hi jen!
my name is tania, i have a 3 yo girl with quad cp, and a 4 month old
boy.
i resisted respite for the longest time, until our social worker
pretty much insisted i get someone in after my son was born, even if
it was only to get a couple of hours of uninterrupted sleep!  it has
turned out to be one of the best things ive done for myself ever!  i
was very hesitant to leave the kids (she looks after both of them)
with a stranger naturally, but once i had met her, i felt quite
secure.  i started out just getting her to look after them while i
did stuff around the house, or went food shopping for an hour or so,
but now i confidently leave them with her while i go out with a
girlfriend once a week for lunch or to a movie, whatever we feel
like.  i also get a lady to meet us at the hydrotherapy pool once a
week, and she looks after my son while my daughter and i attend
hydro.  these ladies r employed and trained by the cerebral palsy
association that we r with, all police cleared and experienced.
id really recommend respite, everyone needs time to be "childless",
just for a little while!!  once u get over the natural feeling of not
wanting to leave ur kids, it will become something u look forward to
each week.
take care
tania




--- In cerebralpalsyclub@yahoogroups.com, "greulings"
<greulings@y...> wrote:
> has anyone used respute care for their children? I am nervous to do
> so but I feel that my DH and I really need to get out once in a
> while.. well for us it would be the first time in 2 years! I was
just
> wondering if anyone has uded respite care? if so, how did it go?
>
> Thanks so much,
> Jen G.

Hi Andrea
Welcome to the group.  As you may have read a bit earlier, my daughter Kristen
has cortical visual impairment as well as severe CP.  She was formally diagnosed
with CP at 16 months but we were aware of the CVI when she was 6 months old. 
She also had severe reflux  which caused her to be very unhappy lying on the
floor and that was finally resolved when she got a fundoplication.  She became
much happier after that although she still does not like to be alone.  She was
clingy also but lately has been going to other people a bit easier and I think
its somewhat of a developmental thing (she is 34 months).
We were also told that her vision should improve as she gets older and although
I don't really notice it other people have said she seems to see more at times. 
Some days she still does not follow anything and then sometimes she does.  We do
have an OT that specializes in visual problems who sees her monthly so that has
been helpful.  Kristen has glasses as well because she is far sighted but I can
only put them on her when she is in her wheelchair, otherwise they don't sit
right on her when she is on the floor.  She still is unable to sit or crawl on
her own.  She has athetoid and spastic CP and sometimes has ballistic movements
where her hand will come flying throught the air and hit me, its not too bad
right now but I'm a bit worried what it will be like when she's older.  She also
can kick alot and again I'm more worried about when she'll be bigger and
stronger.
It's been a tough road and if you can get respite do, I get 30 hours a week
which is a life saver for me.  I had no problem ever leaving her with someone
else, I read about people who find it hard to do but that was never the case
with me.  One of our biggest adjustments was finding time for my older son who
is eight.  Having the respite really helped in that area so I can volunteer on
his school outings and do special things with him, he really needed that because
Kristen was getting all the attention.  Anyways, hang in there and best wishes.
Britta


[Non-text portions of this message have been removed]

My daughter Robyn is 26 months old (young?) - she has Diplegic CP. We
are getting her postural walker next week Monday - the company supplying
it has made some custom modifications to it - so its really made to fit
!

I need some advice on how to encourage her to use it ? She used a sample
one at physio and at her day care centre - but she wont walk with it at
home ? Any ideas would be greatly appreciated here !!

Many thanks



Trisha Butler
Distributor Support Executive
SYSPRO - South Africa

*   +27 (0) 11 461 1000
*   +27 (0) 11 807 4962
?    Trisha.Butler@... <mailto:Trisha.Butler@...>
*    www.syspro.com <http://www.syspro.com/>

The information transmitted is intended only for the person or entity to
which it is addressed and may contain confidential and/or privileged
material. Any review, re-transmission, dissemination or other use of, or
taking of any action in reliance upon this information by persons or
entities other than the intended recipient is prohibited. If you
received this in error, please contact the sender and delete the
material from any computer.






[Non-text portions of this message have been removed]

First, are the surface that you put her on, is it
smooth enough to move easily on.  Next, put her in the
middle of an enviorment that encourages exploration.
Several feet away from preferred items; toys, TV,
people.  At first encourage with words,  if she is
used to someone bringing her things when she exresses
want,  hold off, encourage her to get them herself.
I've had children get mad & demanding (by yelling or
crying), then I would use discernment.  A toy or TV is
a want not a "need", let her have the success of
getting.  However, favorite foods when hungry work
too.  Encourage independance.  One of my students, who
was diagnosed by doctors as "never to achieve
independant mobility" was walking around (PTs said he
wasn't walking, he was tottering) holding my hand,
then I started letting him hold a washcloth which got
slacker on my end. He (Steven) had a fascination with
running water, so I turned on one of the low sinks and
guess what, as he focused & walked toward it, I let go
of the washcloth and he tottered on his own to the
sink with the reward of putting his hands in the
water.  We were excited & called his mom.  He went
home & wouldn't do it for mom, so on the phone I told
her to turn on the kitchen sink & set him down so he
would have to walk across the kitchen.  He did it,
such joy, & after 3 days he tottered around church, &
on Monday tottered in to pick up his new wheelchair &
pushed it out to the car himself.

As parents we do our job, coddle, love, & protect.
And then for the good of our disabled children, just
as we do for our "normal" children; tough love comes
in.

Debra M-Mc, debraphp@...
--- Trisha Butler <trisha.butler@...> wrote:
> My daughter Robyn is 26 months old (young?) - she
> has Diplegic CP. We
> are getting her postural walker next week Monday -
> the company supplying
> it has made some custom modifications to it - so its
> really made to fit
> !
>
> I need some advice on how to encourage her to use it
> ? She used a sample
> one at physio and at her day care centre - but she
> wont walk with it at
> home ? Any ideas would be greatly appreciated here
> !!
>
> Many thanks
>
>
>
> Trisha Butler
> Distributor Support Executive
> SYSPRO - South Africa
>
> *   +27 (0) 11 461 1000
> *   +27 (0) 11 807 4962
> ?    Trisha.Butler@...
> <mailto:Trisha.Butler@...>
> *    www.syspro.com <http://www.syspro.com/>
>
> The information transmitted is intended only for the
> person or entity to
> which it is addressed and may contain confidential
> and/or privileged
> material. Any review, re-transmission, dissemination
> or other use of, or
> taking of any action in reliance upon this
> information by persons or
> entities other than the intended recipient is
> prohibited. If you
> received this in error, please contact the sender
> and delete the
> material from any computer.
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________
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My son Jason (26 yrs old) has the diagnosis of
cortical blindness but.... He love watching TV, he
responds appropriatly to ladies on TV and off.  He
used to have a fascination with blondes (light hair
not mom?)  He loves checking out animals (not snakes,
he can see a python a block away), he also enjoys
sightseeing as long as the sun is not directly in his
eyes and it's not too crowded ( being in a wheelchair,
he is "butt high" on alot of people.  He does not sit
up on his own and since his spinal doesn't turn to the
side much less over.  He loves to flirt and have
people talk to him, though it takes a minute for him
to process and respond.

What an adventure we are on,  the unknown lies ahead
and possibilities endless; to quote other adventurers.

Debra M-Mc
--- acclaire <acclaire@...> wrote:
> Hi
> My name is Andrea. I just found this group and it
> has been very
> helpful to read your messages...Helps me not feel
> alone in this long
> long journey. My daughter Alli is 16 months old and
> has recently
> been diagnosed with CP. She also has very involved
> vision problems.
> She has corticol vision impairment and optic nerve
> atrophy. The
> ophth. says her vision should improve, but we
> haven't seen much
> improvement. I don't think she sees much of
> anything. She also is
> very delayed in her motor skills. She is not
> sitting, rolling or
> crawling. We're doing PT with her and we have seen
> some
> improvements, but it is very slow. I'm wondering if
> some of your
> children with CP also have vision problems. I would
> love to hear
> your stories and about their developmental progress.
> It's hard to
> know what is from vision and what is from CP. Alli
> is also very
> clingy to me and my husband. Hardly lets anyone else
> hold her and
> can't stand being alone on the floor etc. Anyone
> else experience
> this with their children? Thanks for listening.
> Andrea
>
>


__________________________________
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Yahoo! SiteBuilder - Free, easy-to-use web site design software
http://sitebuilder.yahoo.com

Hi I have never posted here.  My name is Lisa and I have 4 year old
twins, one with CP and a 14 year old .  Austin (4)is scheduled to
have tendon release on 10/30 and I am nervous.  Has anyone here
dealt with that?  If so, what can I expect.  It is a fast surgery
and he is expected to come home the next day, no casting, etc.  I
have such mixed feelings.  BTW:  Austin has spastic diplegia.
any info will be appreciated.  thanks!

Debra,

Thank you for all the handy tips and information ....

	 -----Original Message-----
	 From: Debra Marasco-McNulty [mailto:debraphp@...]
	 Sent: 02 September 2003 05:50 PM
	 To: cerebralpalsyclub@yahoogroups.com
	 Subject: Re: [CEREBRAL PALSY CLUB] Postural Walkers


	 First, are the surface that you put her on, is it
	 smooth enough to move easily on.  Next, put her in the
	 middle of an enviorment that encourages exploration.
	 Several feet away from preferred items; toys, TV,
	 people.  At first encourage with words,  if she is
	 used to someone bringing her things when she exresses
	 want,  hold off, encourage her to get them herself.
	 I've had children get mad & demanding (by yelling or
	 crying), then I would use discernment.  A toy or TV is
	 a want not a "need", let her have the success of
	 getting.  However, favorite foods when hungry work
	 too.  Encourage independance.  One of my students, who
	 was diagnosed by doctors as "never to achieve
	 independant mobility" was walking around (PTs said he
	 wasn't walking, he was tottering) holding my hand,
	 then I started letting him hold a washcloth which got
	 slacker on my end. He (Steven) had a fascination with
	 running water, so I turned on one of the low sinks and
	 guess what, as he focused & walked toward it, I let go
	 of the washcloth and he tottered on his own to the
	 sink with the reward of putting his hands in the
	 water.  We were excited & called his mom.  He went
	 home & wouldn't do it for mom, so on the phone I told
	 her to turn on the kitchen sink & set him down so he
	 would have to walk across the kitchen.  He did it,
	 such joy, & after 3 days he tottered around church, &
	 on Monday tottered in to pick up his new wheelchair &
	 pushed it out to the car himself.

	 As parents we do our job, coddle, love, & protect.
	 And then for the good of our disabled children, just
	 as we do for our "normal" children; tough love comes
	 in.

	 Debra M-Mc, debraphp@...
	 --- Trisha Butler <trisha.butler@...> wrote:
	 > My daughter Robyn is 26 months old (young?) - she
	 > has Diplegic CP. We
	 > are getting her postural walker next week Monday -
	 > the company supplying
	 > it has made some custom modifications to it - so its
	 > really made to fit
	 > !
	 >
	 > I need some advice on how to encourage her to use it
	 > ? She used a sample
	 > one at physio and at her day care centre - but she
	 > wont walk with it at
	 > home ? Any ideas would be greatly appreciated here
	 > !!
	 >
	 > Many thanks
	 >
	 >
	 >
	 > Trisha Butler
	 > Distributor Support Executive
	 > SYSPRO - South Africa
	 >
	 > *   +27 (0) 11 461 1000
	 > *   +27 (0) 11 807 4962
	 > ?    Trisha.Butler@...
	 > <mailto:Trisha.Butler@...>
	 > *    www.syspro.com <http://www.syspro.com/>
	 >
	 > The information transmitted is intended only for the
	 > person or entity to
	 > which it is addressed and may contain confidential
	 > and/or privileged
	 > material. Any review, re-transmission, dissemination
	 > or other use of, or
	 > taking of any action in reliance upon this
	 > information by persons or
	 > entities other than the intended recipient is
	 > prohibited. If you
	 > received this in error, please contact the sender
	 > and delete the
	 > material from any computer.
	 >
	 >
	 >
	 >
	 >
	 >
	 > [Non-text portions of this message have been
	 > removed]
	 >
	 >


	 __________________________________
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[Non-text portions of this message have been removed]

My name is Virginia and I have CP. Does Austin have a wide gait when he
walks? Does he have balance problems? I'm just curious.


[Non-text portions of this message have been removed]

My daughter is about out of Huggies, Im just wondering what compinies
that poeple use, I live in Indiana..But any ones input will be
greatly appreciated!
Amy

Hi Amy,
Are you talking about Huggies Diapers size 6?  My son outgrew them a few months
ago and we went to the large pullups and Goodnights for the night time even
though the medium is still a little big.  But I know Goodnights go up to about
100 pounds.  I thought for sure that going to pull up type diapers would be a
pain but it hasn't been any more trouble than regular diapers were.
Tracy
   ----- Original Message -----
   From: Amy
   To: cerebralpalsyclub@yahoogroups.com
   Sent: Wednesday, September 03, 2003 6:13 AM
   Subject: [CEREBRAL PALSY CLUB] Im wondering where people get their diapers
form?


   My daughter is about out of Huggies, Im just wondering what compinies
   that poeple use, I live in Indiana..But any ones input will be
   greatly appreciated!
   Amy


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[Non-text portions of this message have been removed]

Contact a health supply company, I am in California &
here we have Shield and Max Care.  On the Exceptional
Parent website, you may find national advertisers.
Depends, & other "adult" brief sources carry small and
some extra small.  Some insurances and social service
agencies for disabled children cover the cost.

Debra M-Mc
--- Preston & Tracy <scholzp002@...> wrote:
> Hi Amy,
> Are you talking about Huggies Diapers size 6?  My
> son outgrew them a few months ago and we went to the
> large pullups and Goodnights for the night time even
> though the medium is still a little big.  But I know
> Goodnights go up to about 100 pounds.  I thought for
> sure that going to pull up type diapers would be a
> pain but it hasn't been any more trouble than
> regular diapers were.
> Tracy
>   ----- Original Message -----
>   From: Amy
>   To: cerebralpalsyclub@yahoogroups.com
>   Sent: Wednesday, September 03, 2003 6:13 AM
>   Subject: [CEREBRAL PALSY CLUB] Im wondering where
> people get their diapers form?
>
>
>   My daughter is about out of Huggies, Im just
> wondering what compinies
>   that poeple use, I live in Indiana..But any ones
> input will be
>   greatly appreciated!
>   Amy
>
>
>         Yahoo! Groups Sponsor
>
>
>
>   To unsubscribe from this group, send an email to:
>   cerebralpalsyclub-unsubscribe@yahoogroups.com
>
>
>
>   Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
>
>
> [Non-text portions of this message have been
> removed]
>
>


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Austin walks with his left foot turned in.  He does have balance problems but
gets right up after falling and refuses to use a walker.

Lisa
   ----- Original Message -----
   From: frodiscaper71@...
   To: cerebralpalsyclub@yahoogroups.com
   Sent: Wednesday, September 03, 2003 8:55 AM
   Subject: [CEREBRAL PALSY CLUB] HI LISA


   My name is Virginia and I have CP. Does Austin have a wide gait when he
   walks? Does he have balance problems? I'm just curious.


   [Non-text portions of this message have been removed]


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[Non-text portions of this message have been removed]

I teach children who are blind and visually impaired (many with cortical visual
impairments and optic nerve atrophy).  Children can learn to use the vision they
have in a better way, but vision doesn't 'improve' per se...it just develops.
Really you probably need a vision specialist to help you know what kinds of
activities to do with her to promote this.  This is another kind of 'therapist'
just like an OT or PT.

It is very hard to tell what is vision and what is CP...even for the experts. 
Honestly, I don't think it matters much, as long as you are getting services for
both the motor skills and the vision skills.  It will take time, but you will
learn the way in which your child's vision functions best and you will soon be
the 'expert'. (:

As for the clinginess...Kyleigh is extremely clingy too and it is hard.  No
suggestions, but I can empathize....
     Christine K.
   ----- Original Message -----
   From: acclaire
   To: cerebralpalsyclub@yahoogroups.com
   Sent: Monday, September 01, 2003 1:59 AM
   Subject: [CEREBRAL PALSY CLUB] New - daughter with CP and visual problems


   Hi
   My name is Andrea. I just found this group and it has been very
   helpful to read your messages...Helps me not feel alone in this long
   long journey. My daughter Alli is 16 months old and has recently
   been diagnosed with CP. She also has very involved vision problems.
   She has corticol vision impairment and optic nerve atrophy. The
   ophth. says her vision should improve, but we haven't seen much
   improvement. I don't think she sees much of anything. She also is
   very delayed in her motor skills. She is not sitting, rolling or
   crawling. We're doing PT with her and we have seen some
   improvements, but it is very slow. I'm wondering if some of your
   children with CP also have vision problems. I would love to hear
   your stories and about their developmental progress. It's hard to
   know what is from vision and what is from CP. Alli is also very
   clingy to me and my husband. Hardly lets anyone else hold her and
   can't stand being alone on the floor etc. Anyone else experience
   this with their children? Thanks for listening.
   Andrea


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[Non-text portions of this message have been removed]

HI there everybody
Sorry I have been out of the system for a while due to changed e-
mail address.
I wondered if anyone in Australia can help me - I visited there
recently and am keen to move our family there (probably somewhere in
Queensland) sometime in the next 2 years. Have no problems with both
my husband and I getting jobs (we are both professionals from New
Zealand) with 3 children, one of which, Daniel has cerebral palsy.
Just wondered what the special education system is like in
Australia. Daniel is just 2 and a half so far so am examining the
pre-school and school needs. Currently he goes to conductive
education 2 mornings per week, daycare with a education support
worker 1 morning a week, music group 1 morning a week (which i take
him with his twin brother Cameron) and then an early intervention
provider group session 1 morning a week for speech language therapy,
music therapy and play therapy.
At about 3 years both him and Cameron will go to kindy 3 x
afternoons per week, and looking toward going to a mainstream school
with his brother at the age of 5, with the help of a teacher aide
(although high needs they only get a couple of hours help a day).
My concerns are really that is there as good or better service in
Australia compared to New Zealand? This is bearing in mind that
Daniel has come a remarkably long way with all this therapy (all the
therapists are actually amazed at how well he is doing) and I don't
want to jepoardize this.
A bit of background:Daniel has moderate cerebral palsy with
rightsided hemiparesis, but has had complications such as a brain
cyst, and infantile spasms. He can walk holding hands or with a
walker, can crawl independantly, is learning to spoon feed, has
visual impairment which is actually improving all the time, the
seizures are now, dare I say it, non-existant for the last year and
he is on no medication now for this. He has just started to say a
few words. But only one year ago, he was only able to roll over one
way, and couldn't see a rattle held in front of his face. So as you
can see, he is doing really well and long may it continue, but our
family needs to move forward. He also has a big sister (not that big
though, Nicola is only 4!!!)
Are there similar early intervention providers and opportunities in
Australia?? (I am aware that there is conductive education there,
but what about music and speech therapy and is this easily
accessible?? Is any of it funded??)Does school start at age 5??
Many thanks to anyone who can help us out with advice!!!
Linda (mum to 2 and a half year old twins Cameron and Daniel and 4
year old big sister Nicola)

Hi folks!

The school year is full swing now and every household is bustling
with activity.  The weekend is normally a time you might spend
quality time with your child with a disability or catch up on those
chores that have been sneaking up on you all week.

But this Saturday, you could do more for your child｡Kyou can protect
the future of your child.

Special education will change without your voice.  Your voice
counts.  Your presence is needed.  Only with strength in numbers will
our legislators make the right decisions for our children.

The federal legislation known as the Individuals with Disabilities
Education Act (IDEA) is being reauthorized right now with a number of
changes that will directly affect the quality of your child｡ｦs
education, your ability to be kept aware of your child｡ｦs progress,
and your ability to file for due process when your district fails to
provide for your child.

The changes proposed include:
ボ The elimination of short term objectives
ボ A watered-down manifestation determination review
ボ Vague Behavioral Assessment vs. Functional Behavior Assessment
ボ Optional 3 year IEP in at any stage
ボ Discipline for any violation of a school｡ｦs code
ボ Resolution meetings prior to due process
ボ Rigid requirements of due process complaint filing
ボ Inability to raise new issues at due process
ボ 90 days to file civil action appeal is insufficient time
ボ Statute of limitations on due process complaints
ボ Barring of procedural claims from due process
ボ Lack of mandatory funding despite the apparent needs of struggling
local school districts and state needs (Did you know that on average
NJ local school districts are funded by federal funds by 4%?  It is
your property taxes (55%) and state funds that are providing special
education.  If you ever wondered why it was so hard to get that extra
therapy session it is perhaps the piggy bank is empty)
ボ 15% Part B IDEA funding for pre-referral services
ボ Lack of safeguards for students receiving pre-referral services

Attend the IDEA rally sponsored by the Family Support Center of New
Jersey this Saturday, September 13, 2003.  You have an opportunity to
tell your legislators why your child｡ｦs education is important to you
and how you feel about this changes.

You might think that there will be plenty of other people there and
you don｡ｦt count.  But you do.  No one has your unique experience and
your story needs to be shared.  Others cannot represent the needs of
your child.

LOCATION:

GARDEN STATE EXHIBITION CENTER
50 ATRIUM DRIVE
SOMERSET, NJ

REGISTER TO ATTEND BY CALLING:
973-244-0850

BUS PICK-UP AVAILABLE: BLOOMFIELD, RIDGEWOOD, NEWARD AREA, CAMDEN AND
ATLANTIC COUNTY.


Please call today for details and registration.  It is completely
free and a free lunch is also provided.  Transportation is provided
if necessary.  Every barrier has been removed to insure you come.
It could be the single most important thing you do this weekend.

All the best,
Debbie Brown

There is a new virus out there according to the news section of
www.digihosters.com of whom I used to host with of which I left this past
weekend.  According to Symantec and McCafee, this trojan doesn't even exist as
of yesterday.  Please keep in mind that anyone related to anyone that works with
the US Federal & State Government, private or public is protected by our federal
government.  My in-laws, Janet & Chris Morris of M2 Technologies Inc.
www.m2technologiesinc.com work with the Joint Non Lethal Weapons Program of the
US Government, http://iis.marcorsyscom.usmc.mil/jnlwd/ and the Justice
Technology Information Network, http://www.nlectc.org/.  With that written,
please understand that my wife is harmless and doesn't even know how to make a
web page.  She certainly doesn't know anything about how to make a computer
virus and neither do I.  My wife has Cerebral Palsy and believe me when I tell
you, people with Cerebral Palsy don't always if ever understand that there are
people who cause harm in this world.  My wifes name is Leonda K. Mahler.  That
trojan virus that hit Digihosters is named LKM.  We did not ask for, did not
wish for and we did not want this kind of terrorist act against anybody.  Again,
Please keep in mind that anyone related to anyone that works with the US Federal
& State Government, private or public is protected by our federal government. 
Think what you will of me, just please leave my wife to live alive in peace.


Sincerely,

William K. Mahler
Mahlers Of Cape Cod
The reality of fantasy.
Chat, Forum, MP3's, Photos & More
www.mahlers.com
To reply, look at the addy & see what belongs!:-)

You may be forcefully caused to make a
change you were previously resisting.
Remember that when Mercury is retrograde,
it is a corrective time. It is when God
shows you who is really in control. My
best advice is not to resist the
inevitable changes that are happening
today. Some may not even last.


     .

[Non-text portions of this message have been removed]

----
Posts: 263 | Registered: Jul 2002  |  IP: Logged |

LKMWKM
Member
Member # 460

   posted 09-09-2003 07:31 PM
----------------------------------------------------------------------------
----
the fact that our lives here go on here and there wherever there may be
during this time as of now and the fact that the virus has the letters LKM
as you posted, LKM Trojan. nothing else seems to indicate that somebody
picked that virus just for you and believe me david, i did not ask.

fwiw, the cape cod hospital here on cape cod, their computers went down not
to long after your servers did.

to be blunt, a lot of people working at cape cod hospital are messing with
patients and they aren't supposed too. 2 men have been charging $30 for cat
scan results i was told today and they aren't supposed to either. cape cod
hospital put words in my mouth, in other words, went on record to state
things they claim i said that i did not say and cape cod hospital's
affiliate outright lied to my wife and i years ago about a lump in her
breast that fortunatly a surgeon took out. the mammogram that dr loren
burger of cape cod radiology took into his view had a lump in it and years
later david, that mammogram did not have a lump in it. as for me david, cape
cod hospital has a good record of my case of prostititus from years ago. i
went to them not to long ago complaining of testicular pain and they didn't
even bother to check for prostatitus. they gave me a cat scan, urine and
blood tests and told me i was fine david. the next day the lab results came
back and it clearly states i had a ion gap of 9 wich over here in the
states, is a flag, a concern. this was cape cod hospitals own doing. another
hospital took care of me that same date that i got the labs from cape cod
hospital. cape cod hospitals dr. rudman went on to state that i said i
believed i ate dog food. david, i never ever said any such thing. the ass
even went on to say that my problem was psychological and again david, i was
diagnosed with prostititus not 24 hours after seeing that doctor.

in other words, somebody don't like some personnel at cape cod hospital
other than me. perhaps and most likely you got whacked with the lkm trojan
simply because it would look like i did it or my wife and david, other than
your message stating you got hit by the LKM Trojan, neither of us knew of
the lkm trojan until a short while ago today in another name for it.

as for symantec and mcafee, hey they claim to be the top dogs in the field
of viruses and they are touted as such, so why do they not cover unix? i
know not much about your servers and os's nor anybody elses david, but is it
possible it got in any other way?

ive experienced the mt e encrypted virus inside a jpeg as far back as 1996
or 7. the guy who's site it was in claimed it couldn't happen but david, it
did.

my site has no viruses, that is for sure.
if you still have a backup of it, scan it yourself and let me know what you
find and i do think you'll find nothing.


david, you were always prompt as prompt as could be, you let me do what i
want with no complaint from you or your staff. i consider you friendly and i
will keep in touch if you let it happen.

william
----------------------------------------------------------------------------
----
Posts: 263 | Registered: Jul 2002  |  IP: Logged |

LKMWKM
Member
Member # 460

   posted 09-09-2003 07:32 PM
----------------------------------------------------------------------------
----
the doctor who told me cape cod hospitals computer system went down was none
other than my own personal physician.
----------------------------------------------------------------------------
----
Posts: 263 | Registered: Jul 2002  |  IP: Logged |

LKMWKM
Member
Member # 460

   posted 09-09-2003 07:36 PM
----------------------------------------------------------------------------
----
the nurse who told me that 2 men were charging $30 for cat scan results at
cape cod hospital was none other than the nurse who works for a doctor in
falmouth of whom my wife and i spoke with today. for some reason, even
though my wife was told by the cat scan people at cape cod hospital that her
cat scans would be mailed to her sports injury doctor weeks ago, the cat
scans never arrived in the mail, even with the sports physicians staff
clearly indicating to cape cod hospital that those cat scans were needed in
their office a long time ago.

doctor,

are you a good doctor or a bad doctor?


[Non-text portions of this message have been removed]

Find your match from tens of thousands of single millionaire here!You
don't have to be a millionaire,but you can meet successful ladies and
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Yes, it's a warning, but I'm so excited.  Kyleigh and Alison have been asked to
take part in a fashion show.  It's specifically for kids with special needs and
Alison gets to take part as the sibling.  They're both so excited.  They told me
they'd like me to sell about 8 tickets to the show and I think I'll have a hard
time selling any less than 8 because everyone I know is going to be dying to see
them all dressed up!  They're so wonderful.  I look forward to seeing how they
plan to adapt things for Kyleigh so that she can 'walk' the runway.  Maybe by
then she'll be in a gait trainer (it's not until November)!  Anyhow, however she
does it I'm sure she'll be great and we'll be proud of her...just had to share.
     Christine K.


[Non-text portions of this message have been removed]

What a great opportunity!!!  I'd like to know how it
turns out, i.e.  Do you live in a large metropolitan
area?  Who  is sponsoring?  Is it being held at a mall
area or in connection with a special event?

I am excited for you and you children.  God Bless and
have fun.
Debra M-Mc
--- Christine Kramlich <goblin16@...> wrote:
> Yes, it's a warning, but I'm so excited.  Kyleigh
> and Alison have been asked to take part in a fashion
> show.  It's specifically for kids with special needs
> and Alison gets to take part as the sibling.
> They're both so excited.  They told me they'd like
> me to sell about 8 tickets to the show and I think
> I'll have a hard time selling any less than 8
> because everyone I know is going to be dying to see
> them all dressed up!  They're so wonderful.  I look
> forward to seeing how they plan to adapt things for
> Kyleigh so that she can 'walk' the runway.  Maybe by
> then she'll be in a gait trainer (it's not until
> November)!  Anyhow, however she does it I'm sure
> she'll be great and we'll be proud of her...just had
> to share.
>     Christine K.
>
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________
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Yahoo! SiteBuilder - Free, easy-to-use web site design software
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Yes, I do live in a large area.  I live outside of Atlanta.  The people
sponsoring are called FOCUS (families of children under stress).  They also have
support groups, mom's day out, camps and family day at the zoo...all for
families of kids with disabilities.  It is being held...hmm, I don't know where,
but I don't think at a mall.  It's not being held WITH a special event.  It is
the special event.  (: I'll let you know more as I learn more and I promise to
take lots of pics.
     Christine K.
   ----- Original Message -----
   From: Debra Marasco-McNulty
   To: cerebralpalsyclub@yahoogroups.com
   Sent: Sunday, September 14, 2003 1:51 AM
   Subject: Re: [CEREBRAL PALSY CLUB] mommy brag


   What a great opportunity!!!  I'd like to know how it
   turns out, i.e.  Do you live in a large metropolitan
   area?  Who  is sponsoring?  Is it being held at a mall
   area or in connection with a special event?

   I am excited for you and you children.  God Bless and
   have fun.
   Debra M-Mc
   --- Christine Kramlich <goblin16@...> wrote:
   > Yes, it's a warning, but I'm so excited.  Kyleigh
   > and Alison have been asked to take part in a fashion
   > show.  It's specifically for kids with special needs
   > and Alison gets to take part as the sibling.
   > They're both so excited.  They told me they'd like
   > me to sell about 8 tickets to the show and I think
   > I'll have a hard time selling any less than 8
   > because everyone I know is going to be dying to see
   > them all dressed up!  They're so wonderful.  I look
   > forward to seeing how they plan to adapt things for
   > Kyleigh so that she can 'walk' the runway.  Maybe by
   > then she'll be in a gait trainer (it's not until
   > November)!  Anyhow, however she does it I'm sure
   > she'll be great and we'll be proud of her...just had
   > to share.
   >     Christine K.
   >
   >
   > [Non-text portions of this message have been
   > removed]
   >
   >


   __________________________________
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[Non-text portions of this message have been removed]

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I don't know who this person is....but I wish they would understand that this is
not a "dating" group...getting really sick of getting these emails ya know?
--




____________________________________________________________
Get advanced SPAM filtering on Webmail or POP Mail ... Get Lycos Mail!
http://login.mail.lycos.com/r/referral?aid=27005

Yes I do, along with the ones I get that say "be
bigger for your lover", my husband thinks I'm big
enough thank you.


--- Andrea Stansbury <recsmom@...> wrote:
> I don't know who this person is....but I wish they
> would understand that this is not a "dating"
> group...getting really sick of getting these emails
> ya know?
> --
>
>
>
>
>
____________________________________________________________
> Get advanced SPAM filtering on Webmail or POP Mail
> ... Get Lycos Mail!
> http://login.mail.lycos.com/r/referral?aid=27005
>


__________________________________
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Yahoo! SiteBuilder - Free, easy-to-use web site design software
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--- Darlene K Kinnison <deekinn@...> wrote:
> To:
>
juge1@...,garends@...,sbieker@...,
>  bucky2us@...,melodymusic1@...,
>
>
scounter@...,fhfaulkner@...,
>  chrisgiasson3@...,proposal@...,
>
>
moxie3155@...,lhyatt1@...,judyj235@...,
>
>
blemasters@...,dmaggenti@...,debraphp@...,
>
>
kapatchat@...,cpullen@...,salinasr@...,
>  charthomas@...,talaposa@...
> Date: Sat, 13 Sep 2003 13:14:42 -0700
> Subject: Why do women cry
> From: Darlene K Kinnison <deekinn@...>
>
>
>
>
> I'm sure that most of you have seen this before.  We
> all need a boost of
> encouragement.  To the men that I've forwarded this
> to, please print it
> out for your wives or future wives.  Thanks and
> ladies, I pray that God
> blesses each of you richly and thank Him for each of
> you and for the
> privilege of knowing each of you.
>
>
>
>
> Women Cry...
>
>
> A little boy asked his mother, "Why are you crying?"
> "Because I'm a
> woman," she told him.
>
>
>
>
>
>
>
>
>
>
>
> "I don't understand," he said. His Mom just hugged
> him and said, "And you
> never will."
>
>
>
>
>
>
>
>
>
>
>
> Later the little boy asked his father, "Why does
> mother seem to cry for
> no reason?"
>
>
>
>
>
>
>
>
>
>
>
> "All women cry for no reason," was all his dad could
> say.
>
>
>
>
>
>
>
>
>
>
>
> The little boy grew up and became a man, still
> wondering why women cry.
>
>
>
>
>
>
>
>
>
>
>
> Finally he put in a call to God. When God got on the
> phone, he asked,
> "God, why do women cry so easily?"
>
>
>
>
>
>
>
>
>
>
>
> God said:
>
>
>
>
>
>
>
>
>
>
>
> "When I made the woman she had to be special.
>
>
>
>
>
>
>
>
>
>
>
> I made her shoulders strong enough to carry the
> weight of the world,
>
>
>
>
>
>
>
>
>
>
>
> yet gentle enough to give comfort.
>
>
>
>
>
>
>
>
>
>
>
> I gave her an inner strength to endure childbirth
> and the rejection that
> many times comes from her children.
>
>
>
>
>
>
>
>
>
>
>
> I gave her a hardness that allows her to keep going
> when everyone else
> gives up, and take care of her family through
> sickness and fatigue
> without complaining.
>
>
>
>
>
>
>
>
>
>
>
> I gave her the sensitivity to love her children
> under any and all
> circumstances, even when her child has hurt her very
> badly.
>
>
>
>
>
>
>
>
>
>
>
> I gave her strength to carry her husband through his
> faults and fashioned
> her from his rib to protect his heart.
>
>
>
>
>
>
>
>
>
>
>
> I gave her wisdom to know that a good husband never
> hurts his wife, but
> sometimes tests her strengths and her resolve to
> stand beside him
> unfalteringly.
>
>
>
>
>
>
>
>
>
>
>
> And finally, I gave her a tear to shed. This is hers
> exclusively to use
> whenever it is needed."
>
>
>
>
>
>
>
>
>
>
>
> "You see my son," said God, "the beauty of a woman
> is not in the clothes
> she wears, the figure that she carries, or the way
> she combs her hair.
>
>
>
>
>
>
>
>
>
>
>
> The beauty of a woman must be seen in her eyes,
> because that is the
> doorway to her heart - the place where love
> resides."
>
>
>
>
>
>
>
>
>
>
>
> Please send this to five beautiful women you know
> today. If you do,
> something good will happen - You will boost another
> woman's self-esteem!
>
>
>
>
>
>
>
>
>
> --- fred tanner
> --- derfskt03@...
> --- EarthLink: The #1 provider of the Real Internet.


__________________________________
Do you Yahoo!?
Yahoo! SiteBuilder - Free, easy-to-use web site design software
http://sitebuilder.yahoo.com

Somehow I accidently left this group. I'll blame it on Yahoo.  Anyway, I dont'
know if anyone remembers me.  I'm Denise.  I have a 3 year old daughter with
mild CP.  She wore AFO's for a few months about 2 years ago.  Tomorrow we are
going to see the neurologist again.  We are pretty sure she will have to have
the AFO's again.  So here's my question: can the neuro. write the order to have
her fitted for them or will she have to refer us to an orthopedist?  Last time,
our pediatrician referred us to an orthopedist, who then sent us to be fitted. 
I just dont want to have to see any more doctors than we have to.  We have to
travel 2 hours to see all of her doctors, and it's hard for my husband to get
off work. Anyway, I'm glad to be back.  :)

Denise


---------------------------------
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Yahoo! SiteBuilder - Free, easy-to-use web site design software

[Non-text portions of this message have been removed]

Where do you live? Through the schools do you have
contact with a PT unit?

Debra M-Mc
--- Denise Horne <denise_109@...> wrote:
> Somehow I accidently left this group. I'll blame it
> on Yahoo.  Anyway, I dont' know if anyone remembers
> me.  I'm Denise.  I have a 3 year old daughter with
> mild CP.  She wore AFO's for a few months about 2
> years ago.  Tomorrow we are going to see the
> neurologist again.  We are pretty sure she will have
> to have the AFO's again.  So here's my question: can
> the neuro. write the order to have her fitted for
> them or will she have to refer us to an orthopedist?
>  Last time, our pediatrician referred us to an
> orthopedist, who then sent us to be fitted.  I just
> dont want to have to see any more doctors than we
> have to.  We have to travel 2 hours to see all of
> her doctors, and it's hard for my husband to get off
> work. Anyway, I'm glad to be back.  :)
>
> Denise
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! SiteBuilder - Free, easy-to-use web site
> design software
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________
Do you Yahoo!?
Yahoo! SiteBuilder - Free, easy-to-use web site design software
http://sitebuilder.yahoo.com

We're in Mississippi.  We are not using the school system for anything.  Our
school system doesn't have anything to offer us.  We were seeing a PT but she
didn't know how to interact with my daughter. She is also autistic, so she is
very hard to deal with.  The therapists here aren't trained to deal with autism.
We would have to drive 2 hours four times a week to get all the therapy she
needs (PT,OT,ST, and behavior therapy) .  We couldn't do that.

Denise


---------------------------------
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[Non-text portions of this message have been removed]

Denise,

My son is 2 and wears DAFO's.  This is how it works for us in NC.  The route
they have us take here is to get a referral from a pediatrician to the
neurologist and/or the orthopaedist.  Per insurance purposes, you will most
likely need a referral from the pediatrician to any specialist.  I am not
aware that a  neurologist can write an order for AFO's.  They are typically
not specialized in that area.  I wouldn't imagine that they would be aware
of the particular type that would best benefit your daughter.  Generally, an
orthopaedist needs to evaluate the child and typically she and the physical
therapist communicate re: what type of AFO is appropriate to meet the
child's needs.  Then the orthotist (who the orthopaedist refers you to) will
make a mold of the child's foot and they are the ones that make the AFO.  I
agree.  It involves entirely too many people.Must be due to the specialty of
the matter.  When travel becomes an issue it is so difficult...

Hope this helps.

Kim (Jaxon - 2 years, AN, CP and Brixon - 2 years, typical)
-----Original Message-----
From: Denise Horne [mailto:denise_109@...]
Sent: Tuesday, September 16, 2003 12:49 PM
To: cerebralpalsyclub@yahoogroups.com
Subject: [CEREBRAL PALSY CLUB] Just joined again/question


Somehow I accidently left this group. I'll blame it on Yahoo.  Anyway, I
dont' know if anyone remembers me.  I'm Denise.  I have a 3 year old
daughter with mild CP.  She wore AFO's for a few months about 2 years ago.
Tomorrow we are going to see the neurologist again.  We are pretty sure she
will have to have the AFO's again.  So here's my question: can the neuro.
write the order to have her fitted for them or will she have to refer us to
an orthopedist?  Last time, our pediatrician referred us to an orthopedist,
who then sent us to be fitted.  I just dont want to have to see any more
doctors than we have to.  We have to travel 2 hours to see all of her
doctors, and it's hard for my husband to get off work. Anyway, I'm glad to
be back.  :)

Denise


---------------------------------
Do you Yahoo!?
Yahoo! SiteBuilder - Free, easy-to-use web site design software

[Non-text portions of this message have been removed]


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--- [Pre-scanned for viruses by Internet America.]


[Non-text portions of this message have been removed]

My son (4 yo w/spastic diplegia) has been wearing AFO's for 3 years.  He gets
them from his private PT who works under his Physiatrist.  I always need
preauthorizations and/or referrals for specialties.  What a pain!  Austin is
having tendon release on 10/30.  Anyone familiar with that procedure?!  ~Lisa
   ----- Original Message -----
   From: Curt & Kim
   To: cerebralpalsyclub@yahoogroups.com
   Sent: Tuesday, September 16, 2003 1:33 PM
   Subject: RE: [CEREBRAL PALSY CLUB] Just joined again/question


   Denise,

   My son is 2 and wears DAFO's.  This is how it works for us in NC.  The route
   they have us take here is to get a referral from a pediatrician to the
   neurologist and/or the orthopaedist.  Per insurance purposes, you will most
   likely need a referral from the pediatrician to any specialist.  I am not
   aware that a  neurologist can write an order for AFO's.  They are typically
   not specialized in that area.  I wouldn't imagine that they would be aware
   of the particular type that would best benefit your daughter.  Generally, an
   orthopaedist needs to evaluate the child and typically she and the physical
   therapist communicate re: what type of AFO is appropriate to meet the
   child's needs.  Then the orthotist (who the orthopaedist refers you to) will
   make a mold of the child's foot and they are the ones that make the AFO.  I
   agree.  It involves entirely too many people.Must be due to the specialty of
   the matter.  When travel becomes an issue it is so difficult...

   Hope this helps.

   Kim (Jaxon - 2 years, AN, CP and Brixon - 2 years, typical)
   -----Original Message-----
   From: Denise Horne [mailto:denise_109@...]
   Sent: Tuesday, September 16, 2003 12:49 PM
   To: cerebralpalsyclub@yahoogroups.com
   Subject: [CEREBRAL PALSY CLUB] Just joined again/question


   Somehow I accidently left this group. I'll blame it on Yahoo.  Anyway, I
   dont' know if anyone remembers me.  I'm Denise.  I have a 3 year old
   daughter with mild CP.  She wore AFO's for a few months about 2 years ago.
   Tomorrow we are going to see the neurologist again.  We are pretty sure she
   will have to have the AFO's again.  So here's my question: can the neuro.
   write the order to have her fitted for them or will she have to refer us to
   an orthopedist?  Last time, our pediatrician referred us to an orthopedist,
   who then sent us to be fitted.  I just dont want to have to see any more
   doctors than we have to.  We have to travel 2 hours to see all of her
   doctors, and it's hard for my husband to get off work. Anyway, I'm glad to
   be back.  :)

   Denise


   ---------------------------------
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   Yahoo! SiteBuilder - Free, easy-to-use web site design software

   [Non-text portions of this message have been removed]


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   [Non-text portions of this message have been removed]


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               ADVERTISEMENT




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[Non-text portions of this message have been removed]