our daughter Melina, has had this procedure. 2 years ago for her elbow and the outcome was a surprise and a miracle. During Julyt she had it for one of her...
Arthogryposis, A Text Atlas http://www.amazon.com/Arthrogryposis-Atlas-Lynn-T-Staheli/dp/0521571065 It is the most complete edition Dimitra ... [Non-text...
Brian does not have AMC, but this is still a very inspirational video. Dean http://www.youtube.com/watch?v=PIxhfdblYts [Non-text portions of this message have...
Thank you for sharing Donna Carleton 817.235.9225 ... From: Dean Cascio <deancascio@...> To: arthrogryposissupportgroup@yahoogroups.com Sent: Tue, 1...
Hi Dimitri, thanks for your reply. My husband and I have decided to proceed with the Illizarov procedure. We are planning to proceed with the surgery before ...
Hi All, My 23-year-old brother has athrogryposis and they're aren't many facilities to cater for the condition in the UK. He doesn't have use of his arms, but...
Miriam, My first thought is there will be a convention in Ohio of AMCer's. Perhaps he would enjoy that? Seeing others with AMC and networking and talking about...
my son has had illizarov frame on twice .His leg was shorter thanhe other & his knee was flexed so he couldnt bend or straighten it at all, it did work to a...
There is an AMC organization in the <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com:office:smarttags" />UK. Have you checked with them. I have...
Dear Suraya, sorry for getting back late. I am pregnant, third child, and i am due until this month. I will send pictures tomorrow. Melina is a very good child...
Wow Dimitri! It sounds so good in that she is able to stand and walk after the whole process. Everyday Sofia will tell me that she will walk after the...
Hi we go to a hospital in Wilmington ,DE called, alfred dupont hospital. They have a clinic there just for people with AMC, they have doctors and therapists...
As some who had this surgery done, i can honestly say it was the most painful thing i ever felt. however, had it worked for me, i would probably think it was...
Dear Ally, though i am not the one with AMC i need to say one thing or two for the new members that come in the group and may seek information based on...
Ok, for the sake of pple seeking information based on experance here is what i wish to god someone would have brought up to me when i had this surgery done: ...
Can anyone tell me whether it is or was easy for the doctors to find reflexes at an amcer's joints. My daughter Sofia was having her final check up yesterday...
Bonnie has great reflexes but her joints are no longer fixed. I am actually amazed at her reflexes! I don't know why I am amazed but I just.... am.... ... ...
none of mine can be found. it is also very hard to get a paulse on me. Ally snordinmy <snordinmy@...> wrote: Can anyone tell me whether it is or was easy...
let me re phrase this, i have great reflexes i was tested for driving and they found my reflexe was only a tad longer then the avg but still scored off the...
hahaha...maybe if I ask them to search for her paulse, they may say all amcer do not have one!!.... I think the's what the docs meant, they can't find motion...
Same here, I also have great reflexes, work a lot wth horses and drive a lot. At driving test my reflexes weren't even longer then of avarage. But the...
Dear Ally, Did you have much problem from post surgery...especially with the anesthetic? Were you placed in the ICU for observation, if so how many days? Sofia...
with my surgery for club feet and my one to have the illizorv on and te one to get it off i never had any trouble at all. when i had my wisdom teeth out 5...
Hi, Ally! I'm surprised that you had Ilizarov removed under anesthesia. Were there any complications that it had to be removed wth you under? When I had it it...
Actually, no there were no complications, like i said i had it done 17 years ago when i was about 9 years old. not sure if this was normal parctice back then,...
Gee, we had it pretty much at the same time, mine was removed on June 1991! (I also pulled some pretty crazy stunts with it like geting around with bike and...
i'm 27 now, i had it done in April of 89 or 90. Ya i stayed pretty active with it on too, i figured if i was gonna hurt might as well make it worth it. went on...
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