Hi everyone, This is my first post on this board, wich I just began exploring a week or two ago. My wife and I have a beautiful 6 month old girl with...
2643
beki@...
beki_disher
May 4, 2007 11:46 pm
Hey there, My son has some of the same issues. When he was born, he had a jaw contracture to the point that you couldn't put the fingertip of your pinkie...
2644
Jay and Kim Yancey
yancey6596
May 5, 2007 2:52 am
Hey, I checked out your daughter’s blog—she is so cute. My daughter is 6 now—she had clubbed feet, hip contractures, dislocated hips, hands/wrists...
2645
pamipoo128
May 5, 2007 10:41 am
Hi, Our son (age 2) has also been diagnosed with a form of Freeman Sheldon and also does not have any of the facial characteristics. He has had a feeding tube...
2646
TERRY2745@...
terry2745
May 7, 2007 12:39 pm
Interested in purchasing an AMC awareness wristband? Go to _www.amcsupport.org_ (http://www.amcsupport.org/) there are hot pink or blue, kids or adult sizes...
2647
Betty Hicks
missbetty38
May 25, 2007 11:38 pm
I probably won’t be around much or I may lurch for awhile. On Monday night my boyfriend Scott died of a massive heart attack that came out of no where. He...
2648
Beverly Hanset-Burch
beverlyhanse...
May 26, 2007 12:06 am
Oh Betty I am so sorry! My prayers are with you during this difficult and unexpected time. Bev. ... From: "Betty Hicks" <missbetty37@...> To:...
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tracey_schalk
Jun 1, 2007 4:21 pm
Dear Fellow AMCer's, I'm attending the Texas convention and I'm helping put together a teen workshop. Part of this workshop will include me making a book like...
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Bonnie Foxall
peckhollow35670
Jun 5, 2007 4:27 am
Oh Betty! God bless you. I am so sorry for this sudden and painful loss. My heart goes out to you. I am sure Scott always felt your love, spoken or not. ...
2651
Jennifer
lilsweetie19...
Jun 7, 2007 9:47 am
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
2652
Ani
lalabonita
Jun 7, 2007 9:54 pm
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
2653
simcoet
Jun 14, 2007 1:25 pm
The subject line about says it all... Our daughter (7 1/2 months) may need surgery to try to reduce her dislocated hips. Our doctor at Shriner's has indicated...
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beverlyhansetburch
beverlyhanse...
Jun 20, 2007 4:35 pm
I need help from those that are now off of tubes or darn close to off of tubes. We just went to yet another feeding specialist doctor. He wants to do a fundo....
2655
Ani
lalabonita
Jun 23, 2007 4:05 pm
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
2656
M71665@...
Jun 25, 2007 3:22 pm
Hi my son was supposed to have the surgery done but our doctor in Dupont was opposed to it. He is doing so well that they are nervous it will set him back...
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Veronica Barrett
veronicabarr...
Jul 6, 2007 6:16 am
Veronica Barrett ... From: Veronica Barrett <veronicabarrett2004@...> To: terry2745@...; adults_with_arthrogryposis@yahoogroups.com;...
2658
Deb L
debbie_080954
Jul 9, 2007 11:56 pm
Butterfly in the Wind A child is a butterfly in the wind. Some can fly higher than others: but each one flies the best that it can. Why compare one against the...
2659
Bonnie Foxall
peckhollow35670
Jul 12, 2007 5:28 am
Hey Theresa or any other adult with AMS, could you please pass on some info that will help me a bunch? I want to know how you deal with scratching your head...
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TUCMUM@...
tracinag
Jul 12, 2007 5:50 am
Tucker says that if his head needs scratched at night he just leans up against his head board on his bed and does it that way. I try to keep the house at the...
2661
Bonnie Foxall
peckhollow35670
Jul 12, 2007 5:58 am
... Thanks for the ideas Traci. Emma would have a really hard time reaching her headboard though, so I wonder if there is another way for that one. I know...
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TUCMUM@...
tracinag
Jul 12, 2007 6:06 am
I had Tucker practice covering up during the day and then I told him I was only going to get up one time a night. (Honestly if he would of called I would of...
2663
TAHARTT@...
taharttaol
Jul 12, 2007 12:10 pm
Bonnie, My AnaRose is 9 also - if I remeber correctly she is similarily affected as your Emma.? Ana pulls up her covers with her mouth - she can't sit up in...
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Bonnie Foxall
peckhollow35670
Jul 13, 2007 4:47 am
... Thanks Traci...
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Lori Hays
hayslori
Jul 15, 2007 3:46 am
We just returned from Shriners Hospital, where upper extremity surgery was recommended for our 7 year old son with arthrogryposis. Surgeries recommended...
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Marie
MzPleasant1
Jul 15, 2007 6:50 pm
Lori which shriners are you going to? Thank you We need to have a mindset of letting God use us to make somebody else's life better. When we do that, then...
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Lori Hays
hayslori
Jul 17, 2007 6:45 pm
Shriners in St. Louis. ... [Non-text portions of this message have been removed]...
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TAHARTT@...
taharttaol
Jul 17, 2007 6:58 pm
Lori, AnaRose had a right elbow release 8 (!?) years ago. She has no active muscle from her breast bone to her fingers but is is able to passively bend to...
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Lori Hays
hayslori
Jul 17, 2007 7:01 pm
Hmmm . . . . Can you give me more info on Dr. VanHeest? I might at least contact her. This surgery stuff makes me nervous! A second opinion at least might be...
2670
TAHARTT@...
taharttaol
Jul 17, 2007 7:12 pm
Lori, Dr. VanHeest contact info at Gillette Specialty Care is 651-229-3984 - I think that will get you her scheduling secretary. The number for Shriner's is...
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tracey_schalk
Jul 17, 2007 10:00 pm
I've had the pectorlias major to the bicep at age 4. I've written a greatly detailed post over on amcsupport.org If you wish to read it register on amcsupport...
