We are so happy to announce that we will be holding our 3rd Annual AMC Convention in Columbus, OH - Chaired by Tracey, Marybeth, & Michele in July of 2008. If...
We leave in the morning for St. Louis, where Leo will have surgery Tuesday, Sept. 4 at Shriners Hospital! He will be having his hand/wrist straightened and a...
Hello everybody! This is Dimitra from Greece, Melina's mother. As you might remember Melina had a second surgery on her left foot. Her doctor placed an...
I just wanted to let everyone know that the DVD, "A Day with Theresa" has been "FIXED" to play on a regular DVD player now thanks to the very kind man @ a...
Do you have a child (any age) or know someone with special needs? If so, consider joining our Special Needs Ministry or tell your friends who have a child with...
Veronica, I take it from your email that you are in the DFW area? If so, please write me back. We currently live in Georgia and I am planning to bring my...
Is there anyone in the Dallas, TX area that goes to Scottish Rite? I am bringing my daughter there for an evaluation for her feet and her left wrist. We...
Okay....you added a bit more to this post, such as you moving back there, so just ignore my previous post. ... From: yancey To: avenues2@yahoogroups.com Sent:...
I don't think this is the venue to be forwarding these types of things however well intentioned you might be. See: ...
MARK & MARY HEINEN
mmajch94@...
Oct 3, 2007 11:27 am
2695
I truly wish I could be of more help, but I know nothing of that hospital. At present I'm seeing a dr. in lubbock, texas. At the texas tech health science...
Final Salute: Artist brushed disability aside Final Salute Saturday, October 20, 2007 BY JOSE PAUL CORONA, Columbian Staff Writer Viola Marie Henne didn't...
Our 7 year old son with arthrogryposis recently had surgery to reposition his hand, and then a few weeks later to correct one of his clubfeet. He currently has...
Lori, Is Leo the little guy from Russia? I can not help you with our situation but please keep us posted with his situation. BTW, did he have his surgery at...
Lori, My son does what you are describing, but I'm not quite sure when it started. He had surgery when he was 10 months old. He has distal AMC. He is now...
For what it's worth, Alec has always been something of a flapper with his arms. For those of you who don't know Alec (Lori does), his right arm is has almost...
Hi, I'm Alexi. We just had our 3rd child, a little boy named Jude. He's wonderful! We learned that he had club feet, flexed wrists and a curvature in his lower...
My son knees were at -20 degrees hypro-extended at birth (bent back wards) we did casting on him from birth until he was 9 months old. He got to about + 58...
Good morning, My name is Ashandra and I'm new to the group. My goddaughter, Kya was born with Arthrogryposis, affecting her hands and feet. Kya has undergone...
Hello Alexi, I also have a son named Jude—I love that name. But my daughter Veronica is my child with arthrogryposis. We also learned of her clubbed feet ...
Welcome Alexi. Our daughter Juliet was born similar to Jude-scoliosis, bilateral club feet and flex wrists. She was serial casted on both feet at a month or so...
MARK & MARY HEINEN
mmajch94@...
Nov 1, 2007 9:01 pm
2707
Everyone, thank you so much for all of your encouragement, insight and experience!!! It has been so helpful to read what your different experiences have been....
I am just wondering...in your area does the Physical therapist not do the casting? My son's was done by the PT twice weekly they would use the soft casting and...
Hi Alexi, I have to say the balancing thing with the other children in the family is tough at first. Heck, any infant requires a ton of attention and can...
MARK & MARY HEINEN
mmajch94@...
Nov 4, 2007 2:39 am
2710
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc (a not for profit 501 (c) (3) organization http://www.amcsupport.org) When: July 17-20...
Hi everybody, Our daughter Naomi has just had her first birthday, and what a way we've come in that short year... from 5 weeks in the NICU, tube feedings,...
Bonnie loved her Mulholland stander. So did we. Saved my back. Tray was great. She watched way too much TV in it, but it sure made her legs strong! ... From:...
Hello Simcone family, Regarding the stander, I would advise you to try to demo one from the sales rep to see if it will work for your daughter, before you go...
