... Being an x-ray technologist has definitely been a plus in this situation. It makes it easier for the ortho to discuss what is happening. Leah's grandma(the...
hi I posted not long ago about our new baby girl condition, she is 9 days old now, I wanted to get more information about the therapy and the splints, how do...
Hi I just wanted to let everyone know that i have been with out a puter for about 3 weeks now and am not sure when I will be getting a new one. For now I...
Hi, I am pregnant and in my last three pregnacies my babies had arthrogryposis and past away at birth. Now I am pregnant again and need some advice. Is there...
Hi Sandy, I am sorry, I have never heard of anyone in your position before. I promise that I will add you to our church prayer list. I know how hard it is to...
I do apologize for your losses. I had 1 miscarriage, and that was devastating. Also have you asked your self, are you ready for a child with AMC? It is very...
Hi Sandy, I'm so sorry to hear about the previous losses of your babies. I have not heard of a similar situation. I myself had four previous "normal" babies...
Thank you for the e-mails. No my husband and I have not went and got any testing done between us. The doctor says that it is not herditary. But three babies...
Is anybody here involved in an arthrogryposis study? Leah's ortho contacted some researchers in Utah who are doing some type of arthrogryposis study. We gave...
Hi I was sad to hear of your situation...I have lost before, and I now have two babies, one with Arthrogryposis and one without...they are identical so it's...
Hi, I have AMC. I was wondering if any of you know someone or maybe you yourself have had a hyper-extended knee joint removed? I'm considering this proceedure...
I am 31 and last year when I was 30 (duhh)I got pregnant. We were really happy. At 2 months we saw the heartbeat on the ultrasound and at 3 months we couldn't...
Therapy, therapy, therapy! Do it, nver stop, it will help more than any surgery. I am a 31 ear old wth AMC. Aother thing, dont treat her any diferent than...
hi there, i have 1 son who is almost 7 and just recently lost a bubby...i never once thought it was due to amc...perhaps coz i already had a bubby already...
Hi I am 31 with amc and have got a 3 year old. The only complications i had
was because i was soo small and the baby did not have much room to grow so
in the...
Hi, I don't have any info. on this but I sure hope you will share any knowledge you acquire on this subject. I am very interested because my wee little baby...
Hi Denise, I just wanted to offer you some encouragement. While I have never had a miscarriage myself, I am surprised by how many women I know that have had...
The nice ladies who have recetly posted, that have AMC that have had babies, I am curious is the AMC you have severe or mild? My daughter has severe AMC and...
Hi Susie B, thanks! Does your little one have a hyper-extended knee? My knee is bent back (hyper-extended) almost 90 degrees. Walking is a serious problem for...
hi there, i have amc in both my arms and legs....i walk but dont have alot of bend in them and my arms dont move much and have no capacity to make a fist to...
Camille's Dr said that she put her name in for the study since over 25 people in her biological fathers family has this, but we have never heard a thing? ...
Hey, My son and I are going to the Seattle Clinic and I was hoping to start talking to people before we go.. The clinic is on March 31.. Dee Dee (MoM to Elijah...
I teach ESE Pre-K in Florida. I have a new adorable little girl with AMC. This will be my first student with Arthrogryposis. She is very adept at using her...
hi my name is kara peters 25 from british columbia Kamloops. i have arthrogryposis and i also have a 5 yr old son with a non disabled man my dr told me when i...
My son has also used his feet, he at present is trying to use his hands and types mostly but at age of prek he always used his feet to write and eat, still...
Lee, Thank you so much for sharing this. I think it is one of the most wonderful stories I have ever heard. I am going to share it with my son. He gets so...
hello i need some information or some help either would be great any way my son has amymoplasia congentia he cannot use his arms or even walk due to hip...
Hello how are you.. I hope you and your children our blessed. You wrote me sometime ago about a book I could get, I have been searching trying to find that...
My name is JT and I would love invite you to look at a program that you or someone you know might qualify for. The Washington Center for Internships and...
A friend has sent me these links to 2 poems that i feel really say it all i just loved them and thought i would share with all of you. first part of poem is...
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