... I'll tell you, I just check in now and again and there is always something to learn! Emma was born with a stiff neck when she was born. So it has a name...
Just wanted to let everyone know that we are on the last leg of the adoption of our son from Saratov, Russia, who has arthrogryposis! My husband picked him up...
DO YOU OWN A COPY OF ARTHROGRYPOSIS A TEXT ATLAS that you would like to donate?? by Lynn T. Staheli (Editor), Judith G. Hall (Editor), Kenneth M. Jaffe...
Dimitra, My daughter also has one foot that turns clubbed before the other--it is also on her stronger/more flexible side. I don't understand it either. As...
Hello, It has been a long time since I have posted! We adopted a little girl from Thailand with AMC. She is doing wonderful! She has been home for a year...
Carla, We inquire on this child a month ago and never heard back from the agency - I had assumed he had already been placed. How sad that he hasn't : ( His...
Melina, has put Illizarove again at her right elbow. The elbow was fixed straight with not much of passive motion and no mcuch of musles. Using Ilizarov to...
put again was not the right phrase. She has had Illizarov device once. And that was for her right elbow. ... [Non-text portions of this message have been...
Please Read! To Parents, Siblings, Friends, and Individuals with Disabilities: Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy Type II/III...
PLEASE help us out, this will be for the amcsupport Convention in Texas July 12-15th,2007 Feel free to add any questions/comments/suggestions that you Don't...
Hi everyone, This is my first post on this board, wich I just began exploring a week or two ago. My wife and I have a beautiful 6 month old girl with...
Hey there, My son has some of the same issues. When he was born, he had a jaw contracture to the point that you couldn't put the fingertip of your pinkie...
Hi, Our son (age 2) has also been diagnosed with a form of Freeman Sheldon and also does not have any of the facial characteristics. He has had a feeding tube...
Interested in purchasing an AMC awareness wristband? Go to _www.amcsupport.org_ (http://www.amcsupport.org/) there are hot pink or blue, kids or adult sizes...
I probably won’t be around much or I may lurch for awhile. On Monday night my boyfriend Scott died of a massive heart attack that came out of no where. He...
Dear Fellow AMCer's, I'm attending the Texas convention and I'm helping put together a teen workshop. Part of this workshop will include me making a book like...
Oh Betty! God bless you. I am so sorry for this sudden and painful loss. My heart goes out to you. I am sure Scott always felt your love, spoken or not. ...
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
The subject line about says it all... Our daughter (7 1/2 months) may need surgery to try to reduce her dislocated hips. Our doctor at Shriner's has indicated...
I need help from those that are now off of tubes or darn close to off of tubes. We just went to yet another feeding specialist doctor. He wants to do a fundo....
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
Hi my son was supposed to have the surgery done but our doctor in Dupont was opposed to it. He is doing so well that they are nervous it will set him back...
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Jun 25, 2007 3:22 pm
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Veronica Barrett ... From: Veronica Barrett <veronicabarrett2004@...> To: terry2745@...; adults_with_arthrogryposis@yahoogroups.com;...
Butterfly in the Wind A child is a butterfly in the wind. Some can fly higher than others: but each one flies the best that it can. Why compare one against the...
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