Hi, MY NAME IS TAHLIA AND I HAVE A THREE YEAR OLD WITH AMC.IN JUST A FEW DAYS HE IS HAVING HIS SECOND TENDON RELEASE SURGERY ON HIS FEET, NEEDLESS TO SAY I AM...
hi my name is diane,my 5yr old has arthro.he had it throughout preg.but noone knew.i always knew something was wrong but noone would listen,and the ultra sound...
My son is 9 years old he had his 1st set of surgeries when he was 9 months old. We had no idea that he had amc when I was pregnant and found out when he was...
... I know I've been extremely quiet on all of my Yahoo Groups but I've been thinking about taking a more active role lately, and this comment seemed to just...
Event Name: CochiseAbility Chat SessionsDate: Saturday, May 7, 2005Time: 7:00pm-9:00pm Repeat: every week.Description: On Saturdays, CochiseAbility will be...
Hi, my son Jose Tomás has Amc, on march he had a hip surgery, he was on cast for 7 weeks. Yesterday we took the first x-ray of his left hip, its is ok, if...
Adriana, Check out the hip-baby.org website it has tons of info and you can also join a discussion group which I highly recommend. My daughter has amc and had...
Wishing all mom's on the board a wonderful Mother's Day! It's your Day Bask in it Dance in it Do the thing that makes you happy.....Enjoy! Ani S. Vinson ...
Hello everyone! This is a group my husband and i started for the Ottawa area (Canada) if you are intrested in joining please click this link.Thank you Tina &...
Hi everyone. My name is Marlene. My daughter Savannah is 2 months old and has arthrogryposis. This is me and my husband's second child and our son was born...
I am looking for a doctor that is experienced in amc to see my son, we are currently being seen at the shriners hospital in chicago,and have been for years. I...
My son sees Dr.Nelson in Ann Arbor. She holds Arthrogryposis clinics every so often. Her number is (734)936-7175. My son also sees Dr. Craig, who is an...
... we ... have ... My son is 6 months old, and has amc. He is being seen by a Dr. Micheal Forness in Grand Rapids, MI. He is an orthopedic surgeon ...
... figured out your sons cheeks were involved? thanks Michelle Michelle, we just found out our daughter's jaw was involved by having an OT watch her eat....
Thanks, I was just wondering. I have asked before but have been told that there isn't a test to check. My daughter has dimpling where the joints are fixed...
My name is Angela and i have a special needs child that has AMC, and i want to start my own business (daycare) in my home. I'm trying to find out about...
Angela, My suggestion is to go to your local Department of Health. They usually can set you up with some supplies if not maybe they can tell you were to go....
My daughter is 13 months and a Kid Kart has been recommended. She is on Medicaid. Anyone have any advice? I am sure she will eventually run a powered chair. I...
my son is 9 years old and has limited flexabilty in his legs. I have been searching for a bike for him to ride. I bought a 3 wheeled bike and he still seems to...
We got a bike special made through Freedom Concepts. the number is 1-800-661-9915 or www.freedomconcepts.com. You can try one of these and see if it is...
I have to agree that Freedom Concepts is really cool and have some great bikes. Check them out! I used to ride what they called a "big wheel" when I was little...
Hi Marlene! I'm new here too and I have AMC. I hope that medicine is a bit more advanced than it was when I was born 25 years ago. :-) My mom has told me the...
Hi, I am brand new here so I wanted to say hi and sort of introduce myself. I have arthrogryposis and have NEVER met anyone else who has it. I've never even...
Hi, my son is 7 and has a feeding tube too. He has no sucking reflex. He has severe AMC and I have it mildly. He inherited it from me. Feel free to email me if...
Hi, my 7 year old has AMC and severe scoliosis. We live in Atlanta Georgia and he is being treated through Children's Healthcare of Atlanta. He had a AP fusion...
Hi I am 35 and have AMC and a very reputable doctor told me that I would not pass it on to my son as NO ONE in my family has it. My son has it...and I don't...
Hi I am 31 and have distal arthrogryposis- meaning it affect my hands and feet only. My husband and I went through genetic counseling and found out it is 50...
Kathryn, There is a group here on Yahoo Groups that's called Infantile Scoliosis that might help you. There are parents on there that have children older than...
