Hi all, I sort of hate to say "welcome to the group" as it means you now struggle w/ AMC in some form. However, as Naomi said, God is in control and even...
H Sandi, Thank you so much for your reply. You know I was thinking that Alyse's diagnosis has never really been narrowed down to whether is is distal...
Sandi, Thanks for your posting. She is now one month and has distal arthrogryposis affecting the hands and feet in a similar manner as to that of your...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the arthrogryposissupportgroup group. File...
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Mar 2, 2004 9:29 pm
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Hi, not sure who wrote this, but I was wondering about the casting they did on your daughter at six weeks, the dr my dauther saw said they did not do casting...
Hi Everyone I am cross posting this info to all the groups I belong to. I feel this is valuable to a disabled student who is striving for success. Yes, I...
Hi there, I didn't post this but I thought I'd offer what we have been thru with our baby girl. She just turned 10 months old a few days ago. At birth, they...
Naomi, I have a 4 yr old daughter with amyoplasia type amc. Her first set of casting for her club feet was done when she was only five days old, before she...
Our grandbaby has had splints since she was born in Oct. It is interesting reading that the Shriners Dr. does not believe in this so soon. Her legs seem to...
hello dont give up hope velma on your grandbaby never crawling thats what they told me abt my son he is now five years old and at the age of four he had just...
I nderstand why the Drs. want to do a muscle biopsy. It is to check the structure of the muscle. But I've read several of your messages that said it was a...
How amazing! Have you written a story about what you've been through and where you're at now? I'd love to hear it. ... Do you Yahoo!? Yahoo! Search - Find...
They did this to Julia when she was only a week old! Its AWFUL! The scar is so large and her muscle is very very tight around it! It makes me pretty sick to...
I just wanted to say hello to everyone out there. This site has been full of information for me. I have a beautiful baby boy that is 5 months old with AMC....
You could be writing about my daughter Bekah. Bekah is 6yr. now g-tube feed and is unable to swallow, her tube was placed at 7-10 days in the NICU. She has a...
Welcome to the group. The best advise I can give is to ask lots of questions and do lots of research. I don't have to tell you to give you sweet one loads of...
Hi there and welcome, You are in the right place.. The first thing that I want to say is a hard one for new parents.. that is to quit worrying and enjoy your...
hello everyone and thank you for such wonderful welcome. to be honest i felt lonely and strange considering the fact that this condition is so rare and it...
Hi, My baby had a muscle biopsy done at 2 days old. I wish I had known at the time that it was unnecessary. I hated to put her through the sedation,...
I have posted before, but now it seems I need the most support. My daughter is 5 weeks old with AMC. I also have AMC - both of our cases are mild affecting...
Denise, Oh my gosh!! wow I am so sorry for her loss first of all ..she is missing out completely.. one minute in a room with your daughter and her mind would...
Denise, I also wanted to say maybe you could send her a card with a picture of your family ..(when you are ready too) and tell her this is our beautiful family...
Friends, Everything I say or feel comes from my belief that there is one God, that He created everything, that He sent His Son to die on the the cross for us...
I am in your place. My bio. mom and her guy came to see Bekah 1 time and I didn't hear from them again for 3 years. I sent cards all returned unopened,...
Danise, there is an old expression in the Bible: "If you are ashamed of me, then I am ashamed of you before my Father." -- Jesus Christ. The point please pray...
hello Denise as awful as it may sound i want to say leave her out if she wants to be out. she is the one who will miss out. one would have thought she would be...
Dear Denise, I am the maternal grandmother to our beautiful granddaughter. I personally feel that your mother-in-law will come around after a while. She...
I had a similar problem with my fatherinlaw when our son was born he didnt come near joey wouldn't hold him ,he would just keep his distance.But i think at...
