Hi. My daughter is 10, has AMC and wears AFOs. She's sposed to wear them 24/7 but b/c of skin issues we have discontinued night use temporarily on her...
What worked for us was domboro---mix it following the directioms on the box...and fyi the colder it is the better it works...you can buy it at the local...
Hi I was just curious where in your childs feet are they bleeding? Are they pressure points from the AFOs or just skin breakdown? Maybe the AFOs are not...
Hello Everyone, Hope that you and your loved ones are doing well. I am looking for help on a special item. My daughter's swimming teacher has been asked to...
This is a question for those who are 50+ and older. I seem to be having problems with keeping my eyes focused due to lack of eye muscle. I have worn glassed...
Does anyone have recommendations on where to find shoes that fit over the HKAFO braces? Our dr. did not know. We have some New Balance tennis shoes but would...
keeping pace!! They are great! Donna From: angela82462 Sent: Monday, February 23, 2009 2:30 PM To: arthrogryposissupportgroup@yahoogroups.com Subject:...
Hatchbacks are my pick, my Daughter just got them for Christmas and they even come in Mary Janes so she doesn't have to wear tennis shoes to church! To:...
I started a Yahoo group for those with AMC and g-tubes and/or trachs as we have very unique issues and circumstances. It will be a closed, protected, moderated...
Hi I have a boy who is 10 yrs old with arthrogryposis who is my pride and joy...I'm pregnant with my second child ,i was reading on line about arthrogryposis...
I am wondering what most of you do that have girls with braces in the summer time? We live in TN and it gets VERY hot here in the summer. I cannot imagine her...
Zayra, I have a 13 yr. mold girl with arthrogryposis and a 8 yr. old boy with out. Emily in Texas ... From: zayra delgado <delsweet2003@...> Subject:...
Hi, I first had four children without AMC. Then I had my fifth baby and she had AMC. And after her I had a sixth baby without it. So she was the only one. ...
My daughter wears braces 20 hours out of the day. We keep her in skirts and dresses in the summertme with leggings underneath. They're thin and don't get too...
My first child has arthrogryposis and I am currently 5 months along with our second. So far things look good for her. Plenty of movement, not like my first....
as far as i know unless it is the genetic form of amc it would be extremely rare to have more then one child born with amc. ever person i've meet with amc has...
I have 3 children my second son Tristin is the AMCer. My 3rd is a girl and born without AMC. We were worried also that she was going to have AMC too until she...
I swear this is why i grew up hating braces. I live in new orleans where hot is a way of life, on top of that i was 100% tomboy and hated dresses. I wore argo...
My three sons are 22, 21 and 18. My daughter is almost 5 and she is the one with AMC. ... From: Allyson To: arthrogryposissupportgroup@yahoogroups.com Sent:...
I have two children from a previous marriage they are 14 and 9. They are both able bodied and healthy. My last child who is from my current marriage is 5 and...
hey allyson i saw your email and and it said you were from new orleans,I live in Baton Rouge and would love to chat with you about AMC and what doctors you...
I have a little girl who just turned 4 with AMC however I have i 7year old and a 2 year old and they don't have AMC. So good luck I sure this bababy will not...
Lakisha I am in the baton rouge area & we go to childrens with my who's 2 & has Amc....drop me a lime, would love to chat Sent from my iPhone On Mar 24, 2009,...
My name is Louise my son who's 1 in a half has arthrgryposis he has a stander does anyone know what comes next? ... From: Doris Heckert <dijdheckert@...>...
in 1999 i gave birth to my beautiful daughter melina after 9 months of the most easy pregancy. i was working 12-14 hours per day throughout my pregnancy. she...
hey, Sorry took so long just checking my email. I went to children's and saw Dr. Zimbo who I believe retired right after the storm. But she saw me from...
Depending on what type of arthrogryposis it is depends on if you would have another child with it. Some condition are hereditary and some aren't. With my son...
I am 23years old and I am a new mom of an awsome baby boy. I am also engaged and both of my guys that I love dearly have Arthrogryposis. My fiance however is...
Good morning, The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive equipment,...
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