Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june02

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

For California families -�� see attached flyer - programs for special needs
population to be eliminated.�� Please forward to any you know who can help with
our efforts.
Thank You,
Debra M-Mc (mom to Jason, age 32, micro cp, spastic quad, trach, g-tube)

--- On Tue, 6/2/09, David Mulvey <dmulvey@...> wrote:

From: David Mulvey <dmulvey@...>
Subject: Flyer_June_2
To: "Debra McNulty" <debraphp@...>
Date: Tuesday, June 2, 2009, 11:53 AM

  Please send this to your mailing list.� Our assembly member Sam Blakeslee is
one of the key players and local folks should call his office first.



[Non-text portions of this message have been removed]

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june-04

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

--- On Thu, 6/4/09, Debra Marasco-McNulty <debra_marasco@...> wrote:


From: Debra Marasco-McNulty <debra_marasco@...>
Subject: Fw: Life Without Limits: A Lesser Known Form Of Therapy and Child with
Cerebral Palsy Recently Showcased on Table for 12 on TLC
To: "Debra M-Mc" <debraphp@...>
Date: Thursday, June 4, 2009, 9:58 AM








--- On Thu, 6/4/09, United Cerebral Palsy <c+ucpact@...>
wrote:


From: United Cerebral Palsy <c+ucpact@...>
Subject: Life Without Limits: A Lesser Known Form Of Therapy and Child with
Cerebral Palsy Recently Showcased on Table for 12 on TLC
To: debra_marasco@...
Date: Thursday, June 4, 2009, 6:00 AM




#yiv775826484 #yiv147972388 , #yiv775826484 #yiv147972388 TD, #yiv775826484
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scroll down to content
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Forward to a Friend | Donate Online | Visit UCP.org | Update Your Profile
June 2009
Inside this Issue

» A Lesser Known Form Of Therapy and
Child with Cerebral Palsy
Recently Showcased on Table for 12 on TLC
» Behind the Scenes: Ruby’s Bequest
» UCP of Huntville & Tennessee Valley Consumer Spotlight: Meet Lybel
» Information & Referral: Ask Lara
» A Personal Fundraising Tool:
Dedicate your Birthday Wishes to UCP on Facebook
A Lesser Known Form Of Therapy and
Child with Cerebral Palsy
Recently Showcased on Table for 12 on TLC

Four-year-old Rebecca Hayes, a child with cerebral palsy, was recently featured
during an episode of the TLC television network show, Table for 12 entitled
"Special Strides." Table for 12 follows the lives of a New Jersey police
officer, his wife, two sets of twins and sextuplets. Rebecca, one of the
sextuplets, is considered a "low functioning" child which means she cannot see
or talk or even feed herself. During the program, Rebecca and her family visit
Special Strides, a horse farm that focuses on special needs children.
For many people with disabilities, riding horses can be therapeutic.
Hippotherapy, as it is called, is a therapy that improves sensory input for a
person with disabilities through the horse's natural gait as well as other
behavioral and psychological effects including bonding with the horse.
Rebecca and the rest of the family really enjoyed themselves. Her parents, Betty
and Eric are exceptionally supportive of her in exploring new life experiences.
During her visit, Rebecca was evaluated by an occupational therapist and a
physical therapist. The therapists both said that Rebecca has good muscle tone
and would be a good candidate for riding a horse. Betty said that she would like
to see Rebecca one day have better posture and to possibly drink from a straw.
If you missed the "Special Strides" episode and would like to watch it, you can
purchase the full episode on iTunes or Amazon.com for $1.99.
For more information about the TLC television network show, visit the Table for
12 Web site.
To view information about or discuss this and other therapy options regarding
early intervention services of children ages 0-5, please visit:




Behind the Scenes: Ruby’s Bequest

ARG Netcast recently went behind the scenes with the "puppet-mastery team" of
Ruby's Bequest to explore the future of care giving. This online, radio-styled
interview includes regular panelist Marie Lamb with Ken Eklund and Jason Tester,
both from the Institute for the future. You can listen to this online broadcast
on the UCPeople blog.
The participants describe Ruby's Bequest, as a serious exploration into the
future of care giving as "collaborative storytelling for the social good," its
origins, methodology and the results of the experience. "Creating a narrative
and stringing things together" based on participant contributions added to the
development of the storyline taking place in real-time.

The interview reveals that more than just how a story developed. After the
Ruby's Bequest experience, the interview reveals, intense learning, emotions and
understanding grew out of each unique story submission. Additionally, knowledge
and experience gained from Ruby's Bequest could become an "incubator" for ideas
that will help shape the future of care giving.
The interview participants offer a unique perspective from the point-of-view of
developers as they discuss various lessons learned and their initial
impressions, following the conclusion of the Ruby's Bequest experience.
For more information, visit the ARG Netcast Web site or Ruby's Bequest Web site.

UCP of Huntville & Tennessee Valley Consumer Spotlight:
Meet Lybel

Krissie Saint-Vil of Huntsville admits that learning to cope with having a child
with disabilities is anything but easy.
"My sweet little boy is the biggest challenge in my life; but one that I
wouldn't trade for anything in the world," Krissie said.
Lybel, 2 years and eight months old, has been diagnosed with microcephaly,
epilepsy, gastroesophageal reflux disease (GERD), and development delays.
In his young life, Lybel has undergone eight surgeries, including: the placement
of a feeding tube among many others.

For more early intervention resources,
visit MyChildWithoutLimits.org
Lybel began receiving Early Intervention, physical, occupational and speech
therapies at UCP of Huntsville and Tennessee Valley in January 2007, as well as
Alabama Respite services. He also participates in UCP of Huntsville and
Tennessee Valley's weekly playgroup while Krissie attends their parent group..


Information & Referral: Ask Lara

Q. How did my child get cerebral palsy? Was it my fault? Did the hospital do
something wrong?
A: Cerebral Palsy does not have a single cause and there are many reasons why
someone might have cerebral palsy. An unborn child might have suffered a brain
injury, an infection, or abnormal development of the brain tissue. These causes
are responsible for about 70% of the cases of cerebral palsy. Another 20% of
cerebral palsy cases are caused by a brain injury that takes place during the
birthing process. In the United States, about 10% of children who have cerebral
palsy got it after they were born. This is called "acquired" cerebral palsy.
Most of the time the actual cause of cerebral palsy is not known. And, although
there may have been a brain injury or a development problem, the problem may not
be noticed for months.
For more information visit the Cerebral Palsy section on My Child Without
Limits. This section can also be downloaded as a PDF for distribution.
This question was inspired by Michelle L. Jackson from United Cerebral Palsy of
Oklahoma.
Have a question about anything related to Information and Referral services?
Your question could appear in our regular column on the UCPeople blog, Ask Lara.
Contact Lara by e-mail or reach her by phone at (202) 776-0406.

A Personal Fundraising Tool:
Dedicate your Birthday Wishes to UCP on Facebook
Have you ever wanted to dedicate your birthday to a cause you believed in? As a
choice, instead of receiving gifts, you ask friends and loved ones to donate to
a charity of your choice? Now you have the option to raise both awareness and
money for United Cerebral Palsy. Facebook recently released an option for cause
supporters, called the the "Birthday Wish for Charity " application linked to
the Facebook Causes application.
Setting up your birthday wish is quick and convenient. This new feature lets
individuals on Facebook create a birthday fundraising campaign as part of a
Cause. Set up takes only minutes and it lets you ask your friends for donations
instead of presents while making it easy to thank your friends..
» Add the Birthday Wish for Charity application now «

Please be sure to select United Cerebral Palsy:
Life Without Limits for People with Disabilities as your Cause
You have to wait until two weeks prior to your birthday to start a campaign and
you will receive an e-mail from the Facebook Causes application if you have
installed the application prior to this two week period.
The set up page is easy to configure, but you are only given a limited number of
options for the fundraising birthday wish campaign. You can ask 5, 10, or 20
friends for as many dollars as you are in years.
As a bonus, the application helps you promote your campaign. You can send a
message to all your friends immediately and you can select the option to send
several reminders to everyone you selected a couple of days before your
birthday. The application also automatically updates your status with messages
and the link to your birthday wish personal page. Addiontally, when friends
donate to your birthday wish, updates to your profile newsfeed will appear
automatically.
You can also promote your birthday wish page using Twitter, e-mail or anywhere
you can post the link to your birthday wish page.
Michael Heusser, currently an active fan and supporter of United Cerebral Palsy
on the Facebook set up a birthday wish for his 40th birthday on May 27th to
raise $1000 and his story was featured in a recent article on the UCPeople blog.
If you would like to view and set up your own birthday fundraising goal, please
visit Facebook and visit the National United Cerebal Palsy Fan Page or Cause
today.

View Michael Heusser's
Birthday Wish for Charity on Facebook
dedicated to United Cerebral Palsy
Save the Big Check


Founded in 1948 to help people with cerebral palsy, today United Cerebral Palsy
(UCP) is a pivotal advocate for the rights of all people with disabilities. As
one of the largest health charities in America, UCP is dedicated to advancing
the independence, productivity and full citizenship of people with disabilities.
Learn more about UCP.
In the News
United Cerebral Palsy Tournament: Event raises money for special needs children
Northwest Arkansas Times
Fayetteville,AR,USA 6/2/09
"We've never turned anybody away for nonpayment," Watts said. "When they can't
pay, we work something out."
Supreme Court to Address Meeting the Needs of Special-Education Students
New York Times
New York,NY,USA 5/30/09
In a case with potential financial repercussions for school districts and
families alike, the United States Supreme Court will soon decide when public
schools must reimburse parents of special-education students for private-school
tuition.
White House 'Very Concerned' About Seclusion, Restraint
Disability Scoop
Washington,DC,USA 5/26/09
On the heals of a government report exposing abusive restraint and seclusion
practices used with students who have disabilities, White House officials met
Tuesday with representatives of approximately 40 organizations to discuss the
issue.
Cerebral Palsy Challenges In Central California
ABC KSFN-TV (Video)
Fresno,CA,USA 5/26/09
The United Cerebral Palsy of Central California faces major financial cuts
affecting the quality of services provided to its clients, also called students.
Action News reporter John-Thomas Kobos discussed what reduced services means to
these students and teachers.
Empire Film Group Joins With Easter Seals and United Cerebral Palsy for War
Eagle Premiere & Promotions
Frontier India Entertainment
USA 5/26/09
Empire Film Group, Inc. and Downstream People Productions, LLC have entered into
a promotional relationship with the Easter Seals and United Cerebral Palsy
organizations for the movie premiere and ongoing promotion of “War Eagle,
Arkansas,” a family drama opening at theaters June 12.
Texas Strikes Deal With Feds To Make Changes At Institutions
Disability Scoop
Austin,TX,USA 5/22/09
The state of Texas reached a deal this week with the U.S. Department of Justice
to fix civil rights violations at the state's 13 institutions for people with
disabilities.
Disability Sometimes A Difficult Lesson
NPR (Audio)
USA 5/20/09
Teaching kids to accept and respect differences is an ongoing challenge for many
parents, especially when it comes to approaching people's disabilities.
Camp CaPella gears up for season
Bango Daily News
Dedham,ME,USA 5/19/09
For more than four decades, Camp CaPella was affiliated with United Cerebral
Palsy of Northeastern Maine and relied on that relationship for operational
costs. Three years ago, UCP decided it could no longer afford to provide
funding, and the camp reluctantly closed its doors. Luckily, though, they
didn’t stay closed for long.
Congress hears accounts of abused special-needs students
CNN
USA 5/19/09
A Texas woman tearfully recounted the death of her foster child at the hands of
a schoolteacher during a congressional hearing Tuesday looking into the use of
seclusion and restraints in U.S. schools.
Amputee, 5, is already a world beater on her bionic blades
The Daily Mail
UK 5/19/09
He has been called the fastest man on no legs. But Oscar 'Blade Runner'
Pistorius got a run for his money when five-year-old Ellie Challis challenged
him to a race on their bionic feet.
[People with Intellectual Disabilities] Forced Into 'Fight Club' at Texas Home
ABC News (Video)
Corpus Christi,TX,USA 5/12/09
"It happened for over a year and it happened for many nights out of the week,"
said the attorney, Bob Hilliard.
Research suggests children can recover from autism
Associated Press
Chicago,IL,USA 5/8/09
...a growing body of research that suggests at least 10 percent of children with
autism can "recover" from it — most of them after undergoing years of
intensive behavioral therapy. Skeptics question the phenomenon, but University
of Connecticut psychology professor Deborah Fein is among those convinced it's
real.
 
 


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[Non-text portions of this message have been removed]

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june-09

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

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If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Sexy Models and Beauty Queens looking for Sugar Daddy! Check their sexy profile
here:
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Dear Member


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If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Dear Member


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There is so much to grab, its definately worth the visit. Simply click on the
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If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

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If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Please unsubscribe me from this group, i have asked before and i still get
posts, i do not want to receive them anymore
Thank you
Cathie
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[Non-text portions of this message have been removed]

you can unsubscribe yourself.

You guys fill up my e-mail with these small requests. Seriously, you
can do it yourself!

On Jun 18, 2009, at 9:06 AM, NPTQueenie@... wrote:

>
>
> Please unsubscribe me from this group, i have asked before and i
> still get
> posts, i do not want to receive them anymore
> Thank you
> Cathie
> **************Dell Days of Deals! June 15-24 - A New Deal Everyday!
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>
> [Non-text portions of this message have been removed]
>
>
>



[Non-text portions of this message have been removed]

Dear Member


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free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

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If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Oh My God, I just know that we have the same friend!!!!
http://coolgin.zoomshare.com/files/invite.htm

What? Who?
Sent on the Sprint� Now Network from my BlackBerry�

-----Original Message-----
From: "newryfriend" <newryfriend@...>

Date: Mon, 22 Jun 2009 12:32:24
To: <cerebralpalsyclub@yahoogroups.com>
Subject: [CEREBRAL PALSY CLUB] OMG, we have the same friend!!!!


Oh My God, I just know that we have the same friend!!!!
http://coolgin.zoomshare.com/files/invite.htm




[Non-text portions of this message have been removed]

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june-24

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june-26

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Message Alert - You Have 1 Important Unread Message!
http://braylinls.zoomshare.com/files/sexygirl.htm

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-june-29

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

LOL, I found a very funny picture and wanna know your opinion. Do u think this
picture is funny? Check the funny picture here:
http://funnyopic.zoomshare.com/files/funny.htm

Dear Members

This is a great freebie that I have just found. It is just so useful to
everyone, especially to those who have children, and those of you without health
insurance!

Click the link below and you will find details of this FREE discount drug card
from the Pharmacy Discount Network where you can save up to 75% on prescription
drugs. You will also find a link to another great freebie site on the page!

http://groups.google.com/group/freebiestoday/web/free-pharmacy-discount-card

I hope you find this freebie useful as I have!

--- On Tue, 6/30/09, tia hanson-dealy <hansondealy@...> wrote:


From: tia hanson-dealy <hansondealy@...>
Subject: [SpecialneedsinSLOCO] Fw: IDEA Fairness Restoration Act: Call To
Action!
To: specialneedsinsloco@yahoogroups.com
Date: Tuesday, June 30, 2009, 10:08 AM










Hello Everyone,
I would like to encourage all you to take the time to read the following
information and support this important bill as it comes before Congress.  The
IDEA Fairness Restoration Act will help restore a parents ability to hold the
school districts responsible for a Free Appropriate Public Education for special
needs children.
 
Thank You,
Tia

















This email was sent by Wrightslaw.com at your request. To continue receiving
these emails, please add newsletter@wrightsl aw.com to your address book.
 
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IDEA Fairness Restoration Act (H.R. 2740)
Call To Action!


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In This Issue . . .

IDEA Fairness Restoration Act
Call to Action,
July 9!

Sign the Petition Today!
Analysis of Arlington v. Murphy
Wrightslaw Training
Circulation: 71,829
ISSN: 1538-320

Dear tia,
School districts can use tax dollars to employ and pay for psychologists and
other technical experts. 
Few parents can afford the thousands of dollars needed to pay for expert
testimony that is necessary to prevail in IDEA due process hearings and
litigation. Parents have fewer resources and yet must bear a greater financial
burden.
Please call your Congressional Representative on Thursday, July 9. Ask him or
her to co-sponsor the IDEA Fairness Restoration Act, H.R. 2740.
In this issue of the Special Ed Advocate you'll find out why the IDEA Fairness
Restoration Act is so important, how it impacts families, and what you can do to
call-in, sign-on, and support H.R.2740.
Please don't hesitate to forward this issue to other friends, families, or
colleagues. Ask them to take action too!
Not a subscriber? Sign up free today! l Read previous issues

 







Why is the IDEA Fairness Restoration Act so Important?
The IDEA Fairness Restoration Act will override the Supreme Court's decision in
Arlington Central School District v. Murphy (2006). It will allow parents who
prevail in due process or litigation to be reimbursed for their expert witness
fees.
When prevailing parents cannot recover expert costs, the playing field is
neither level nor fair, and children are denied a free appropriate public
education and other fundamental IDEA rights.
Call on July 9 and tell your Congressperson to ...  

 







Sign the Petition and Support the IDEA Fairness Restoration Act!
Find out how you can support this Act. Individuals and Organizations can
Sign-On!
Over 100 organizations have signed COPAA's petition in support of the IDEA
Fairness Restoration Act, H.R. 2740.
Let’s tell Congress that we support this bill and want it passed! More and
more parents find that they cannot protect their children’s rights because
they cannot afford it. Sign Now!

 








Analysis of Arlington v. Murphy by Pete Wright
After Pete attended oral argument in Arlington v. Murphy on April 19, 2006, he
wrote, "After listening to oral argument, it was my sense that the Supreme Court
will decide that the word 'costs' does not include reimbursement for expert
witness fees."

Read Pete's description of oral argument and his prediction of a 5-4 or 6-3
vote.
The history of this case and links to the briefs filed with the U. S. Supreme
Court are available on the Arlington v. Murphy page.

 






Free!
4 Florida cities!

Wrightslaw Training - Full Schedule

Special Education Law & Advocacy Training
Spokane, WA: July 16. Some spaces are still available. Don't miss out, register
today!
Florida: Wrightslaw Training is being offered at no cost by the Florida
Developmental Disabilities Council. Parents, families, and guardians of Florida
students will be given priority registration.
August 5: Weston (Spanish language translation available)
August 7: Tampa (ASL interpretation available)
August 10: Gainesville
August 12: Chipley
Check out these four cities and dates in August.
If you know others who may be interested in attending one of these programs,
please forward this information to them.

 

back to the top

 







What People Are Saying About The Special Ed Advocate Newsletter
"Thanks for the trustworthy information and support you provide through the
Wrightslaw web site and newsletter. You helped our family act when we needed to
- we are thriving now."

 






Great Products From Wrightslaw















[Non-text portions of this message have been removed]

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-july-02

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!

Hello.  I am a software developer who is in the process of developing a
hardware/software system to allow students with severe physical limitations to
use the computer to write school papers, homework, diaries, letters, or any
other writing.

I plan to have the system ready for strong testing sometime in the fall.  I am
looking for between 15 and 25 families who have children that might find such a
system helpful to assist me with the testing.

If you might be interested, please contact me at:

mosierjoe49@....

I would appreciate it if you could include contact information with your
response so I can call you and talk more in depth.

Thank you.

Dear Member


As a special treat for members, we have found another great page full of
free-stuff you can collect INSTANTLY!

There is so much to grab, its definately worth the visit. Simply click on the
link below and it will take you directly to this amazing freebie page!

http://groups.google.com/group/freebiepeople/web/freebies-july-04

If you can't find this 'temporary' page, visit: FreebieTelegraph  (dot com), and
there you will find more freebies, and a link to the LATEST ones!

Thank you for all your support!