Hi Congragulations on making such a beautiful decision to adopt a child. By the sounds of it, she does not appear to have sever AMC. If she is able to walk...
2726
mhamm80@...
craftysusy
Sep 8, 2009 1:28 am
My grandson is now 18 months old and last week the gastro Dr wanted to put a feeding tube down his nose. His is small and weighs about 15 lbs and has always...
2727
Beverly R Hanset-Burch
beverlyhanse...
Sep 8, 2009 4:25 am
Greetings. My daughter has AMC and is 5 years now... and she has a tube. I would more than love to talk to you on the phone... write me off list... \ Bev. ... ...
2728
hilary sallee
hils4x4
Sep 8, 2009 7:22 am
I too am curious about feeding difficulties. My son has a mild form of AMC (affects his feet and hands, mostly) and he is 2 years old and still will only eat...
2729
Sandi Waymire
sandiwaymire
Sep 8, 2009 1:38 pm
My daughter is 19 w/ a relatively mild case of AMC. I don't remember any difficulties w/ eating BUT she can't smell and doesn't like certain foods (we think...
2730
Beverly R Hanset-Burch
beverlyhanse...
Sep 8, 2009 5:25 pm
Okay. There are not many with feeding issues but thanks to the internet I am finding more and more. We saw Dr. Myall at Oregon Health Sciences University. He...
2731
danette_bashaw
Sep 16, 2009 7:30 pm
Hello, I am new to the group. I have a grandson who was 2 months premature with 3 diagnosis, arthrogrposis is being one of them. I am trying to get as much...
2732
Danette Bashaw
danette_bashaw
Sep 16, 2009 7:30 pm
Hello, I am writing in regards to my grandson Alexander. He was born 2 months early and has several diagnosis. Arthrogryposis being one and gastrioscesis and...
2733
Theresa Lucas
terry2745
Sep 16, 2009 10:49 pm
Danette, Conngratulations on your new Grandson!! You can find a lot of info on the amcsupport website http://www.amcsupport.org you can also join the forum...
2734
Genevie Woods
gvsworld1982
Sep 16, 2009 11:45 pm
Welcome to the group Danette! My daughter was also born 2 months premature and had both arthorgryposis and gastrochesis. She is 2 now. How old is your...
2735
danette_bashaw
Sep 21, 2009 9:45 pm
... Hello Steve, I want to thank you for writing back. My granson who is one month old has the arthro in both legs and arms along with armodysplasia and I hope...
2736
Tim Hickernell
n9hmo
Sep 21, 2009 10:39 pm
Hello Danette, I'm 47, born with severe AMC in my legs and milder elsewhere. When I was born, I had no heels, my feet were totally turned around 180 degrees...
2737
Urska Markelj
vran_uncas
Sep 22, 2009 7:30 am
Hi, Danette, Tim and Steve! I too would like to encourage you, Danette, to seek a second (fourth and seventh if necessary) opinion on that. By description, I...
2738
Danette Bashaw
danette_bashaw
Sep 22, 2009 3:08 pm
Thank you for the insight. I have talked to my daughter about notifying shriners and there is one in Boston, not too far from us. I am glad to hear that each...
2739
Danette
danette_bashaw
Sep 22, 2009 3:21 pm
2740
Beverly HansetBurch
beverlyhanse...
Sep 22, 2009 3:40 pm
My daughter has a feeding tube, write me off list. I can even call you. Bev...
2741
preachertx2002
Sep 23, 2009 10:29 pm
I took my 2 year old daughter Ruthie (elbow and wrist arthrogryposis) to Scottish Rite in Dallas yesterday and they recommended wrist surgery where they would...
2742
Danette
danette_bashaw
Sep 24, 2009 12:28 am
Has anyone with an infant that has arthro ever experience swelling at all? If so, did they know the cause and what course of action do you know they took,...
2743
Zayra
delsweet2003
Sep 24, 2009 8:34 pm
Scottish rite is a great hospital that's were they been seeing my son since he was 3 days old . I really recommend u put your daughter in there hands although...
2744
j_figlio
Sep 24, 2009 10:48 pm
Check out http://www.shrinershq.org/hospitals/main/ 100% free service. They will transport you for free too. Excellent service. They have dealt with...
2745
casdog2003
Sep 24, 2009 10:49 pm
Hi Ginnie! Reading your post was like reading what our 2 year old son, Aaron, just had done here in San Antonio in July. He also has Arthrogryposis affecting...
2746
Trent Henderson
preachertx2002
Sep 24, 2009 11:35 pm
Thanks Lisa. I would love to continue to hear how your son does. One thing I wanted to make sure is that Ruthie will still be able to flex her wrist for...
2747
jaimedunstan
Sep 25, 2009 11:01 pm
Ginny, My son also goes to Scottish Rite in Dallas, the people there are nothing short of angels on earth. He had surgery in March on his feet and the whole...
2748
hilary sallee
hils4x4
Sep 26, 2009 5:09 am
My only advice is talk to your doctor about the pros and cons of waiting a year. A recent Mayo clinic study has linked multiple surgeries before the age of...
2749
casdog2003
Sep 28, 2009 8:48 pm
Now that his left wrist is in the neutral position, we are doing ROM exercises that he's not too crazy about. I think flexion will come in time, however, his...
2750
Trent Henderson
preachertx2002
Sep 29, 2009 12:22 am
Lisa- So is he not able to actively flex anymore? One of my concerns too is that they are going to cast her above her elbow and I am worried that she will...
2751
Dimitra Giannopoulou
gem25396
Oct 1, 2009 6:29 pm
Dear Danette, First of all, congratulations for your grandson. My best to you and your children. I have a daughter, 10yo with AMC, AMyoplacia (clubfeet,...
2752
Emily Diehl
e_kay_d
Oct 1, 2009 6:43 pm
Danetta, Congratulations again on your new bundl of joy. I know your family will be getting all kinds of suggestions and ideas. My oldest child who is now 13...
2753
cynthia reyes
cindy_reyes12
Oct 26, 2009 2:57 am
hello im sorry i havent responded i didnt find my password i would like to share pictures with u if you would like...my son is the same way he is very...
2754
cynthia reyes
cindy_reyes12
Oct 26, 2009 3:02 am
Hello Sandi thank u for the advice this is so true only we know how our kids feel and what they really need we know them better than any doctor best of luck. ...
