Hello,

I have just recently discovered online support groups (I know, I
know...I must be living under a rock! :)

I'm sure my reply is VERY late but I was looking through the messages
and came across this so I thought I'd reply.  I have 5 children.  My 4th
child, a daughter who is 11, has Arthrogryposis.  We had no idea that
there was anything wrong with the pregnancy and were VERY shocked when
she was born.  She was born with the Amyoplasia type of AMC.

In answer to your question, I did have another child after my daughter.
Another beautiful girl who is now 9.  She does NOT have Arthrogryposis.
I was told that there was a 25% chance that I could have another child
with AMC but by the time they figured that out and relayed that
information to me, I was already 5 months pregnant :)


I wish you the best with your little ones.

Shamida

--- In arthrogryposissupportgroup@yahoogroups.com, "delsweet2003"
<delsweet2003@...> wrote:
>
>
> I have a son who has arthrogryposis he is 10 yrs old...
> im expecting my second child. i was reading on line that the chances
of having another child with arthrogryposis were 1 in 3000. Is there any
moms outhere that have had any other children after an arthrogryposis
child?
>

Hello,

My name is Shamida and I have just recently discovered online support groups.

I have an 11 year old daughter with AMC-Amyoplasia.  She is doing remarkably
well.  I can't tell you how helpful this group would have been to me these past
11 years when our family was going through all the surgeries, recoveries,
brainstorming, problem solving etc...but as a parent of an AMC child I can tell
you: you never have enough information and you never know it all.

She is now entering those lovely 'tween years' that have me pulling my hair out
and she is encountering some 'bullying' at school as well.

The list really is endless when it comes to the problems we HAVE, we ARE, and we
WILL face....

Just wanted to briefly introduce myself...I will be posting more in the coming
days..

Thanks,
Shamida

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I have noticed it's been very quiet on here as well, except for lots of Spam
messages.
I have seen a huge number of AMC people on Facebook.. If you are on Facebook
search for AMC and Arthrogryposis and that's how I found them



[Non-text portions of this message have been removed]

Dear all,

This is Dimitra from Greece. We have been awfully quit lately. Have I missed
something.

I have been a member of all AMC groups since 1999 and gone through all
changes that have happened due to poor e-mail service. Lately, I keep
receiving only commercial e-mails. Does this happen to you as well?

Our groups have been a life saver for me. Mom of a girl with AMC. I feel
that it is my duty to keep the groups alive in order to help other moms &
dads that will feel as I was feeling. Is there something I can do to help?

Dimitra



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WALMART

--- On Fri, 11/6/09, gumyee <gumyee@...> wrote:


From: gumyee <gumyee@...>
Subject: [Arthrogryposis Support Group] elastic waist pants with fly?
To: arthrogryposissupportgroup@yahoogroups.com
Date: Friday, November 6, 2009, 2:34 PM


 



Does anyone know where to buy CHEAP elastic waist pants but that have an easy to
open fly for boys? At an easily available place, not a specialty store. thanks!
Diane











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