Our 3 year old was just diagnosed with Coxa Vera, in addition to his leg contratures. From reviewing past x-rays, it appears to have come about fairly recently...
2587
Allyson
allycat70001
Apr 9, 2008 7:16 am
does anyone know if he just works out of shreveport and does he only see kids? i live in new orleans and i need a orthopedic that sees odd cases and has a clue...
2588
Denise Patterson
deedee638
Apr 9, 2008 4:48 pm
http://www.tagonline.org.uk/articles/International_Arthrogryposis_Symposium_for_Professionals.pdf Found an article and though the AMC's would be interested ...
2589
jollyojo
Apr 19, 2008 1:09 pm
My good friend just had a baby today via c-section with Arthrogryposis. She had her baby girl at a big hospital in Dallas. This hospital has never seen this...
2590
Everett, Lori and Mas...
johnslg311
Apr 19, 2008 2:28 pm
(Wow...my email says that this was first written on Tues night, but I just got this Saturday am!) Anyway, since you are in TX, I've heard wonderful things...
2591
Allyson
allycat70001
Apr 28, 2008 9:41 pm
Also Shriners's (not sure on proper spelling sorry) in Shreveport has a good deal of knowledge with this disability, i know its a little drive from Dallas but ...
2592
Suraya Nordin
snordinmy
Apr 30, 2008 5:32 am
Hi there everyone, my husband and I are planning to bring our Sofia, 4 yrs old with AMC to Melbourne, Australia. Has anyone been referred to any specialist in...
2593
vicki blah
googoo7010
May 1, 2008 1:00 am
Leo donnan is a good specialist at childrens hospital in melbourne he is pretty busy u might have to ring to make sure he available in may To:...
2594
Lala
lalabonita
May 1, 2008 10:12 pm
With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
2595
Suraya Nordin
snordinmy
May 3, 2008 3:10 pm
Hi Vicki, tqsm for the info. It's much appreciated. Rgds Suraya, mother to Merissa, 8yrs old and Sofia, 4yrs old ... ...
2596
Suraya Nordin
snordinmy
May 6, 2008 5:14 am
I have tried making an appointment and he is only available in mid june. Since I will be there from end may onwards, do you happen to know of any arthryposis...
2597
vicki blah
googoo7010
May 7, 2008 8:34 am
the only other doctor that may be able to help is scott fletcher in burnie tasmania he looked after my son ,no doctor in hobart would touch him, he & leo...
2598
Suraya Nordin
snordinmy
May 9, 2008 1:25 am
how far is Burnie Tasmania from Melbourne? BTW how old is your son? Suraya, mother to Merissa, 8yrs old and Sofia, 4yrs old ... ...
2599
vicki blah
googoo7010
May 13, 2008 9:21 am
burnie is about 1hr plane ride from melbourne my son is 11 To: arthrogryposissupportgroup@...: snordinmy@...: Thu, 8 May 2008...
2600
Lisa Lumley ( McLean)
pomba_99
May 14, 2008 10:25 pm
Hi I was wondering if anyone could give me their experiences on these procedures either from having it done themselves or maybe their child? My son is 5 1/2...
2601
kelli peasley
santiamor2002
May 15, 2008 11:58 am
Hi Lisa, My son who just turn 6 is also having a problem with his left foot getting worse. They did the entire tendon release at 1 yrs old, and he continues...
2602
Scott Campbell
scott_campbell3
May 15, 2008 2:19 pm
... left foot getting worse. They did the entire tendon release at 1 yrs old, and he continues to wear his DAFO braces on his feet, but for some reason the...
2603
Ashandra
shashi9599
May 19, 2008 5:44 pm
Good afternoon, everyone! The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the purchase of adaptive ...
2604
Joanne Yee
javajojo1963
May 23, 2008 2:41 pm
Date: Thu, 22 May 2008 16:24:56 -0600From: carrie@...: Fwd: You are 1 of my 11, don't open until you can respond. Subject: You are 1 of my...
2605
Suraya Nordin
snordinmy
May 25, 2008 12:59 am
Suraya, mother to Merissa, 8yrs old and Sofia, 4yrs old...
2606
Ashandra
shashi9599
Jun 3, 2008 12:51 pm
Good morning, For any families who may need it: The Kya's Krusade Financial Assistance Program provides grants to children with physical disabilities for the...
2607
Lala
lalabonita
Jun 16, 2008 9:10 pm
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
2608
angela82462
Jun 30, 2008 10:41 pm
We just adopted our 2 year old daughter from China. She was just diagnosed with arthrogryposis last week. It has affected her feet, knees and hips as well as...
2609
Denise Patterson
deedee638
Jul 2, 2008 2:18 am
Most of us have gone through serial casting and splinting with lots of physical therapy prior to surgery. This helps avoid surgery. Have you strated any...
2610
Joanne Yee
javajojo1963
Jul 2, 2008 7:05 pm
Hi angela, My name is Joanne and my son was diagnosed with arthrogryposis at birth. ALL four limbs are effected and before he was 2 he had already had 12...
2611
Allyson
allycat70001
Jul 2, 2008 7:08 pm
awww, i was adopted at 6 weeks old, now 28. I have amc in all my main jooints. I only had 2 surgeries, 1 that worked to correct my club feet and 1 that did not...
2612
Urska
vran_uncas
Jul 3, 2008 6:23 am
Hey, Angela! My name is Urska, and have the amc on lower legs and lower arms. Large percentage of amc patients can be helped significantly merely with regular...
2613
TERRY2745@...
terry2745
Jul 4, 2008 12:49 am
AMCSI is coming to Dublin Ohio July 17-20th, 2008!!!!! Go to _www.amcsupport.org/ohio_ (http://www.amcsupport.org/ohio) for all the details! This will be our...
2614
Dimitra Giannopoulou
gem25396
Jul 23, 2008 12:51 pm
First of all, Congratulations for your daughter!!!! Daily, aggressive PT sessions did miracles in our daughter's case. Surgery was done for the "last touch". ...
2615
TERRY2745@...
terry2745
Jul 23, 2008 2:54 pm
I HAVE to tell you all that didnt get to attend the 3rd annual Arthrogryposis multiplex Congenita Support, Inc Convention in Dublin Ohio last week missed out...
