Hi, My son has AMC. He was doing very well until about 5 yrs ago. Then he started having very bad knee pain in both knees. The Doctors can not seem to figure...
Hi Diana, If they’ve ruled out joint and muscle problems, I just wondered if they had investigated the possibility of nerve problems, especially sciatica. ...
My daughter who is 9 has also experienced knee pain every so often. She has bad pain and then they crack she then says they feel better. She has knee braces...
My pain stems from wearing out the joint. My femur bone is dragging on the tibia bone. My menisci are pretty much shot. Also my knee cap is located behind...
Denise! Haven't heard from you in awhile! Bonnie will be 3 next month! Can you believe it? Check out myspace.com/beverlyhansetburch She has come a long ways! ...
Hi Katherine. Thank you so much for writting. My 4 year old daughter has arthrogryposis and more often than not I worry about her future. Will she get picked...
Beverly, Hi, I was just looking at your myspace and in the blog about the rain you said "I think the stereroids are still speaking for her". Bonnie is on...
Bekki, She was on them for a cold. She still gets on oxygen when sick. She was sick, started oral pred, then now still on it because after 3-5 days(depending...
I've been sick since last year and I am now just getting back on my feet. I've had a pinched nerve in my neck, a broken hand, toe surgery, which became...
Hi Naomi, My son is 5yrs old with arthrogryposis in his arms and legs he drives a powerchair around. He was also in a school/daycare since he was 1yrs old.The...
Denise, Sorry to hear of all your troubles! Yes Toro is a spitfire. He gives Thelma and Louise a run for their money. Here they were almost 9 year old...
Hi all, I just joined this group yesterday. My son is 3 months old and has arthrogryposis in his upper extremities. His personality is really starting to come...
Carolyn, My daughter was getting craniosacral therapy from her OT at the neurodevelopmental center near here every other week from about age 1 to about 2.5....
HI! Welcome to the group! I copied a post I posted in _www.amcsupport.org_ (http://www.amcsupport.org) & Im pasting it here about massage! Hope it helps!!! ...
DO YOU OWN A COPY OF ARTHROGRYPOSIS A TEXT ATLAS that you would like to donate?? by Lynn T. Staheli (Editor), Judith G. Hall (Editor), Kenneth M. Jaffe...
Hallo Everyone This is Dimitra & Melina from Greece. Melina is doing great and she is becoming a great swimmer, though she adores soccer. Just to let you know....
Hi Everyone, I'm new to this group but do have a 11 yr.old with arthrogryposis. I was reading everyones recent posts and decided to comment. I hope you don't...
I joined today my daugher is six and has Arthrogryposis she is the strongest person I know. She has had surgery on both knees, feet,and one hand so far....
Hello, It has been a long time since I have posted! We adopted a little girl from Thailand with AMC. She is doing wonderful! She has been home for a year...
PLEASE help us out, this will be for the amcsupport Convention in Texas July 12-15th,2007 Feel free to add any questions/comments/suggestions that you Don't...
Where is this convention going to be at? I would be very interested in going if I can plan ahead to attend. My daughter is 11 and has arthrogryposis. She has...
Arlington, Texas. Are you on the amcsupport.org forum? Lots of info there! Bev in Oregon and yes unless gas is over $4 a gallon I am driving there! ... From:...
Convention will be in Texas, go to _www.amcsupport.org_ (http://www.amcsupport.org) for more info! ************************************** See what's free at...
Hi congratulations on your new bundle of JOY! I'm sorry for your diagnosis, but know there is hope. The Shriners hospital for cripled children in is a great...
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