Group Information- Members: 97
- Category: Support
- Founded: Dec 19, 1999
- Language: English
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Description
Welcome to Butterfly Children - raising awareness of Epidermolysis Bullosa - EB
The Butterfly Children have skins as fragile as a butterfly wing - skin so delicate and fragile that even the slightest touch can hurt. Please join and show your support.
This is a gathering place for people of all walks of life, and whether or not you've even heard of EB, you're welcome. Drop by, make yourselves at home, we're here for all. Stick some music on, get a cuppa, and grab a chair, or if you're like me, loll on the floor. Let's put the world to rights :)
Great to have you on board :) - hon_w.rm and castlering (founders); rash_1999_uk and pinky_lefty_revolutionary.(moderators)
PLEASE NOTE - we have no affiliation with DEBRA or any other EB organisation. Any enquiries about EB, treatments and issues relating should be forwarded to DEBRA and your doctor.
This site is a member of the Epidermolysis Bullosa WebRing.
To browse visit Here
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Passing this along...
Hello, everyone - This was posted on the EBCareNetwork from DebRA International Coordinators' Forum to the doctors, so I figured I should pass it on to the
Posted - Wed May 14, 2008 1:34 pm
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Gena
ggruschovnik
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Posted - Thu Mar 27, 2008 11:50 pm
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butterflychildren@yah...
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Brogans anniversary, 2/4/2008, 12:00 pm
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Brogans anniversary Monday February 4, 2008 12:00 pm - 1:00
Posted - Mon Feb 4, 2008 11:42 am
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butterflychildren@yah...
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Posted - Wed Jan 16, 2008 2:19 pm
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Gena
ggruschovnik
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Re: 2008!
Happy new year to you too Colin, and anyone one out there who is lurking in cyber space. Love Rachelle x ... From: Colin Townsend To:
Posted - Thu Jan 3, 2008 1:48 pm
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Rachelle
rash_1999_uk
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Add butterflychildren to your personalized My Yahoo! page   What's This?
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Message History
Group Email Addresses
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