hi there my name is katherine, i am 20 and i have arthrogryposis. i dont really know much about it cause its never really affected me that much. thats kinda...
Thanks for welcoming me into the group I'm not much of a computer person so sorry if i make any mistakes My son Yousuf has amc his 4 and is doing really well...
Hi Katherine, My daughter has a mild case as well. To date, she has only had one surgery, but they warned us that she might have to have more as she grows....
i had my surgery to correct my fingers when i was like 3 or 4. i've never really cared about my scars because my fingers work so well, its worth a little...
Hi Katherine My name is Malia, I live in Hawaii and I have two children with Arthrogryposis, my son Dyce is 3 he has Arthrogryposis as well as Escobar...
Katherine, Thank you so much for being so open and honest. It is the hardest thing as a parent of a child with AMC making decisions that have both pros and...
i forgot to mention that before but i think the limitations i have in my arms is really the only thing i notice on a daily basis. i cant put my hair into a...
if you ever have any questions that you would like to have me answer please feel free. i was also born with club feet but i havnt ever really heard much about...
Hi, I am glad to hear that your son is doing well. My daughter is 8 years old and she has done well with her surgeries and now even does her own physical...
I noticed that our daughter also has the finger sweep, it really has caused no problems, she writes with her left hand instead of her right but several people...
Hi again. My daughter has the finger sweep on her right hand, but it doesn't appear to bother her. It seems mild to me, she can use that hand to do most things...
Hi everyone. I have an 8 yr old daughter with AMC.She is doing great and doing so many things the doctors said she never would do. She complains frequently...
i dont think my parents were told that i had to have surgery by a certian age i think it was just going to be easier on me at a young age for school and such....
Hi calsie's mom!! I'm an adult (28) with amc and as a child I can't remember having a lot of pain however, as I have gotten older I have developed athritis in...
Hi I have a 3 year old son and a 8month old daughter both with AMC, but son has had two clubfeet and two hip surgies by the time he was 19 months old..He...
thanks for your reply. We have never met any adults or even teens with AMC, and are very curious as to how Calsie will do later, like I said nothing slows her...
Hi all. My daughter is 16. Hasn't had a surgery in over 5 years. She does have pain when she is on her feet too much. She takes 2 Aleve every 4-6 hours....
Your so very welcome =o) My knees don't bend correctly either, one left one bends to nearly half way, right one barely bends at all, however I didn't let that...
Jenilee is right, damp rainy weather makes joints ache more! (BTW, Im Theresa, 40 years old with amc.) I also remember my nephew (no amc) complaining of ...
Thanks for the story of your daughter. Our boy is only 9 and the future is so scary not knowing what will happen. He has had 2 surgeries on each leg so far....
Hi again. I have heard from so many people with AMC that are doing wonderful, like you it is most encouraging for my husband and I. Calsie actually handles her...
Isn't it so fun to pay premiums out the wazoo only to have to fight the insurance company to pay or to keep coverage. Can you qualify for medicaid? It stinks...
Calsie_Mom, Sorry it's taken me so long to respond to this thread. I hope I can add a little perspective as a middle-aged adult with AMC. (I'm 43.) I think...
Hi All, My daughter is 10 months old and weighs 12lb 5oz she has been dx with failure to thrive and had an NG-tube put in yesterday.Is this common among AMC...
My daughter does have a g-tube. However, she could not coordinate suck/swallow/breathe at all. She needed frequent suctioning as well as frequent blow by...
I was never said to have falure to thrive but now at 25 looking back i likely was. i didn't weight 10lbs until i was about 12 months old. i was always under ...
Hi Sally I have a 3 year old son who is 26 pounds, he was 25 pounds all last year, my daughter is 8mos and 13 lbs. They both have/had bilateral club,...
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