(sorry if some of you are getting duplicate emails as Im sending this to all amc yahoo groups) Convention (in Philly, PA July 16-19th)) Â is only a few weeks...
I went to the convention website and checked out all of these links- I could not see where in Philly the convention is, and what hotel it is or any links to...
after registering the PA convention chair person(s) will send you the information on the hotel. We do not put that info on the website ~Theresa Lucas ...
Hi, My name is Jessica Chi, I am an Avon Representative, also a mom with a AMCer, I want to help in anyway I can, Arthrogryposis Multiplex Congenita Support,...
Hi, I'm the mother of a beautiful two year old daughter and she was diagnosed with Arthrogryposis in her thumbs about 8 months ago. She went to Occupational...
Hi, My name is April and I have arthrogryposis in my arms. I am 30 yrs old and a proud mother of a healthy son. If there is anyone that would like to talk...
My name is Jolean and I am 18. I live in PA. Does anyone know what the laws are for a person to leave their parents house if theyre still in highschool? I am...
... Hey u r an adult if u want out because maybe u feel u could make it out in the world on ur own. Because rent and utilties are not free plus the cost of...
We just adopted a 2 year old with arthrogryposis that affects her hands and elbows. We were told today by her Dr. that she would not gain anymore motion...
I wouldn't listen. My daughter continues to gain more ROM and everything. Heck, the last 4 months we haven't been using her left hand splint because we were...
Though Beverly and I don't see eye to eye about the Shriners Hospitals, I will agree with her that you should not accept this doctor's word as true fact when...
My 6.5 year old has AMC and goes to Shriners here in Philadelphia. All shriners are different, so far ours has been great with her condition. She has had one...
Hi. I had been going to Shriner's Hospital in Chicago since age 9 until 18 and they were great with my condition. I have AMC that affects all joints, not...
Congratulations! My son has arthrogryposis that affects his shoulders, elbows and hands (and clubbed feet too) With this condition there is no telling what our...
I am the mother of three year old Bria, whom has arthrogryposis. Is there a national foundation (i.e. Susan G. Komen) that raises awareness for this disease?...
I have a son who has arthrogryposis he is 10 yrs old... im expecting my second child. i was reading on line that the chances of having another child with...
I am happily engaged to a man in a wheelcair do to Arthrogryposis. Our son who is now 20months old diagnosed at birth (Arthrogryposis) He had pins in right leg...
Hello, my name is Danielle and my son is 12 weeks with AMC -- what is a stander? Also, I live in Toledo, OH, so if there's anyone in the area it would be nice...
I am 23 yrs old My son has Arthrogryposis and he is 20months I guess it's genetic cause his 25 yr old father has it and he's in a wheelcair do to it. Our son's...
How do you go abot to find out what kind of arthrogryposis it is? My husband is in a wheelchir our son whom is 1 in a half is being sized for a wheel chair. my...
We are considering adopting a little girl from China. She is 9 years old and we have been told that her likely diagnosis is arthrogryposis. Her feet are...
Texas Scottish Rite Hospital!! That is where you need to go. I've heard wonderful things about them and they seem to know their stuff!!! Get an appt...
It's a long rocky road wit AMC. If you will have the time and dedication to handle her, then by all means please do. It is not easy. I have a 6 1/2 year old...
Hi my name is Malia. I have a 6 year old son and a 3 year old daughter both with Arthrogryposis. They told us it is genetic and with every pregnancy we have...
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