Hello Everyone, Hope that you and your loved ones are doing well. I am looking for help on a special item. My daughter's swimming teacher has been asked to...
Hello Everyone, Hope that you and your loved ones are doing well. I am looking for help on a special item. My daughter's swimming teacher has been asked to...
Hello Everyone, Hope that you and your loved ones are doing well. I am looking for help on a special item. My daughter's swimming teacher has been asked to...
Arthrogryposis Multiplex Congenita Support, Inc. announces the 4th Annual Arthrogryposis Convention!!! click her for details!??? http://www.amcsupport.org/pa ...
I started a Yahoo group for those with AMC and g-tubes and/or trachs as we have very unique issues and circumstances. It will be a closed, protected, moderated...
dear fellow people with AMC my name is thaniel ion lee, and I am an artist from southern indiana. I am currently working on a series of photo based portraits...
If you are not an Ebay Seller, please pass this message along to those who are. Thank You, Arthrogryposis Multiplex Congenita Support, Inc. teams up with...
We adopted our daughter from China back in Feb. of this year. She will be 2 next month. She has AMC and we are very new to this whole medical side. Can...
The convention allows you to get together with both families with AMC and adults with AMC that can help answer questions and let you know what to expect from...
Your best resource should be your therapist. They have avenues and companies that you can purchase supplies and devices from. Our if you are crafty you...
?convention has been a wonderful experience for me. You can meet AMCers & their families from new babies to adulthood. We have different sessions, Drs...
Just curious how surgery was for Jake... ... From: Betsy Gates To: avenues2@yahoogroups.com Sent: Wednesday, November 26, 2008 12:17 PM Subject: [avenues2] Re:...
It all went really well. Got the appliance in in December, turned the screws for 3 weeks (3x/day, 1mm each turn) then left the jaw to heal up until February....
Oh good. Good to hear. Bonnie is not a candidate for the surgery at this time. But she doesn't have a trach either. We are pursuing a head chin cap device, and...
Good morning, The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive equipment,...
You should check with your physical therapists and your doctors they can write a perscription so your insurance company will cover most of the costs. I am...
Shilpa, I looked around extensively for a stroller for my son who is 6 years old and 45 lbs. I did not find a good solution for all situations, but I did find...
Hi there, I am an adult with AMC. I am 49 years old. I was in a stroller until I was 8 and hated it., I was not allowed to take my wheelchair home that I...
Patty Clarke
pelclarke@...
May 18, 2009 5:35 am
2872
I have a question I am hoping some of you may be able to help with - My company is cutting health insurance - my dh's did a few months ago.? Because the plan...
Patty, Thanks for weighing in on this. My Bonnie had a power chair at age 2 but one day looked around, saw no one else using one, so she started to try her...
Tracy, I had somewhat of a similar situation in that we did have the COBRA but we had to make alternative arrangements for when it ran out. My understanding...
MARK & MARY HEINEN
mmajch94@...
May 18, 2009 6:09 pm
2875
Mary, Our current insurer denied an individual family plan since one of the kids is terminal.? The price they quoted me for the kids indiviually was over 6K a...
Medicaid will only cover if you need for indoor use. Most insurance companies follow that rule as well. ... From: Pam Smith To: avenues2@yahoogroups.com Sent:...
We receive SSI payments for TJ which provides him with state insurance. In PA, SSI is based on your income, I don't know if all states are the same. It was a...
SSI is all based on income in every state. The Federal Government makes up the formula. It is also asset based, meaning you cannot own say, a boat. Or a bunch...
Hello all, I am still searching for an appropriate stroller for our 7 years old kid, Something multi-use that we can use for walks as well as visit to...
Have you tried a manual wheelchair? The vendor can custom build a seating system for your child that will accommodate their needs. Jaime ... From: vidarbhi ...
Good morning, For any families who may need it: The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the...