Hello Everyone: Over the last few months we have been receiving a number of request to start back up again the support group meetings. So, in the next few...
http://www.ardice.com/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Congenital_Anomalies/Arthrogryposis/ Hello, I found this group at this website....
Hello Everyone: Our web site is back up again and has moved to a new location: http://www.geocities.com/cpjohns964/AMC.html We have gotten a number of emails...
We were told to do this surgery also but decided against it. Our 4yr old son is doing wonderfully without and after posting an email to the group, it seemed...
M71665@...
Mar 6, 2005 11:19 pm
1797
Just a couple of links that folks may or may not be interested in. Beki http://www.npr.org/templates/story/story.php?storyId=4520398 ...
My son had clubfoot surgery done also at 9 months old. I wont hide fact and tell you it was a piece of cake although some ppl told me it would be. My baby...
M71665@...
Mar 15, 2005 12:18 am
1800
Hi all. I am hoping some of you here can share some advice on this one. TJ went to see his upper extremity orthopedic for a checkup on Friday. He had done a...
There is one other thing I have been meaning to ask you all. TJ was completely potty trained before his surgery this past summer. After that surgery he just...
Sharon, Dylan had hip extension osteotomies when he was 3, but since they were on his legs I have nothing to offer unless you can think of something specific...
Sharon, My "typical" (non-AMC) daughter went through periods like this. I would take her to the doctor thinking she had a bladder infection because of all the...
After a few outburst at PT my daughter now has "behavioral problems"! Okay, she is a 4 yr old and does get upset but isn't that all part of the control thing...
Sharon, Juliet (age 5 ½) is having this procedure on March 30th. She also had an elbow release a couple years back but not the muscle transfer. Anyhow,...
mmheinen
mmheinen@...
Mar 15, 2005 3:48 pm
1806
K.- I'm wondering how experienced this therapist is. How long has he/she been treating kids? The best therapists we have had have been practicing for years and...
Thanks Jaime and Laila for the input. I like the timer idea because we get so caught up in what we're doing some days that I forget to remind him and when I do...
Mary- Thanks for sharing. I think I'm just a bit overwhelmed with the thought of doing surgery #3 within the year. I think this procedure might very well ...
That is exactly what is happening. Her work is getting harder now that she can walk and stand. Lora does have a temper and she's stubborn but to be told she...
Hello all, Been part of this list in the past but left because of getting many unwanted emails (not personally from anyone, just the general porn/junk stuff...
I started developing GI issues as an adult. I wonder if this is common among AMC's. Denise Dogs are not our whole life, But they make our lives whole. ...
My son has very severe GI issues. His reflux is believed to be caused by his body position. He is allergic to his reflux so he refluxes more as a result of...
Hi Lindsey, My son also has distal AMC and for the past few months I've been trying different things to figure out my son's diarrhea. His seems to be ...
Hello My 14 month old daughter is teething and wont eat,drink, and when she does cant keep it down, My mother said she has never seen a child teeth so hard and...
Hi Sharon, I wonder how is TJ doing with the tricep to bicep muscle transfer, could you tell me on what arm was it done? how was this desicion made U(the arm...
Carla- TJ has very low muscle mass in his upper arms, especially where the bicep should be. We chose to do the left arm because he used that hand more and has ...
Kim- Your reply reminded me of something I learned from one of TJ's therapists. From a very young age- 11/2 or 2- she would tell TJ to "use his words" whenever...
Hi Lindsey, Your daughter's symptoms sound similar to those of celiac disease, which I have. It may be worth having tests done for celiac disease -- which is...
Tamra Garner
tapioca@...
Mar 19, 2005 3:30 am
1819
We've actually had her tested for celiac using two different tests. One came back "equivocal" which means neither positive or negative result. The other test...
Hi Lindsey, I have never heard that the tests are more accurate after age 3...? I do know that the only test that can completely rule out celiac disease is...
Tamra Garner
tapioca@...
Mar 20, 2005 12:53 am
1821
I found this url surfing, http://blogs.ardice.com But can someone explain to me what a blog is? - Lanza94s...
In a message dated 3/21/2005 1:35:14 PM Eastern Standard Time, ... A blog is an online journal where you write things and others can read it if you choose and...
