Hi again . . . here is the pressing question at the moment!

Holly (my 5 month old) was born affected in all four limbs.  Her left wrist
and hand are doing really well -- tight, but she moves everything.  On her
right hand, her wrist is really weak and keeps pulling the wrist back into
contracture.  Passively I can get the wrist to about 35% in back flexion,
but she can't hold it in neutral without my help.  When her hand is in
neutral, she moves all of her fingers, grips things, etc.  Her arm moves and
brings the hand up to her face, and she uses the left hand to get her right
thumb into her mouth (it's pretty darn cute).

So, does anyone have any suggestions on how to help her strengthen her right
wrist?  We wear wrist cock splints at night that holds the hand in slight
back flexion.  During the day, I stretch it as often as possible and help
encourage her to reach for things.  She never ignores the right hand -- in
fact most times she reaches with it first, then the left hand moves in and
completes the task.

Thanks for any suggestions!
Amy

_________________________________________________________________
Join the world’s largest e-mail service with MSN Hotmail.
http://www.hotmail.com

In a message dated 5/15/02 9:45:40 AM Pacific Daylight Time,
sdozark@... writes:

<< As i posted in the
  other one,  before everyone went away, Clinic at Seattle Childrens is
  July 31, there is a great beach/picnic area about 2 miles down
  Sandpoint Way. It would be nice for anyone that can to get together
  for more than the hour lunch at the hospital. We live in Alaska so
  some of the other areas are too far for us at this time.  >>


sounds like fun, from here in Tacoma! We don't use Seattle Children's, so we
wouldn't be at a luncheon. I'm sure Reli would LOVE to see some other kids
with arthrogryposis! It would be best for us, though, if this could be on a
weekend.

Dawn

--- In avenues2@y..., "Amy Smith" <amyssp@h...> wrote:
> Any questions that you have, just keep on asking and one of us will
know which way to direct you.
Sandie and Teja
>
> I was just wondering where everyone is . . . I'm not getting many
messages
> from anyone on either Avenues list (except for unsubscribe
commands).  I
> really enjoy hearing how everyone is doing, and everyone's advice
has been
> invaluable in preparing me to care for Holly.  You have given me
questions
> to ask doctors, PT and OT ideas, places to find equipment, etc.
etc. etc.
> I'd hate to see some horrid virus senders corrupt the community
we've
> created -- Avenues2 was a super idea that doesn't allow for
attachments, but
> I don't see many people there either.
>
> Anyway, if you haven't unsubscribed, I want to say thanks for
everything so
> far.  Holly is 5 months today and doing well.  We are so lucky to
have her
> as a part of our family.  Hope to see more posts soon!
>
> Amy
> Alex and Zach (3 1/2 year old identical twins -- somewhat onery!)
and Holly
> (5 months, AMC)
>
> _________________________________________________________________
> Join the world's largest e-mail service with MSN Hotmail.
> http://www.hotmail.com

--- In avenues2@y..., "Amy Smith" <amyssp@h...> wrote:
> Hello there, We like to keep in touch with all that goes on, so
here we are. I was hearing alot of talk about picnics and
gettogethers over the summer that I wondered what the interest would
be in the Washington area at the end of July. As i posted in the
other one,  before everyone went away, Clinic at Seattle Childrens is
July 31, there is a great beach/picnic area about 2 miles down
Sandpoint Way. It would be nice for anyone that can to get together
for more than the hour lunch at the hospital. We live in Alaska so
some of the other areas are too far for us at this time.

Teja just got approved for her new electric wheelchair!!! Yeah. She
is almost 6 years old and has had her action Tiger chair since she
was 18 months. She has way outgrown it and has used and abused it!!
We can't wait.

Take care
Sandie and Teja
>
> I was just wondering where everyone is . . . I'm not getting many
messages
> from anyone on either Avenues list (except for unsubscribe
commands).  I
> really enjoy hearing how everyone is doing, and everyone's advice
has been
> invaluable in preparing me to care for Holly.  You have given me
questions
> to ask doctors, PT and OT ideas, places to find equipment, etc.
etc. etc.
> I'd hate to see some horrid virus senders corrupt the community
we've
> created -- Avenues2 was a super idea that doesn't allow for
attachments, but
> I don't see many people there either.
>
> Anyway, if you haven't unsubscribed, I want to say thanks for
everything so
> far.  Holly is 5 months today and doing well.  We are so lucky to
have her
> as a part of our family.  Hope to see more posts soon!
>
> Amy
> Alex and Zach (3 1/2 year old identical twins -- somewhat onery!)
and Holly
> (5 months, AMC)
>
> _________________________________________________________________
> Join the world's largest e-mail service with MSN Hotmail.
> http://www.hotmail.com

Amy, That is such a fun time of a babys life..man you must have your hands
full with 3 1/2 year old twins and a baby!!! I have a 10 year old and tucker
who just turned 4 a few months ago...he has amc. That is enough to keep me
busy and running from sun up to sun down. Sometimes i log on here and have
about 50 emails just from me not being able to get on line for a couple of
days.
well have a great day. traci

I was just wondering where everyone is . . . I'm not getting many messages
from anyone on either Avenues list (except for unsubscribe commands).  I
really enjoy hearing how everyone is doing, and everyone's advice has been
invaluable in preparing me to care for Holly.  You have given me questions
to ask doctors, PT and OT ideas, places to find equipment, etc. etc. etc.
I'd hate to see some horrid virus senders corrupt the community we've
created -- Avenues2 was a super idea that doesn't allow for attachments, but
I don't see many people there either.

Anyway, if you haven't unsubscribed, I want to say thanks for everything so
far.  Holly is 5 months today and doing well.  We are so lucky to have her
as a part of our family.  Hope to see more posts soon!

Amy
Alex and Zach (3 1/2 year old identical twins -- somewhat onery!) and Holly
(5 months, AMC)

_________________________________________________________________
Join the world’s largest e-mail service with MSN Hotmail.
http://www.hotmail.com

I wish you good luck...My daughter's having surgery too on Thursday on
her knee...Let me know how it goes


Lisa R

Just wanted to let you guys know that my daughter Erica will be having
surgery done on her left knee on Thursday to straighten it out.  I'm
not exactly sure what they'll be doing but her knee is bent now and
it's stuck there so I'm guessing it'll be some sort of release.  I'll
let you know what happens, we should be home Sunday night if all goes
well.


Lisa R

Good luck!!
Jaime, Darrin, Dylan and Casey Brown
jddncb@...
Check out Dylan's Web-Page at http://communities.msn.com/JDnD
Check out Casey's Web-Page at http://communities.msn.com/JDnC


[Non-text portions of this message have been removed]

Well, just wanted to let all of you know that Masha will have her second
surgery this Tuesday to have the rods removed from her legs.

I will let all of you know how she is doing after we get home, which should
be Wednesday night.

Lori

--- In avenues2@y..., David & Bonnie <daveandbon@e...> wrote:
> Sorry Dan........   Just realized I called you Dingo.   That is a
> cute name though.  :)

That's ok, people mess up that name often. I always have people
saying "a dango ate my baby" or they just assume that I live in
Australia.
Anyway, thanks for joining the list, hopefully this list will grow
and have a lot of action.

=====
Dan

http://www.dango727.com
AOL IM - Dango727
Yahoo! - dango727
ICQ - 145748455

Sorry Dan........   Just realized I called you Dingo.   That is a cute
name though.  :)

Bonnie

Thanks for doing this dingo!  I feel better.

Bonnie (Ellen 12, Peter 10, and Emma 4 amc)

Inadvertantly, of course.

Well, this is me moonlighting.  I do this for a living during the
day, so I'm providing what I've found to those on the list.  If you
subscribe to any of the lists below, you might want to find a good
virus scan program, like AVG (Freeware), McAfee, or Norton and scan
all files.

From majordomo@...

   bgcouncil               Bright's Grove Public School Council
   faslink                 FASlink Members
   faslink-digest          FASlink Members
   liberal                 Sarnia-Lambton Liberal Discussion Forum
   schoolcouncil           School Councils Lambton Kent District
                             School


Morkeleb

At 05:47 PM 5/8/02, you wrote:
> This list shouldn't have any problems and won't really need moderat-
> ion, but I did appoint Carly to assist. So if there's any problems
> or suggestions, just ask Carly or myself and we'll do whatever we
> can.

Cool, thanks. :o)  I agree that we don't need moderation, but it will
be nice to have a couple people around who can help when, say... some-
one can't figure out how to unsubscribe, etc. etc.

Carly


[Non-text portions of this message have been removed]

Hi All,

I was lucky I only had 136 emails today.  Not to be mean, but I think
Diane was just neglicting the list all together, because I have not
seen a post from her yet since I rejoined Avenues.

So if you have room for me I would love to join this group.

Talk to you all later,

Betty

Thanks to everyone posting the majordomo addresses. We shouldn't have
any problems with those since the attachments feature is turned off
on this list. As someone mentioned before, the majordomo posts were
from people who had viruses and then it spread throughout their
address books and became an endless loop.
Hopefully Diane can get her list straightened out, but people have
been complaining for a long time about attachments on that list, so I
don't understand why she never did anything.
This list shouldn't have any problems and won't really need
moderation, but I did appoint Carly to assist. So if there's any
problems or suggestions, just ask Carly or myself and we'll do
whatever we can.

Thanks,

=====
Dan

http://www.dango727.com
AOL IM - Dango727
Yahoo! - dango727
ICQ - 145748455

their . . . oops . . .hate it when I don't proofread! : )


>From: "Amy Smith" <amyssp@...>
>Reply-To: avenues2@yahoogroups.com
>To: avenues2@yahoogroups.com
>Subject: Re: [avenues2] Hello
>Date: Wed, 08 May 2002 15:10:34 -0500
>
>Don't know what happened to make me the lucky majordomo recipient! : )  It
>was my last straw as well -- besides I saw quite a few people who I really
>enjoy reading thier posts leaving the list because of virus problems.
>
>
>
>
> >From: RLISFOLKS@...
> >Reply-To: avenues2@yahoogroups.com
> >To: avenues2@yahoogroups.com
> >Subject: Re: [avenues2] Hello
> >Date: Wed, 8 May 2002 15:50:01 EDT
> >
> >In a message dated 5/8/02 12:46:33 PM Pacific Daylight Time,
> >elm311@... writes:
> >
> ><< I KNOW what you mean.  I'm still a bit too nervous to shut down the
> >other
> >Avenues yet, but I hope that more come here soon! >>
> >
> >
> >I think some will...and some won't. I hate losing those folks, but I'm
> >tired
> >of viruses and majordomo <g>. Hopefully, as most folks check their email,
> >they'll shift over. I took the plunge and unsubscribed last night. I got
> >lucky, though, it seems. I only had about 150 majordomo messages,
> >thankfully
> >*not* 534!
> >
> >Dawn
>
>
>
>
>_________________________________________________________________
>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.
>




_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

Don't know what happened to make me the lucky majordomo recipient! : )  It
was my last straw as well -- besides I saw quite a few people who I really
enjoy reading thier posts leaving the list because of virus problems.




>From: RLISFOLKS@...
>Reply-To: avenues2@yahoogroups.com
>To: avenues2@yahoogroups.com
>Subject: Re: [avenues2] Hello
>Date: Wed, 8 May 2002 15:50:01 EDT
>
>In a message dated 5/8/02 12:46:33 PM Pacific Daylight Time,
>elm311@... writes:
>
><< I KNOW what you mean.  I'm still a bit too nervous to shut down the
>other
>Avenues yet, but I hope that more come here soon! >>
>
>
>I think some will...and some won't. I hate losing those folks, but I'm
>tired
>of viruses and majordomo <g>. Hopefully, as most folks check their email,
>they'll shift over. I took the plunge and unsubscribed last night. I got
>lucky, though, it seems. I only had about 150 majordomo messages,
>thankfully
>*not* 534!
>
>Dawn




_________________________________________________________________
Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

I, too, only had about 150 messages this morning.




[Non-text portions of this message have been removed]

In a message dated 5/8/02 12:46:33 PM Pacific Daylight Time,
elm311@... writes:

<< I KNOW what you mean.  I'm still a bit too nervous to shut down the other
Avenues yet, but I hope that more come here soon! >>


I think some will...and some won't. I hate losing those folks, but I'm tired
of viruses and majordomo <g>. Hopefully, as most folks check their email,
they'll shift over. I took the plunge and unsubscribed last night. I got
lucky, though, it seems. I only had about 150 majordomo messages, thankfully
*not* 534!

Dawn

Glad to see you here!!!

I KNOW what you mean.  I'm still a bit too nervous to shut down the other
Avenues yet, but I hope that more come here soon!

Lori



[Non-text portions of this message have been removed]

In a message dated 5/8/02 2:23:33 AM Pacific Daylight Time,
elm311@... writes:

<< Is everyone here?  (I know that you're not, yet, but let's see who is) >>

I'm here! All those emails from Majordomo were my last straw, LOL.

Dawn

We sent our e-mail out at the same time. Therefore I couldn't add the second
adress of majordomo as well. Though, here the second one I found:

Majordomo@...

I hope this helps. All the other stuff in the recycle bin has already been
deleted.
Claudia

-----Ursprungliche Nachricht-----
Von: HelloKit [mailto:hellokit@...]
Gesendet: Mittwoch, 8. Mai 2002 15:47
An: avenues2@yahoogroups.com
Betreff: [avenues2] Re: Well, let's open it up.


> I can prevent that server from joining, but unfortunately I do not
> have it's e-mail address.

This time it was majordomo@... - last time it was
something different though... I don't have it anymore.  I have a
feeling the reason these majordomos keep getting subscribed is some-
how related to the virus that is going around.  All it takes is for
an infected computer to send the virus to the avenues-subscribe ad-
dress with the majordomo as the return address, and the majordomo
would be automatically subscribed.  So as it continues you may have
to keep adding more addresses to the ban list, but at least we finally
have someone around to do that!  If you would like any help with main-
taining this new list, I would be happy to be a second moderator.

Carly



To unsubscribe from this group, send an email to:
avenues2-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/

Hi Dan

Here it is: majordomo@...

Claudia

-----Ursprungliche Nachricht-----
Von: Dan [mailto:dan@...]
Gesendet: Mittwoch, 8. Mai 2002 12:58
An: avenues2@yahoogroups.com
Betreff: Re: [avenues2] Well, let's open it up.


--- dragonmageus <dragonmageus@...> wrote:
> Good to see it virus free, but how are you going to
> prevent the majordomo server from getting in here?

I can prevent that server from joining, but
unfortunately I do not have it's e-mail address. If
someone can give me the complete address (all I have
is majordomo@l) then I will set this list so that it
can't join.

=====
Dan

http://www.dango727.com
AOL IM - Dango727
Yahoo! - dango727
ICQ - 145748455

__________________________________________________
Do You Yahoo!?
Yahoo! Health - your guide to health and wellness
http://health.yahoo.com


To unsubscribe from this group, send an email to:
avenues2-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/

> I can prevent that server from joining, but unfortunately I do not
> have it's e-mail address.

This time it was majordomo@... - last time it was
something different though... I don't have it anymore.  I have a
feeling the reason these majordomos keep getting subscribed is some-
how related to the virus that is going around.  All it takes is for
an infected computer to send the virus to the avenues-subscribe ad-
dress with the majordomo as the return address, and the majordomo
would be automatically subscribed.  So as it continues you may have
to keep adding more addresses to the ban list, but at least we finally
have someone around to do that!  If you would like any help with main-
taining this new list, I would be happy to be a second moderator.

Carly

Sorry . . . I should have saved it from ONE of the 534 e-mails I got from
majordomo last night . . . instead I unsubscribed and resubscribed here . .
. thanks for taking the time to set this up -- I appreciate it.
: ) Amy


>From: Dan <dan@...>
>Reply-To: avenues2@yahoogroups.com
>To: avenues2@yahoogroups.com
>Subject: Re: [avenues2] Well, let's open it up.
>Date: Wed, 8 May 2002 03:57:51 -0700 (PDT)
>
>--- dragonmageus <dragonmageus@...> wrote:
> > Good to see it virus free, but how are you going to
> > prevent the majordomo server from getting in here?
>
>I can prevent that server from joining, but
>unfortunately I do not have it's e-mail address. If
>someone can give me the complete address (all I have
>is majordomo@l) then I will set this list so that it
>can't join.
>
>=====
>Dan
>
>http://www.dango727.com
>AOL IM - Dango727
>Yahoo! - dango727
>ICQ - 145748455
>
>__________________________________________________
>Do You Yahoo!?
>Yahoo! Health - your guide to health and wellness
>http://health.yahoo.com




_________________________________________________________________
Send and receive Hotmail on your mobile device: http://mobile.msn.com

--- dragonmageus <dragonmageus@...> wrote:
> Good to see it virus free, but how are you going to
> prevent the majordomo server from getting in here?

I can prevent that server from joining, but
unfortunately I do not have it's e-mail address. If
someone can give me the complete address (all I have
is majordomo@l) then I will set this list so that it
can't join.

=====
Dan

http://www.dango727.com
AOL IM - Dango727
Yahoo! - dango727
ICQ - 145748455

__________________________________________________
Do You Yahoo!?
Yahoo! Health - your guide to health and wellness
http://health.yahoo.com

Is everyone here?  (I know that you're not, yet, but let's see who is).

Lori


[Non-text portions of this message have been removed]

Good to see it virus free, but how are you going to prevent the
majordomo server from getting in here?  I'm just a spouse of a
member, btw.

Morkeleb