated intitially. This is to create a safe nurturing environment for our families.

If you are healthcare professional - you may join our sister group for professionals and families by following this link:

http://groups.yahoo.com/group/congenitalheartdefectprofessionalskansascity/


We also have a sister group for grief support:

http://groups.yahoo.com/group/congenitalheartdefectfamilygriefkc/

Visit our website at www.chdfamilies.org