With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
I have tried making an appointment and he is only available in mid june. Since I will be there from end may onwards, do you happen to know of any arthryposis...
the only other doctor that may be able to help is scott fletcher in burnie tasmania he looked after my son ,no doctor in hobart would touch him, he & leo...
Hi I was wondering if anyone could give me their experiences on these procedures either from having it done themselves or maybe their child? My son is 5 1/2...
Hi Lisa, My son who just turn 6 is also having a problem with his left foot getting worse. They did the entire tendon release at 1 yrs old, and he continues...
... left foot getting worse. They did the entire tendon release at 1 yrs old, and he continues to wear his DAFO braces on his feet, but for some reason the...
Good afternoon, everyone! The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive ...
Good morning, For any families who may need it: The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the...
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
We just adopted our 2 year old daughter from China. She was just diagnosed with arthrogryposis last week. It has affected her feet, knees and hips as well as...
Most of us have gone through serial casting and splinting with lots of physical therapy prior to surgery. This helps avoid surgery. Have you strated any...
Hi angela, My name is Joanne and my son was diagnosed with arthrogryposis at birth. ALL four limbs are effected and before he was 2 he had already had 12...
awww, i was adopted at 6 weeks old, now 28. I have amc in all my main jooints. I only had 2 surgeries, 1 that worked to correct my club feet and 1 that did not...
Hey, Angela! My name is Urska, and have the amc on lower legs and lower arms. Large percentage of amc patients can be helped significantly merely with regular...
AMCSI is coming to Dublin Ohio July 17-20th, 2008!!!!! Go to _www.amcsupport.org/ohio_ (http://www.amcsupport.org/ohio) for all the details! This will be our...
First of all, Congratulations for your daughter!!!! Daily, aggressive PT sessions did miracles in our daughter's case. Surgery was done for the "last touch". ...
I HAVE to tell you all that didnt get to attend the 3rd annual Arthrogryposis multiplex Congenita Support, Inc Convention in Dublin Ohio last week missed out...
Hi there...I wanted to introduce myself. I sent a letter a little while ago, but it was never approved by the moderator so I'm trying again. Anyhow, I am...
Hi, I live in Phoenix AZ. My nine year old daughter has arthrogryposis. I am wondering if there any kids in the area in her age range 8-10 give or take a year?...
We have a group just for kids who have Arthrogryposis. It is moderated by 4 adults but we never say anything, we feel this list is for kids only and if they...
I think that you need to go to www.yahoogroups.com first and then search their site for arthrogryposisyoungadults. Just clicking the link below did not get me...
Group Email Addresses Post message: arthrogryposisyoungadults@yahoogroups.com Subscribe: arthrogryposisyoungadults-subscribe@yahoogroups.com Unsubscribe:...
As many know, next years Arthrogryposis Multiplex Congenita Support, Inc convention is being held in Philadelphia, PA. Just released...........the dates...
Yes my name is Denise Duhamel I am a 31 year old with Arthrogryposis. I live in Mass and just found out about the up and coming convention in 09. I am very...
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