Good morning, My name is Ashandra and I'm new to the group. My goddaughter, Kya was born with Arthrogryposis, affecting her hands and feet. Kya has undergone...
2464
tracey_schalk
Nov 5, 2007 3:22 am
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc (a not for profit 501 (c) (3) organization http://www.amcsupport.org) When: July 17-20...
2465
Brian M Henry
yigg42
Nov 13, 2007 4:26 pm
Hello Everyone, been on the list for awhile. I have question. my youngest daughter has amc in her upper extremities, but she also has senory issues. she can ...
2466
Ashandra
shashi9599
Nov 16, 2007 11:49 am
Good morning, everyone. For any families who may need financial assistance obtaining adaptive equipment for your child, the deadline for this round of grants...
2467
TERRY2745@...
terry2745
Nov 19, 2007 7:31 pm
Im writing today about an online support group called amcsupport.org which operates under the corporate name Arthrogryposis Multiplex Congenita Support, Inc....
2468
sugarbearrau
Nov 20, 2007 5:15 pm
Hello all. I have a 15 month old son named Peyton who was born with bilateral clubfoot. I noticed a few months ago that he never uncurls the two middle...
2469
Beverly R. Hanset-Burch
beverlyhanse...
Nov 21, 2007 12:35 am
Samaria, Yes we did massage and stretch on Bonnie and it worked but she still needed a heel cord clip procedure... you can see pictures of her at...
2470
Dean Cascio
deancascio2000
Nov 22, 2007 2:44 am
Dean Cascio <deancascio@...> wrote: If they don't trust us with guns, how can we trust them with the government? [Non-text portions of this message...
2471
Honorata Kosinski
honorata.kos...
Nov 24, 2007 12:44 am
Hi!!! I'm a new member of arthogryposissupportgroup an I'm desperate to ask ?????? My son has arthrogryposis (8 years old, had already 3 surgerys , 1 of them...
2472
Beverly R. Hanset-Burch
beverlyhanse...
Nov 24, 2007 12:54 am
I am sorry I don't know of this surgery but welcome to the group. Please come to amcsupport.org too.... big group there.... My name is Bev. My daughter,...
2473
tracey_schalk
Nov 24, 2007 6:18 pm
Hi, I'm 20 and I have clubbed wrists but this was not a procedure that was offered to my parents to improve wrist function but I know of a little boy who just...
2474
Denise
denipatterson
Nov 24, 2007 11:08 pm
The doctor is going to take a small triangle of bone from the wrist so that the hand can be moved into a more normal looking position. My concern would be the...
2475
clpa01
Nov 29, 2007 4:24 am
GOOD DAY!!! MY NAME IS CHARLIE, AND I AM FROM THE PHILIPPINES... MY SON IS BORN WITH ARTHROGRYPOSIS AND HE IS NOW 4 Y.O.. IN OUR COUNTRY ONLY A LIMITED...
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veronica-barrett@...
veronicabarr...
Dec 5, 2007 4:06 am
Veronica Barrett wants to talk with you using Yahoo! Messenger: Accept the invitation by clicking this link: ...
2477
lantheta
Dec 5, 2007 5:29 am
Hello. My son is 3 months old and was born with Distal Arthrogryposis. He was born with one club foot and a soft cleft palette. He has finished castings for...
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Ashandra
shashi9599
Dec 6, 2007 11:25 am
Hello Everyone! I just wanted to wish you and your families a safe and happy holiday season and to send a friendly reminder that the Kya's Krusade Financial...
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heidi feliciano
heidichino
Dec 16, 2007 2:56 pm
http://www.elfyourself.com/?id=1451808040 Click here this is cute!!! Hi Everyone, Just wanted to wish you all a Merry Christmas and a Happy New Year!!! From...
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clpa01
Dec 17, 2007 1:38 pm
HELLO TO EVERYBODY OUT THERE! I HOPE ALL YOU GUYS ARE GOOD!!! FROM MY FAMILY TO YOUR FAMILY, MAY ALL OF YOU HAVE A BLESSED CHRISTMAS AND A BOUNTIFUL NEW...
2481
clpa01
Dec 17, 2007 1:39 pm
HELLO TO EVERYBODY OUT THERE! I HOPE ALL YOU GUYS ARE GOOD!!! FROM MY FAMILY TO YOUR FAMILY, MAY ALL OF YOU HAVE A BLESSED CHRISTMAS AND A BOUNTIFUL NEW...
2482
gumyee
Dec 17, 2007 4:12 pm
Hello, I work with a child with arthropgryposis and am very much looking for a children's book about arthrogryposis that I can read with a child/children. I...
2483
Kimberly
kimberlyaboutte
Dec 17, 2007 4:12 pm
hello everyone! I just found this site and thought maybe it would help me out some. I am a single mom with a 3 year old son with arthrogryposis. I am now in...
2484
Beverly R. Hanset-Burch
beverlyhanse...
Dec 17, 2007 9:23 pm
If you hear of one let us all know! ... From: gumyee To: arthrogryposissupportgroup@yahoogroups.com Sent: Saturday, December 15, 2007 12:46 PM Subject:...
2485
TERRY2745@...
terry2745
Dec 26, 2007 10:02 pm
Dear Friends, Beginning January 1, 2008, and as written in our bylaws, the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., a 501(C)3 ...
2486
snordinmy
Dec 30, 2007 3:23 pm
Hi there, my name is Suraya. I have a daughter who is 4 yrs old and has AMC. She was born with stiffness of her hands, knees and ankles (club foot) but with...
2487
snordinmy
Dec 30, 2007 3:23 pm
Hi Laurel, read about your experience with Dr Roye. I have a daughter, 4 years Sofia, with AMC. At birth, her upper and lower limbs were affecting but with...
2488
thebennett6@...
bellasx3
Dec 30, 2007 10:37 pm
We did the Illizarov's with Danielle when she was 5 (I think) after many other procedures. The procedure worked as far as getting her feet in a flat ...
2489
thebennett6@...
bellasx3
Dec 30, 2007 10:42 pm
Dr. Roye and Dr. Hyman are the two doctors we have used. Dr. Hyman did the amputation and the Illizarov's 3 years ago. They are both great. They are at...
2490
Allyson
allycat70001
Jan 1, 2008 5:30 am
i had it done on my knee about 17 years ago, it did not work for me cuz my hamstring was far to tight and it was not released and my knee slowly creeped back...
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Dimitra Giannopoulou
gem25396
Jan 1, 2008 11:08 pm
our daughter Melina, has had this procedure. 2 years ago for her elbow and the outcome was a surprise and a miracle. During Julyt she had it for one of her...
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Dimitra Giannopoulou
gem25396
Jan 1, 2008 11:14 pm
Arthogryposis, A Text Atlas http://www.amazon.com/Arthrogryposis-Atlas-Lynn-T-Staheli/dp/0521571065 It is the most complete edition Dimitra ... [Non-text...
