Dear Fellow AMCer's, I'm attending the Texas convention and I'm helping put together a teen workshop. Part of this workshop will include me making a book like...
Oh Betty! God bless you. I am so sorry for this sudden and painful loss. My heart goes out to you. I am sure Scott always felt your love, spoken or not. ...
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
The subject line about says it all... Our daughter (7 1/2 months) may need surgery to try to reduce her dislocated hips. Our doctor at Shriner's has indicated...
I need help from those that are now off of tubes or darn close to off of tubes. We just went to yet another feeding specialist doctor. He wants to do a fundo....
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
Hi my son was supposed to have the surgery done but our doctor in Dupont was opposed to it. He is doing so well that they are nervous it will set him back...
M71665@...
Jun 25, 2007 3:22 pm
2657
Veronica Barrett ... From: Veronica Barrett <veronicabarrett2004@...> To: terry2745@...; adults_with_arthrogryposis@yahoogroups.com;...
Butterfly in the Wind A child is a butterfly in the wind. Some can fly higher than others: but each one flies the best that it can. Why compare one against the...
Hey Theresa or any other adult with AMS, could you please pass on some info that will help me a bunch? I want to know how you deal with scratching your head...
Tucker says that if his head needs scratched at night he just leans up against his head board on his bed and does it that way. I try to keep the house at the...
... Thanks for the ideas Traci. Emma would have a really hard time reaching her headboard though, so I wonder if there is another way for that one. I know...
I had Tucker practice covering up during the day and then I told him I was only going to get up one time a night. (Honestly if he would of called I would of...
Bonnie, My AnaRose is 9 also - if I remeber correctly she is similarily affected as your Emma.? Ana pulls up her covers with her mouth - she can't sit up in...
We just returned from Shriners Hospital, where upper extremity surgery was recommended for our 7 year old son with arthrogryposis. Surgeries recommended...
Lori which shriners are you going to? Thank you We need to have a mindset of letting God use us to make somebody else's life better. When we do that, then...
Lori, AnaRose had a right elbow release 8 (!?) years ago. She has no active muscle from her breast bone to her fingers but is is able to passively bend to...
Hmmm . . . . Can you give me more info on Dr. VanHeest? I might at least contact her. This surgery stuff makes me nervous! A second opinion at least might be...
Lori, Dr. VanHeest contact info at Gillette Specialty Care is 651-229-3984 - I think that will get you her scheduling secretary. The number for Shriner's is...
I've had the pectorlias major to the bicep at age 4. I've written a greatly detailed post over on amcsupport.org If you wish to read it register on amcsupport...
My son, Aidan, sees Dr. VanHeest. He also had an elbow release and he had a tricep lengthening when he was 15 months old. His elbow bends to probably 120...
Traci, Which Shriner's is this number for? Thanks! Carla ... get you her scheduling secretary. The number for Shriner's is 612-596-6100. ... AOL.com....
Carla, This is the Twin Cities, MN one. It is in Minneapolis. Take care, Traci Hart-Thomas ... From: cklamb <cklamb@...> To: avenues2@yahoogroups.com ...
Hi Lori, My daughter Juliet (age 8) sees Dr. Van Heest for her arms/hands. She had an elbow release on her left elbow when she was about 2 yrs old. She also...
MARK & MARY HEINEN
mmajch94@...
Jul 20, 2007 4:05 am
2676
Hey Bonnie, sorry it took me a while to reply! I was in Texas at the 2nd annual AMC Convention!!! while laying down, im able to go on my side & have me arm...
There was something briefly mentioned to me by a therapist once, but I haven't spoken to Emma's doctor about this yet and wondered if any of you have heard of...
Bonnie..Bonnie...Bonnie.... Long time no hear! We were just up in Alabama so Masha could spend her 13th birthday with her best friend (who lives near...
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