With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
thank you so much for putting such groups on the net,where we can share life and all other complications in it.i have a babygirl i gave birth to on the 15th of...
Prayers to you and your family Kelly. I also have a son who has AMC, he is 8 yrs. old. Have you been able to get much medical help for your daughter? It is...
thank you so much Sharon for writing to me.i have not managed to get enough help for the little girl so far.i have visited almost 13 doctors,all different ...
thank you so much Sharon for writing to me.i have not managed to get enough help for the little girl so far.i have visited almost 13 doctors,all different ...
Kelly- TJ was born with club feet, not able to bend at the knees or elbows, wrists are abducted-only able to come to neutral position, very low muscle mass in...
Sharon my daughter has had quite a few falls over the years. She also has a weight issue. She is 8 1/2 years old, 123 cm tall and weights 34 kilos ( ...
Good afternoon, everyone! The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive ...
Dimitra- It is so good to hear that your daughter is doing well. TJ actually took a fall at his first baseball game after I wrote that message and broke the...
Kelly- I'm sorry to hear that you are not able to afford to take your daughter to the doctor. The best thing that you can do for her is to help her stretch at...
Do you have a Arthrogryposis Text Atlas that is sitting on your bookshelf collecting dust? Are you no longer using it because your child with AMC is older? If...
Do you have a Arthrogryposis Text Atlas that is sitting on your bookshelf collecting dust? Are you no longer using it because your child with AMC is older? If...
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc http://www.amcsupport.org When: July 17-20 2008 Where: Columbus Ohio United States Who:...
Good morning, For any families who may need it: The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the...
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
AMCSI is coming to Dublin Ohio July 17-20th, 2008!!!!! Go to _www.amcsupport.org/ohio_ (http://www.amcsupport.org/ohio) for all the details! This will be our...
?We are excitingly getting ready for our 3rd annual AMC Convention~ & cannot wait to meet many of you who are attending! Its in 4 days!!!! July 17-20 in Dublin...
Thanks Lori! I sure wish you, Everrett & Masha were coming!! I miss u guys! I'll deff take loads of pics & they will be posted after the convention!! ~Theresa ...
I HAVE to tell you all that didnt get to attend the 3rd annual Arthrogryposis multiplex Congenita Support, Inc Convention in Dublin Ohio last week missed out...
Hi everyone. I am wondering if any kiddos w/ amc have also been diagnosed with sensory integration disorder? Or are sensory issues just a side effect of the...
Some things may present as sensory integration but aren't. My son is still in diapers because he can't tell when he needs to go. That is due in part to arthro...
beki@...
Aug 5, 2008 4:47 am
2769
Just? read this post and I am wondering if toilet issues are common with children with arthro?? My son is 7 and I can't seem to get him toilet trained no...
M71665@...
Aug 6, 2008 3:00 pm
2770
I am wondering what kind of doctor told said "most of the time its a problem with the parents not wanting to take the time to take their kids"!! Is he just...
It can very well be. It's not always, but i can be. My son has horrible constipation which he takes mirilax for daily. He also can't sense when he has to go...
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