hey alicia!<br>thanks for your tips, i do my
makeup out of a drawer i know that sounds hard but it's
not,its really easy.and almost every day i get
complimented on my makeup and hair.my mom,sister,grandma or
who ever is there too help me with my hair does.its
very frusterating for me, and im sure who ever does it
for me,becuase i'm so picky on how i look. and by the
way barrette has two r's i think hehe.i'm sure i've
got alot of misspelled words because i'm not paying
attention im just trying too hurry up,so don't worry. did i
tell you that i'm 16 i live in sacramento/cali where
do you live? do you have a boyfriend? i just broke
up whith mine and i'm kinda sad.what's your favorite
color?mines red.by the way do you ever go to the chat rooms
i'd like too chat whith you. anyway, i g2g so i hope
too here from you.

Hey Ashley! I too, would like to welcome you to
the club. I'm 16, and have AMC. It only affects my
arms, though. Anyway, as for make-up and hair tips, I'm
your girl. Usually, I just lean my arm against
something, and then my elbow will bend so that I can reach
my face. I can apply make-up by myself, and if I
need a mirror, I usually just lean against the mirror
and look up with my eyes. As for the car, I've never
been really successful at applying make-up...I think
I've mastered the lip stuff, but I need mirrors for
everything else. As for hair, I can my right arm is the only
side that can reach the top of my head, so I've
resorted to help from other people or just using headbands
and barettes (is that spelled right?). Anyway, I g2g.
I hope this helps, and feel free to contact me.
<br>-Alicia<br><br>AIM Screen
Name-BigBirdST<br>E-mail-tofuwonder@...

I've always had dogs and I agree, they are great physical
therapy.<br><br>Dan<br><a href=http://www.dango727.com
target=new>http://www.dango727.com</a>

Hi Ashley, welcome to the club. I'm Dan, I'm 27
and I live in Florida. From the way you described
yourself it seems you and I were born the same way. I can
also walk, but am not able to bend my arms, although
when I was a baby, I had my right arm permanently bent
at a 90 degree angle so that I would be able to do
more for myself, like feeding and brushing my teeth.
Sorry I don't have any make-up tips for you, I stopped
wearing that years ago...j/k.<br>I can remember when I
was a kid, the doctors would tell me that when I turn
18, they would be able to perform surgeries on me
that would make me better, too. I can remember being
all excited about that, but as I got older, I
realized that there was most likely nothing that could be
done. Besides, I've had to learn how to live the way I
am and to have any surgeries would require me to
basically start over and learn how to do things all over
again.<br>I don't know who the best doctors are, I used to go
to Shriners, but haven't gone there since I turned
18.<br>I know another great place to talk to others with
amc, it's called the Adults With Arthrogryposis
mailing list. Don't be fooled by the name, there are a
lot of teens on there, too. Here's the address:
<a href=http://groups.yahoo.com/group/Adults_With_Arthrogryposis
target=new>http://groups.yahoo.com/group/Adults_With_Arthrogryposis</a><br><br>D\
an<br><a href=http://www.dango727.com target=new>http://www.dango727.com</a>

hi! my name is ashley and i have arthro..too, how
old is your son?what's his name?i'v never met anyone
else with athro..id like too get to know him and you,i
can walk but i can't bend my arms,i can bend my legs
half way i can use my hands very well i can draw very
well and i love singing and hope to be a singer one
day.i'm 16 i live in sacramento/cali where do u live? one
thing id like too know is why did my docter tell my mom
when i was a baby, that when i stop growing i could
have surgery and i'd be all better.and now there
telling us that there's nothing they can do.what's up
whith that?is there anything that can help me with
stuff like putting on my makeup, hair,you know things
like that i can put my makeup on perfect but it takes
longer and if im in a hurry i can't put it on in the car
like my mom and sister can. my mom can't really help
me when she's driving and my sisters in her own
little world making sure she looks perfect.and also, do
you know who the best docters are? any info,on arthro
you could give me i'd really like too have.now i
could type all night but i dont think you want too read
all night,hehe so if you could get back with me i'd
really appreciate it. thanks.........................

I wish Dan had told me about this sooner! Hi, I am Ciera Gordon I found a club
at angelfire.com and have amc as well.

my question is does anyone have pets? i think
pets are the best physical therapy. i have a dog and
to feed her, walk her, and just physically take care
of her is enough therapy for me.<br><br>tina 28 from
florida

Hi Joni,<br><br>My name is Christal and I have a
son with severe AMC. I have had a horrible time with
ingrown toenails since they started casting his clubbed
feet. One thing that you might consider is open-toed
shoes, there is less risk of ingrown nails this way.
Also the doctors told me to cut his nails off at the
sides (the part that becomes ingrown) regularly. If you
keep up on the trimming it cuts down on them a lot.
When they do become ingrown and you clean them out use
some alcohol to help from the infection getting out of
hand. I really hope that this will help. If you have
any other questions or if you figure out some other
ideas my e-mail is
shaigirl@...<br><br>Sincerely,<br>Christal

Hello this is the first I have posted here and I
have a question about my Daughter Emily.<br>She is 2.5
yrs old and started to walk on March 25th and since
she started walking we have had more and more
problems w/ her having ingrown toe nails that get really
sore and infected! Are the ingrown toes nails
associated w/ her feet being clubbed? If anyone has delt w/
this or has heard of it please let me know! Thanks a
million Joni

Dear Ana,<br><br>My name is Christal and I have a
son with severe arthrogryposis. I would be happy to
give you any information that you would like. My
e-mail address is shaigirl@... I have more
information than most doctors can tell you. If you could
write up a list of questions or topics of concern I
would be happy to help you. I look forward to hearing
from you.

Hi,<br><br>What would you like to know? I'm sure
the links section on the left hand side will give you
plenty of information on amc.<br>I received your instant
messages yesterday, you kept saying hi, but you never
responded back to me with anything
else.<br><br>Dan<br><a href=http://www.dango727.com
target=new>http://www.dango727.com</a>

Hi!<br>My name is ana and I have a sister with arthrogryposis please contact me
to let me know more about this please!

OK everybody, Dango272 is now a co-founder of this club. Just thought I'd let
you know. Also, keep posting, this club won't be a good support group if people
dont post.

OK everybody, Dango272 is now a co-founder of this club. Just thought I'd let
you know. Also, keep posting, this club won't be a good support group if people
dont post.

That link is wrong. The correct link is:
<a
href=http://dmoz.org/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Co\
ngenital_Anomalies/Arthrogryposis/Personal_Pages/
target=new>http://dmoz.org/Health/Conditions_and_Diseases/Musculoskeletal_Disord\
ers/Congeni
tal_Anomalies/Arthrogryposis/Personal_Pages/</a><br><br>Sorry about
that,<br><br>Dan

One thing I like to do when I'm online is look up
home pages created by and for people with AMC.<br>I am
the Arthrogryposis categeory editor for the dmoz.org
search engine, so I'm always looking for new sites. If
you'd like to see the sites I have found, just click on
this really long
link:<br><a
href=http://dmoz.org/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Co\
ngeni\tal_Anomalies/Arthrogryposis/Personal_Pages/
target=new>http://dmoz.org/Health/Conditions_and_Diseases/Musculoskeletal_Disord\
ers/Congeni
\tal_Anomalies/Arthrogryposis/Personal_Pages/</a><br><br>If for any reason this
link does not work, it
is<br>available in the links section on the left side of the
screen.<br><br>If you know of any pages that fit this category that
are not listed, please e-mail them to me or just
submit them directly to the above link and I will add
them. Also, if you happen to see your page already
listed and want it removed, just let me know and I'll do
it
immediately.<br><br>Dan<br><a href=http://www.geocities.com/dango727
target=new>http://www.geocities.com/dango727</a>

All the pictures of us? I counted all of 1 in there and that was mine.<br>Where
are you looking?<br><br>Dan<br><a href=http://www.geocities.com/dango727
target=new>http://www.geocities.com/dango727</a>

Hi everybody,<br> I was just looking at the
pictures of all of us and noticing how much the shapes of
our faces are alike and wondering if the shape of our
face is one way the doctor can tell that we have AMC
and what are some of the other ways that the
<br>medical community has? <br><br>Barbara at
barbbrown2@...

I would love to talk with you about what you have
been through with the surgeries and such. I had a son
on Jan 10th, 2001 with severe AMC and would like to
hear your point of view as someone who has been
through much of what he will have to go through. Thank
you and hope to hear from you.<br><br>christal

Everyone please post messages, it's been really quiet for the past few weeks.
Maybe if everyone starts sharing their stories, ideas, info, etc the group will
pick up.<br>-Alicia

Welcome to the club! I'm 15 and AMC affects my arms. I'd love to talk to you or
anyone else here! Feel free to e-mail me at tofuwonder@...<br>-Alicia

hey i am new here. i am 25 and was born with
arhrogryposis.. i am affected in my legs and must wear leg
braces. I must say though nothing stops me from getting
around..i am out at clubs..enjoying life...would like to
talk to others that have this.

looks like we live close to each other :)

To whom it may concern,<br><br>Hi, My name is
Corinne. I am a resident of Alberta, Canada. I was born
with athrogryposis. I am 25 and currently live in a
house with 2 other girls. I have personal care workers
come into my home and care for me. My only income is
AISH (Assured Income For Severely Handicapped). Which
pays my main bills and groceries. <br><br>I am only
receiving this assistance until I find a full time paying
job. I took Travel Tourism for 2 years at a local
college to become a Tour Director/ Manager. But in order
to find and keep a job I need to be more independent
and have my own transportation.<br><br>I got my
learners when I was 19 and was tested at the Glenrose
Rehabilitation Hospital by Vivian Hyrinko in Edmonton for
driving. I drove a vehicle around a parking lot for an
hour and am able to drive a vehicle adapted for me.
<br><br>The question I need your help for is...where do I get
the money to do this? There has to be something out
there for us. Last week I met a young man with the same
disability and he is having the same problem.<br><br>Easter
Seals here said they will fund me for the special
equipment I would need. But would not give the money until
they see my valid drivers license and vehicle
registration. So this means I need to purchase the vehicle
before they will give the money.<br><br>I feel I am
being punished for being born this way. You can't deny
the fact that if I was hurt on the job, Workman's
compensation would already have 3 vehicles fixed up for me to
get back on my feet and have a full time job.
<br><br>All I want is to be more independent. Is that too
much to ask for?<br><br>Please let me know what I can
do about this...or whom I may speak to that would
know more.<br><br>Thank you for your
time.<br><br>Corinne

I am sooo glad to find this club...my friend
stumbled on it. I was born with athrogryposis and have had
many surgeries during my life to correct it. I type
with my toes and paint and write with my mouth. I'm so
glad this club exists! :)

Hey guys, sorry I haven't done much for this
club...I've been busy with family stuff and have been away
almost all summer. I'll try to work on it during the
free time I have, and hopefully, it will become more
active. Thanks to Dan for the additions, and I hope
everyone who has joined so far keeps checking on this
club. Just to tell everyone, this will be my last week
home, and then I'm going to Canada for a family
vacation. Then school starts, and I'll try to keep this
club updated. Sorry again.<br>-Alicia

My friend just had a baby in March w/ Arthrogryposis.  I know being in a club
like this would benefit her, and me as well.  I will recomend it to her if it
can get going.<br>C.G.

Why have a club if no one is going to post messages?<br><br>Dan<br><a
href=http://www.geocities.com/dango727
target=new>http://www.geocities.com/dango727</a>

I'm new to this club, so I thought I'd say hi.<br>I hope this club becomes more
active. Maybe when more people find out about it it'll pick up.<br><br>Dan<br><a
href=http://www.geocities.com/dango727
target=new>http://www.geocities.com/dango727</a>

Welcome to the Yahoo! Message Board for Arthrogryposis Support Group