Hey everyone! We just got back home from Dallas. We met with the hand surgeon at Dallas Scottish Rite and they want to do a carpal wedge osteotomy on...
Hi there - Any ideas for a 12 year-old girl in the hairwashing area? We need some suggestions for independence in this area. She has AMC in upper extremities...
I am not sure if this will help, but my daughter's main struggle was getting shampoo out of the bottle, so we got a dispenser from target. Has 3 slots --...
Sue, There are some automatic shampoo dispensers out there somewhere, I've seen them in catalogues. I just don't remember where. If I run across a catalogue...
Diane Voigt
dvoigt15221@...
Feb 23, 2008 11:38 pm
2731
Wow - this would be great if she didn't have to physically push those knobs. They aren't the easiest things in the world. Thanks for the suggestion - I'll...
just wanted to remind everyone that AMCSI Convention 08 is near!! this years convention, our 3rd annual, will be located in Ohio in July. for more info go to...
We took our three year old son to see a hand specialist this week and he has suggested doing surgery on both of his wrists that are contracted. He can not...
Hi Pam, Our 8 year old son has had surgery on one wrist, and surgery on the other wrist is scheduled for May. We have been very pleased with the outcome of the...
Our son is 3 and he has good grip with both hands, but the doctor is hopeful that he will gain even more function. Our biggest fear is loosing some of the...
It IS hard to tell what is the very best for our children sometimes! Perhaps you could get a second opinion and see if that helps your decision. I donąt know...
We probably talked to the same hand surgeon that Lori did since our kids both go to the same Shriners hospital. Background, Alec has almost zero grip and...
I haven't been on in quite sometime and have missed this group alot. My son TJ has AMC in his legs and arms. He is now 8 years old and I wonder where that time...
Hello everyone, I hope you all are doing well and that spring has come to your neck of the woods, wherever that may be. I'm writing in search of some...
We see Dr Song for my son's surgeries. My son has dual VEPTR implants along his spine. I know there are a few folks here who have had their children's hips...
beki@...
Apr 26, 2008 3:52 am
2741
Dylan is 9-years now and had his hip surgery (bilateral hip extension osteotomies) done by Dr. Jay at DuPont in Delaware. We moved to NJ from Illinois to be...
With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
thank you so much for putting such groups on the net,where we can share life and all other complications in it.i have a babygirl i gave birth to on the 15th of...
Prayers to you and your family Kelly. I also have a son who has AMC, he is 8 yrs. old. Have you been able to get much medical help for your daughter? It is...
thank you so much Sharon for writing to me.i have not managed to get enough help for the little girl so far.i have visited almost 13 doctors,all different ...
thank you so much Sharon for writing to me.i have not managed to get enough help for the little girl so far.i have visited almost 13 doctors,all different ...
Kelly- TJ was born with club feet, not able to bend at the knees or elbows, wrists are abducted-only able to come to neutral position, very low muscle mass in...
Sharon my daughter has had quite a few falls over the years. She also has a weight issue. She is 8 1/2 years old, 123 cm tall and weights 34 kilos ( ...
Good afternoon, everyone! The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive ...
Dimitra- It is so good to hear that your daughter is doing well. TJ actually took a fall at his first baseball game after I wrote that message and broke the...
Kelly- I'm sorry to hear that you are not able to afford to take your daughter to the doctor. The best thing that you can do for her is to help her stretch at...
