I'm 27 years old, I'm not really sure what officially is locked hips. both my hips are very contracted one hip prefers the sitting position and when laying...
Hi, my name is Kelli and I have a four year old little boy with Arthrogryposis. It affects both his upper and lower extremities. (sp?) I am currently going...
Thanks to all who responded to my post, Allyson thats what my daughter has where both her legs are raised and seems to always be in the sitting position. Now...
If possible putting her where your other kids are would probably be best. I'd say just avoid making her see her self as very different then her siblings. She...
if you can give me a few days i have many that unknown to me ended up in college special ed PE classes text book. i'll find them and sent them to you since...
That would be so Awsome!!!!!! I have about 4 or 5 weeks untill this specific speech is due. thank you so much for your help that is so so great!!!!!! thanks ...
What a difficult place to be...We also have twins. One is affected with AMC one without..That issue alone is so difficult...I don't want Matthew to always feel...
its funny as a 27 year old amcer that at birth was put in the severest category of disabled, i can only imagine how my mother felt making dicissions about...
its funny as a 27 year old amcer that at birth was put in the severest category of disabled, i can only imagine how my mother felt making dicissions about...
its funny as a 27 year old amcer that at birth was put in the severest category of disabled, i can only imagine how my mother felt making dicissions about...
its funny as a 27 year old amcer that at birth was put in the severest category of disabled, i can only imagine how my mother felt making dicissions about...
Hi sorry to hear about the bad experience with Shriners. I know that each Shriners is different, but I have to tell you that I have heard all good things...
I believe in everything you say about stopping the Doc.I realize that for some peole its hard but if you go in fully prepared with all the questions a paper...
As an adult with AMC (45 years old), I thought it might be helpful to give an adult perspective on asking questions of physicians and keeping records. There's...
Tim..I really appriciate your insight and your words..I always try and be a relentless advocate for my son, but keeping all records is soooooimportant to give...
We have been able to get copies of all of her records from her inital stay in the hospital in Salt Lake. The doctors there never even mention AMC to us. I...
keep up the creative brace making. My mom and another parent of a girl who was 10 or so years older then me made most all my elbow and shoulder bracing. only...
I joined this group because my son was born in November of 07 with Arthrogryposis. I have learned sooo much about this condition since he was born. His father...
Hello and welcome! This is such a great group for learning. I have learned more from this group than from the doctors we have seen. My best advise is to get...
Hi Tim, I'm Suraya and my daughter is Sofia who is 4 years old with AMC. Sofia's body was generally affected, predominantly at her lower limbs. She has yet to...
My 3 year old son has pretty much the same problem. With therapy his arms are doing great but his legs weren't doing so great. We were told he needed surgery...
I am not sure if this will help you at all, however my son had the achillies (sp?) clip and planter fascia (sp?) release for his clubbed feet, when he was 7 ...
Hello all!!!! I am new to the group and hope I am doing this right. I am a young and single mother and my son is 2 1/2. He has AMC and it affetcts his limbs ...
I am also a younge single mother so I kinda know how you feel. My baby had the same thing done about a year ago. The doctor told us because he wants to walk...
Hi Suraya, I'm glad you found the group and I hope you're using AMCSupport.org as well. Unfortunately, I'm the worst person to ask about modern day procedures ...
Thanks so much for taking the time to write me back!!! What is your sons name? My sons name is Alexander. What suregery did your son have on knees? what all...
I know this was directed to another mom but reading that still helped me with some of my decisons. My son Alexander also had the tendon cut and stretched on...
