Where is this convention going to be at? I would be very interested in going if I can plan ahead to attend. My daughter is 11 and has arthrogryposis. She has...
Arlington, Texas. Are you on the amcsupport.org forum? Lots of info there! Bev in Oregon and yes unless gas is over $4 a gallon I am driving there! ... From:...
Convention will be in Texas, go to _www.amcsupport.org_ (http://www.amcsupport.org) for more info! ************************************** See what's free at...
Hi congratulations on your new bundle of JOY! I'm sorry for your diagnosis, but know there is hope. The Shriners hospital for cripled children in is a great...
Interested in purchasing an AMC awareness wristband? Go to _www.amcsupport.org_ (http://www.amcsupport.org/) there are hot pink or blue, kids or adult sizes...
I'm 18 and diagnosed with AMC. Well recently I've been thinking a lot about my future and was wondering if kids would be a good idea for me. I love kids and...
... Hi, Melody I am 30 years old and I have AMC and a 2 year old little girl who is perfectly healthy. It was hard at first but it got easyer as time went on...
I probably won’t be around much or I may lurch for awhile. On Monday night my boyfriend Scott died of a massive heart attack that came out of no where. He...
Betty, I'm so sorry to hear your news. I guess the Lord needed him to come home early. I pray you take comfort in knowing Scott is with his heavenly father....
... a lot ... for me. ... know ... condition. So I ... you do ... having ... easyer ... She ... but ... you ... will ... Hello Melody, It's perfectly natural...
thanks for the advice. i really needed some insight from personal experience. since i dont anyone else with AMC i always wondered if people with AMC could...
thanks for the advice. i really needed some insight from personal experience. since i dont anyone else with AMC i always wondered if people with AMC could...
Hello My Fellow-Driving-AMC'ers!! First of all I want to say ""THANK YOU"" to all who have participated in filling out the AMC Drivers Survey!! Your...
Hello Yahoo Members!!! We would like to invite everyone to our monthly AMC Chat being held tonight at 8pm EST. Please join us for this wonderful time to share...
I need help from those that are now off of tubes or darn close to off of tubes. We just went to yet another feeding specialist doctor. He wants to do a fundo....
I can only give you an opinion from one mother to another. The first thing I suggest is to stop and breath. The docttors seem to tell us things that are so...
Thanks for your kind words. Oh and believe me, I have said no to lots of surgeries and procedures. There is no rush on this one but man I just want her to EAT....
Hi there, I have read your concerns about a g-tube and rightfully so that you should be concerned. But in my experience with this , this was the best decision...
i never had a G-tub, but my mother and i always joke around that if i had been born in the last 10 years i most likely would have ended up with a tube. i was ...
I'm glad they have g-tubes as Bonnie had an uncoordinated suck swallow breathe and absolutely could not get enough nutrition. I hate decisions! ... From:...
Hey AMCers & Families Please map yourself here http://www.frappr.com/arthrogryposismultiplexcongenita so we can get a general idea of where to hold future AMC...
Hi everyone, This is my first time joining a support group, but I thought it might be helpful to get support from people that are going through the same exact...
Hello Shefflan, I have a 11 yr. old daughter with mild arthrogryposis. She also has Hereditary Spastic Paraplegia. She has never been able to walk more than a...
Hi again, Were you ever able to find out why your daughter has Arthrogryposis? They did a muscle biopsy and a chromosome test on my daughter and were still...
Hello, just popping in here to say hi! :) Our daughter is 4 years old, with AMC on all her limbs. She too had a muscle biopsy when she was a baby, but...
Hi Katherine, Im 48 and am a very mild case as well. Ive lived a very normal life with no surgeries. my parents learned there lesson on my brother who had many...
hi im daniel from oregon that did the same to me took skinfn from my leg grafted to my hands thay have cut my akeleys tendence now i can work i suffer from...
