Hi we have been a member for a while now just havent been online. We enjoy the site greatly as it helps with our 4 1/2 year old who has arthrogryposis his...
How about a pad made from foam rubber, covered with cloth and attached by Velcro straps above and below the knee? Maybe a slot made by over lapping the clothe...
JRTowner@...
Jan 2, 2004 4:15 pm
1205
Click here: Convert-O Bike Whirl-O wheel I was contacted through another list by a person whose child is disabled. She wanted to know if anyone has ever used...
JRTowner@...
Jan 4, 2004 11:17 pm
1207
Welcome to the group. You might like to join a couple of other yahoo groups like amc_adults@yahoogroups.com and Adults_With_Arthrogryposis@yahoogroups.com My...
JRTowner@...
Jan 5, 2004 3:09 pm
1209
I do and always plan to- tell TJ that he is just the way God made him. He is 3 1/2 and he just started noticing how his feet look different from ours. (He has...
I think you need to be careful explaining things to kids. I decided not to tell Juliet that this is how God made her because I don't believe God chooses to...
mmheinen
mmheinen@...
Jan 6, 2004 4:53 am
1211
Hi Elizabeth, I live in Minnesota too (Maple Grove) and have a preschool daughter with arthrogryposis. She is seen at Shriners and Gillette. Welcome to the ...
mmheinen
mmheinen@...
Jan 6, 2004 5:01 am
1212
Blaming is a very strong word. There are things we could "blame" God for every day if we want to. We could blame God for every thing that goes wrong in our ...
My sentiments exactly! Last summer, I was with my daughter on her first day of summer school and we were standing in line talking with another older student....
Sharon, I never meant to imply that you blamed god. My point was that a small child can sometimes read things into meanings that you don't intend to be there....
mmheinen
mmheinen@...
Jan 6, 2004 5:30 pm
1215
... first day ... older ... said, "nothing, it is the way ... else. She ... truly blessed ... thank you all, I guess the blame is a strong word and i do have ...
I feel we all need to remember that our attitude toward our childs situation is one of the MOST important things we give our children. Regardless of what we...
I heard from the insurance company today and our appeal for Juliet's power chair was approved. A big thank you to all who gave me advice on the appeal! Mary ...
mmheinen
mmheinen@...
Jan 8, 2004 1:26 am
1219
Congratulations!! I know the overwhelming sense of relief and joy it brings. ~Sharon [Non-text portions of this message have been removed]...
I wrote awhile ago about my daughter possibly getting Taylor Spatial Frames to help correct her recurrent club feet. Someone responded and said her son had...
I wrote awhile ago about my daughter possibly getting Taylor Spatial Frames to help correct her recurrent club feet. Someone responded and said her son had...
Hi everybody!! Celeste had her bilateral vertical talus release surgery on Thursday and she is doing great. We came home today - It feels so good to be home...
Deena Landreneau
drlandreneau@...
Jan 11, 2004 11:20 pm
1223
Hi everyone I'm new to the group and was in search of some highly recommended doctors regarding a doctor who specializes in the ankle/feet extremitiy my...
well, i went to the DR today, he took out all 20 staples out, ewwwwww actually, it wasn't as bad as i thought it was gonna be. he showed me the xray, wow i ...
Teresa, I'm glad to hear that you are doing well. I will continue to pray for you. One day at a time and everything will heal. I know how determined you are ...
Deena Landreneau
drlandreneau@...
Jan 12, 2004 9:01 pm
1226
Jason is being closed up in the OR and is about ready to head for ICU. His doc came out and showed us the before and after xrays. He has gone from a 110-115...
I am so happy to hear that Jason came through the surgery okay and am absolutely amazed at how good of a correction they got. We just saw Dr. Song on December...
Has anyone ever had hip surgery involving the doctor putting a plate (or something of that nature) in to hold your hip permanently in a sitting position? Also...
Hi Beki, We live in Bellingham and I remember meeting you once at clinic in Seattle. I am glad to hear of Jason's recovery starting now. Dr. Song operated on...
Hi Lisa, My son had his hip "put back" at 4mos. They did not fix it in a sitting position, but they did do the derotational osteotomy. My understanding is...
Thanks :) Dr Song is doing his usual... He did two titanium ribs that day and he found out afterwards that be broke his shoulder.. Silly doctor :) Jason is out...
Yeah I figure I'll need a week long training course on how to change a diaper! :) Lisa R ... it in a sitting position, but they did do the derotational...
Hey everyone, It's me again. Jason came home Sunday. He is doing great. I am amazed at how much correction they got on Jason's back. He went from 115-120...
Beki: Welcome home. It is so encouraging to hear that he did so well. How old is Jason again? I tried to see the pictures but I got an error page, any ...
I know there was some talk that Seattle wasn't going to have there clinics any more but today I got a letter in the mail stating the dates and the list of ...
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