I've posted a couple of years ago about my son Robbie. He's 29 months old now and thankfully he's been home from the hospital for a year now. He was...
Justin and Heidi, Congratulations on the new baby. About Robbie's AMC, that is a new one for me, never heard of a child growing out of AMC. If that was the...
Hi Everyone For those people who have offered to be our moderators, I want to say, "that I am well pleased with the outcome of the AMC chats sessios on Sunday...
Hey Yall! I'm newbie with all this so bear with me. My son Tyson Maxwell was born July 27th with contractures in all 4 limbs. I posted pics so everyone can...
Hi- Sounds like you are doing and awesome job already. As a mother of four, I read your post with a warm smile thinking "what a natural" you are. I think...
Just wanted to let you know that I won't be able to make the chat this weekend. I look forward to the next one!! Talk to you soon. (jenilee) Jennifer Member...
Reminder from the Calendar of arthrogryposissupportgroup http://groups.yahoo.com/group/arthrogryposissupportgroup/cal AMC Chat for New Parents Thursday...
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Sep 7, 2005 3:58 pm
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Reminder from the Calendar of arthrogryposissupportgroup http://groups.yahoo.com/group/arthrogryposissupportgroup/cal AMC Chat for New Parents Thursday...
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Sep 8, 2005 12:56 am
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Justin & Heidi, My 15 month old daughter has AMC. My daughter is not affected by Scoliosis however she does have loose joints now. I haven't met/talked to...
Hi Everyone Veronica would like to remind you of this weekly upcoming event. AMC Chat Every Sunday evening 6:00 P.M. - 8:00 P.M. (CST) Central Standard Time ...
There have been many discussions lately regarding the causes of AMC and also the mention of it being an umbrella diagnosis for other Genetic disorders. My...
My wheel chair van is for sale again. Its a 96 dodge full size van with 24,000 original miles and its in great shape. If you are interested please call me at...
I have an !! month old son with AMC, he also has pierre robins sequence,a tracheostomy and requires CPAP.I dont feel as though I have enough info on...
Hi there...I just wanted to write to let you know I read your email, and was thinking about you...I have 2 sons, one with Arthrogryposis, affecting alot of his...
Hello. My name is Cassie. Im from Melbourne Australia. My daughter is now 6 weeks old. She was born 2 months early. doctors have diagnosed her with Amc. She...
... have ... be ... Hi, My daughter has just been diagnosed with AMC she is 6 weeks old. She hasnt been diagnosed with pierre robins syndrome. But i did read ...
Hi Cassie I am sharing this email with other members that are on other AMC groups as well. I am thankful you contacted me. I hope this email helps you find...
Hi cassie,my name is Simone.I'm the mother of an 11 month old boy who has AMC,Pierre robin sequence (small jaw and cleft palate),requires CPAP and has a...
Hi cassie,my name is Simone.I'm the mother of an 11 month old boy who has AMC,Pierre robin sequence (small jaw and cleft palate),requires CPAP and has a...
Dear Lisa thankyou so much for your advice,Its great to finally talk to someone who knows how I feel.Where are you from?.My son is an outpatient of sydney...
HI MY NAME IS DAN I READ YOUR LETTER DONT LET THEM DO THAT TO HUR I HAVE HAD MANY SURGERYS HERE IN THE US AND FINLEY WORKING AS LIKE YOU NO ONE WANTS TO...
Hi Simone HI there...I am in Ontario Canada. North of Toronto (about 45 mins-hour away that's with out traffic which is never HA....) Any questions would be...
Cassie, My name is Jennifer, I am 28 and living with AMC. Mandy contacted me last night about your concerns.(I am also a member of the amcsupport.org) I am...
i was jut wondering if anyone new of any orthopedic doctors in the Chicago,IL region. - katie Disability With A Smile <arthrogryposis2003@...> wrote: Hi...
Simne, Have doctors said anything about anyone else born with what your son has? My daughter was just diagnosed last week with AMC, she was born with a small...
hi jennifer thanks so much for helping us. we really appriciate it. lilsweetie19772003 <lilsweetie19772003@...> wrote:Cassie, My name is Jennifer, I am...
Simone, Have doctors said anything about anyone else born with what your son has? My daughter was just diagnosed last week with AMC, she was born with a small...
Thank you so much. i had no idea there were this many people out there in the world as kind and caring as the people i have met in the last 48 hrs after...
Hi Katie, If you don't know me, I'm Jennifer, 28 & living with AMC (I'm also a member of amcsupport.org drop by and check us out, LOTS of great information,...
