Please Read! To Parents, Siblings, Friends, and Individuals with Disabilities: Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy Type II/III...
PLEASE help us out, this will be for the amcsupport Convention in Texas July 12-15th,2007 Feel free to add any questions/comments/suggestions that you Don't...
Hi everyone, This is my first post on this board, wich I just began exploring a week or two ago. My wife and I have a beautiful 6 month old girl with...
Hey there, My son has some of the same issues. When he was born, he had a jaw contracture to the point that you couldn't put the fingertip of your pinkie...
Hi, Our son (age 2) has also been diagnosed with a form of Freeman Sheldon and also does not have any of the facial characteristics. He has had a feeding tube...
Interested in purchasing an AMC awareness wristband? Go to _www.amcsupport.org_ (http://www.amcsupport.org/) there are hot pink or blue, kids or adult sizes...
I probably won’t be around much or I may lurch for awhile. On Monday night my boyfriend Scott died of a massive heart attack that came out of no where. He...
Dear Fellow AMCer's, I'm attending the Texas convention and I'm helping put together a teen workshop. Part of this workshop will include me making a book like...
Oh Betty! God bless you. I am so sorry for this sudden and painful loss. My heart goes out to you. I am sure Scott always felt your love, spoken or not. ...
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
The subject line about says it all... Our daughter (7 1/2 months) may need surgery to try to reduce her dislocated hips. Our doctor at Shriner's has indicated...
I need help from those that are now off of tubes or darn close to off of tubes. We just went to yet another feeding specialist doctor. He wants to do a fundo....
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
Hi my son was supposed to have the surgery done but our doctor in Dupont was opposed to it. He is doing so well that they are nervous it will set him back...
M71665@...
Jun 25, 2007 3:22 pm
2657
Veronica Barrett ... From: Veronica Barrett <veronicabarrett2004@...> To: terry2745@...; adults_with_arthrogryposis@yahoogroups.com;...
Butterfly in the Wind A child is a butterfly in the wind. Some can fly higher than others: but each one flies the best that it can. Why compare one against the...
Hey Theresa or any other adult with AMS, could you please pass on some info that will help me a bunch? I want to know how you deal with scratching your head...
Tucker says that if his head needs scratched at night he just leans up against his head board on his bed and does it that way. I try to keep the house at the...
... Thanks for the ideas Traci. Emma would have a really hard time reaching her headboard though, so I wonder if there is another way for that one. I know...
I had Tucker practice covering up during the day and then I told him I was only going to get up one time a night. (Honestly if he would of called I would of...
Bonnie, My AnaRose is 9 also - if I remeber correctly she is similarily affected as your Emma.? Ana pulls up her covers with her mouth - she can't sit up in...
We just returned from Shriners Hospital, where upper extremity surgery was recommended for our 7 year old son with arthrogryposis. Surgeries recommended...
Lori which shriners are you going to? Thank you We need to have a mindset of letting God use us to make somebody else's life better. When we do that, then...
Lori, AnaRose had a right elbow release 8 (!?) years ago. She has no active muscle from her breast bone to her fingers but is is able to passively bend to...
Hmmm . . . . Can you give me more info on Dr. VanHeest? I might at least contact her. This surgery stuff makes me nervous! A second opinion at least might be...
