Good morning, My name is Ashandra and I'm new to the group. My goddaughter, Kya was born with Arthrogryposis, affecting her hands and feet. Kya has undergone...
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc (a not for profit 501 (c) (3) organization http://www.amcsupport.org) When: July 17-20...
Hello Everyone, been on the list for awhile. I have question. my youngest daughter has amc in her upper extremities, but she also has senory issues. she can ...
Good morning, everyone. For any families who may need financial assistance obtaining adaptive equipment for your child, the deadline for this round of grants...
Im writing today about an online support group called amcsupport.org which operates under the corporate name Arthrogryposis Multiplex Congenita Support, Inc....
Hello all. I have a 15 month old son named Peyton who was born with bilateral clubfoot. I noticed a few months ago that he never uncurls the two middle...
Hi!!! I'm a new member of arthogryposissupportgroup an I'm desperate to ask ?????? My son has arthrogryposis (8 years old, had already 3 surgerys , 1 of them...
I am sorry I don't know of this surgery but welcome to the group. Please come to amcsupport.org too.... big group there.... My name is Bev. My daughter,...
Hi, I'm 20 and I have clubbed wrists but this was not a procedure that was offered to my parents to improve wrist function but I know of a little boy who just...
The doctor is going to take a small triangle of bone from the wrist so that the hand can be moved into a more normal looking position. My concern would be the...
GOOD DAY!!! MY NAME IS CHARLIE, AND I AM FROM THE PHILIPPINES... MY SON IS BORN WITH ARTHROGRYPOSIS AND HE IS NOW 4 Y.O.. IN OUR COUNTRY ONLY A LIMITED...
Hello. My son is 3 months old and was born with Distal Arthrogryposis. He was born with one club foot and a soft cleft palette. He has finished castings for...
Hello Everyone! I just wanted to wish you and your families a safe and happy holiday season and to send a friendly reminder that the Kya's Krusade Financial...
http://www.elfyourself.com/?id=1451808040 Click here this is cute!!! Hi Everyone, Just wanted to wish you all a Merry Christmas and a Happy New Year!!! From...
HELLO TO EVERYBODY OUT THERE! I HOPE ALL YOU GUYS ARE GOOD!!! FROM MY FAMILY TO YOUR FAMILY, MAY ALL OF YOU HAVE A BLESSED CHRISTMAS AND A BOUNTIFUL NEW...
HELLO TO EVERYBODY OUT THERE! I HOPE ALL YOU GUYS ARE GOOD!!! FROM MY FAMILY TO YOUR FAMILY, MAY ALL OF YOU HAVE A BLESSED CHRISTMAS AND A BOUNTIFUL NEW...
Hello, I work with a child with arthropgryposis and am very much looking for a children's book about arthrogryposis that I can read with a child/children. I...
hello everyone! I just found this site and thought maybe it would help me out some. I am a single mom with a 3 year old son with arthrogryposis. I am now in...
If you hear of one let us all know! ... From: gumyee To: arthrogryposissupportgroup@yahoogroups.com Sent: Saturday, December 15, 2007 12:46 PM Subject:...
Dear Friends, Beginning January 1, 2008, and as written in our bylaws, the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., a 501(C)3 ...
Hi there, my name is Suraya. I have a daughter who is 4 yrs old and has AMC. She was born with stiffness of her hands, knees and ankles (club foot) but with...
Hi Laurel, read about your experience with Dr Roye. I have a daughter, 4 years Sofia, with AMC. At birth, her upper and lower limbs were affecting but with...
We did the Illizarov's with Danielle when she was 5 (I think) after many other procedures. The procedure worked as far as getting her feet in a flat ...
Dr. Roye and Dr. Hyman are the two doctors we have used. Dr. Hyman did the amputation and the Illizarov's 3 years ago. They are both great. They are at...
i had it done on my knee about 17 years ago, it did not work for me cuz my hamstring was far to tight and it was not released and my knee slowly creeped back...
our daughter Melina, has had this procedure. 2 years ago for her elbow and the outcome was a surprise and a miracle. During Julyt she had it for one of her...
Arthogryposis, A Text Atlas http://www.amazon.com/Arthrogryposis-Atlas-Lynn-T-Staheli/dp/0521571065 It is the most complete edition Dimitra ... [Non-text...
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