Good evening. My daughter is two months old, but based on her due date she would only be two weeks old. She has AMC, and they are saying she _might_ need a...
Good evening. My daughter is two months old, but based on her due date she would only be two weeks old. She has AMC, and they are saying she _might_ need a...
hi bev, i'm kim i'm afraid i can not help you with this question but i do know there lots of wonderful ppl in the group who can and will help you with this. ...
Hello My name is Leah Johnson and my 2 month old daughter, Petra, has AMC. I am interested in learning as much as possible about said disorder and how to best...
Hello Leah -- I remember how I felt when my daughter was 2 months old -- no one seemed to know much about AMC (including myself). I've found support through...
WELCOME LEAH! my name is Theresa, im 38 years old with amc, if you have ANY questions, feel free 2 ask, :) ~Theresa www.hometown.aol.com/terry2745/index.html ...
I went to the dr yesterday, & got such great news, he did tests on my fingers and i felt all of it!! even my pinky, now its not back 100% yet, but i now know...
... Could you explain what this means, "opportunity to purchase coverage under the Medicaid program for such children"? Does this mean for members of the...
Hello everyone. My daughter, Callie (now 8.5 months old), is facing her first surgery--vertical talus--within the next few months and I was wondering if any...
Julie, My son Elijah who is 22 months just had the surgery to repair his Vertical Talus on June 3rd.. It went wonderfully it was done by Dr. kit Song and Dr...
Hi Julie, My son had his vertical talus fixed about a year ago, when he was 10mos. Drs. Song and Mosca did it at Children's Hospital. It was a fairly...
Laila - Hi, I don't respond a lot, but I read most of the postings and your recent response to Julie's questions about the vertical talus sparked a question of...
Hi Dawn, Henry wore his AFO 24/7 for about 4 months after his cast came off. At our next visit we were told that the AFO wasn't really doing anything for him...
Hello Laila, You mentioned that your son also had hip surgery at the same time as the vertical talus operation--may I ask if his hips were dislocated? Callie's...
Hi all! I have been so busy lately I just realized I should have posted a while ago. TJ, my son who is 4 now, had surgery on 6/4 to lengthen the tendon at the...
Petra's hands are permenantly clenched into fists, and we're having a hard time keeping them clean. The sweat and dead skin kinda build up in the palms, and it...
We would get old lady hair rollers that have the brushes in the middle.. take the brush out, and voila! instant finger brace with air. I think we still have...
In a message dated 6/28/2004 09:52:45 Central Daylight Time, beki@... writes: We would get old lady hair rollers that have the brushes in the middle ...
Hi Leah. I know what you mean about the smell--my 6 year old says Callie smells like "cheese".;-) As for helping the smell, daily rinsing and washing with a...
Hi Everyone The last two morning on the Today show, they have been discussing genetic testing... Here is the article. ... Do you Yahoo!? Yahoo! Mail Address...
Hi Everyone Some how I over looked in including the link. Sorry everyone. I am having a bad day. Here it is... http://www.msnbc.msn.com/id/5318863/ ... Do...
Great News Theresa! Keep up the good work. Amazing what faith can do, isn't it? God Bless- Sharon [Non-text portions of this message have been removed]...
I cross posted this so you may get multiple copies Study At TSRI Links Dozens Of Proteins To Several Rare Muscle And Nerve Degeneration Diseases La Jolla, CA....
This is not a real message. My email to the list keeps bouncing, so I am checking ot see if its working again. If you sent something you wanted me to comment...
Hi Gang, We are going to start looking to buy a wheelchair van with an automatic ramp or lift this summer. Thought I would check in here first and see if...
mmheinen
mmheinen@...
Jul 3, 2004 1:37 pm
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I just saw a van from VMI. I almost choked on the cost. 1-800-VANS _www.vantagemobility.com_ (http://www.vantagemobility.com) . You might look into a ...
Leah, My son went through the same thing and he even began to develop yeast infections in his hands. One thing the doctor had us do was to put anti fungal...
Hi!! I know that I have seen posts here and there from Arizona Residents. We are moving to Arizona in the next few months from California and I am trying to ...
Hi I Live In Arizona And I Wish I Had A Magic Wand That Would Allow Me To Switch Places With You. Why Would You Want To Move If You Are Happy With Services In...
