Hi Everyone Happy Fourth of July...because of the holiday, I have canceled the CochiseAbility AMC chats today, SUNDAY the 3rd and next SUNDAY the 10th. Both my...
1642
calprest
Jul 4, 2005 1:31 am
I was horrified to read this story from Reuters about a baby boy born with arthrogryposis. The title is, "Rare 'lobster' baby born in Peru". Here is the URL...
1643
Ani
lalabonita
Jul 4, 2005 8:37 pm
That is horrible! I have heard that term used to describe another disorder...but the hands of the person they referred to looked like actual lobster claws...I...
1644
Ani
lalabonita
Jul 4, 2005 9:23 pm
I found the same article about the "lobster baby" on Yahoo News and went to the discussion board...and let me just tell you how cruel and insensitive people...
1645
Lisa Lumley ( McLean)
pomba_99
Jul 6, 2005 1:49 pm
I also wrote Reuters a letter, about the terminology used to describe this little child. Not to sensitive that's for sure... Lisa ... Sell on Yahoo! Auctions...
1646
Disability With A Smile
arthrogrypos...
Jul 7, 2005 6:41 pm
Hi Everyone, Through the courtesy of www.CochiseAbility.org, chat rooms are available to be used by group members. This is very easy and all you have to do to...
1647
Leslie Kent
prsmama
Jul 11, 2005 4:52 pm
Hello all: My name is Leslie and I have a 4 year old son with Pierre Robin Sequence. He was born with a cleft palate and an underdeveloped jaw so that he...
1648
pooh8angel
Jul 11, 2005 4:52 pm
My 18 month son has arthrogryposis. He is a very happy little boy. :) however I was hoping to speak to someone who has a child a bit older then my baby, and...
1649
Rebecca Horne
b_ekk_i21
Jul 11, 2005 6:55 pm
Leslie, Hi, I have a 18 month old son with Arthrogryposis-Amyoplasia. Amyoplasia means lack of muscle formation (which sounds like what your mother has). He's...
1650
tahlia edwards
gntrboys
Jul 11, 2005 8:15 pm
Hi, my name is tahlia I have a 3 yr old with AMC. I am willing to talk or answer any Questions if I can . please email me gntrboys@... pooh8angel...
1651
Tahlia
gntrboys
Jul 11, 2005 8:29 pm
Tristin who had surgry in may is walking in long leg casts. He has been for some time now but we find it amazing. He is sight to see . He is so motivated and...
1652
Susie Baker
susiebake2001
Jul 11, 2005 9:14 pm
Hi, I am so happy for you that your son is walking. And how cool that he is proving his docs wrong! :) My little one is just two years old. She is not...
1653
Beverly R Hanset Burch
beverlyhanse...
Jul 12, 2005 8:12 pm
Just wondering if anyone has had any experience going from Medicaid to private insurance. I think we are about ready to and just was curious what were the...
1654
Tina Lewis
mommy111603
Jul 13, 2005 4:57 pm
Hello, congratulations to you and Tristin, that must be an amazing feeling!! I was just wondering, what kind of surgery did Tristin have? My daughter...
1655
Ani
lalabonita
Jul 13, 2005 6:18 pm
Hey there! I have an almost 3 year old with AMC - You can email me anytime - I will be happy to share tips and experiences with you. My email is...
1656
Ani
lalabonita
Jul 13, 2005 6:38 pm
Hi Beverly - I would be prepared to get coverage forms from Medicaid - Private Insurance will probably want to see how long you were covered under medicaid and...
1657
Beverly R Hanset Burch
beverlyhanse...
Jul 13, 2005 7:57 pm
Hello Ani, Bonnie is the only one of us on Medicaid, and Cigna that we are looking at has no caps and does not mind preexisting conditions. She hasn't been...
1658
Ani
lalabonita
Jul 14, 2005 3:27 pm
I know what you mean about finding reliable information We only had our medicaid dropped for one month back in march - picked back up in July - and medicaid...
1659
mary smith
marysmith9727
Jul 14, 2005 6:15 pm
hello my name is mary i havent posted for awhile been really busy. anyway my son joshua has amc and the news i got from his doctors the past few weeks is...
1660
cricket_lighter
Jul 15, 2005 2:55 am
Bev, As far as SSI goes it will affect her Sept. check. We tried to get Bekah covered under Dh's insurance from work and it was a no go. But you do live in a...
1661
Beverly R Hanset Burch
beverlyhanse...
Jul 15, 2005 3:33 pm
Thanks for everyone's help. I called Bonnie's case worker this morning and found out that since she qualifies for respite care(20 hours a month is all)that she...
1662
cricket_lighter
Jul 16, 2005 7:13 am
Bekah's appt. went well for the most part. We are now playing the wait and see game again. OH how I dislike this game. Now the Dr. agrees with me on her...
1663
Beverly R Hanset Burch
beverlyhanse...
Jul 16, 2005 2:18 pm
I would go crazy if I didn't dream once in awhile. Who do you take her to for neurodevelopment? My neuro was head of the cranio facial team at Emmanuel before...
1664
arthrogryposissupport...
arthrogryposissupport...
Jul 16, 2005 10:55 pm
Reminder from the Calendar of arthrogryposissupportgroup http://groups.yahoo.com/group/arthrogryposissupportgroup/cal AMC Chat Sunday July 17, 2005 7:00 pm -...
1665
vicki blah
googoo7010
Jul 17, 2005 2:26 am
i am glad i live in australia ,becuase i dont work & a single parent i dont have to pay for any of my sons medical costs which is a BIG load off ,if i had to...
1666
arthrogryposissupport...
arthrogryposissupport...
Jul 17, 2005 4:56 pm
Reminder from the Calendar of arthrogryposissupportgroup http://groups.yahoo.com/group/arthrogryposissupportgroup/cal AMC Chat Sunday July 17, 2005 7:00 pm -...
1667
tahlia edwards
gntrboys
Jul 18, 2005 3:43 am
Thank you, it is a great feeling to know that he is not going to let anything stop him from doing what ever he wants to do.Tristin had tendon releases on both...
1668
Joy Speziale
joyspeziale
Jul 18, 2005 5:08 pm
I was able to get insurance through my states TEFRA program and I had to jump through a lot of hoops at first I now go through only one renewal period a year...
1669
gypsy4817
Jul 21, 2005 11:02 pm
i've never posted before, but i feel i should now. i'm 21 years old and have arthrogryposis. i see there are many parents with young children with amc who are...
1670
MALIA CARSON
cmdcarson
Jul 21, 2005 11:02 pm
Hi Leslie My name is Malia, I have a two year old with arthrogryposis, and some of the other anomalies you listed my son also has: low set ears contracted...
