Dear Friend, I'm an architect. My main area is health projects. I have worked in various projects that were disability clinics. I'm building new homes...
Hello Group member My 2 year old son has AMC, well he has problems with all his joints, moreover he has scolioses. I am from Paksitan so I have to take my son...
Dear Khalid, I can only imagine how difficult it must be to have to travel overseas for treatment, but you are doing the best for your child especially now...
I can't offer any advise on the hospitals but thought I might be of help in getting you to either one a lot cheaper. There are several organizations that will...
the royal childrens hospital in melbourne is an excellent hospital,my son was going there & they really know wat they are doing i would recommend them,the...
Dear Kelli and Santiago I am glade to see your e-mail. I have been taking my son �Ibrahim Khalid� to K.K.Hospital for Women and Children in Singapore....
I have an aunt with AMC and I am trying to find someone older than her to talk to about the progession of this disease to give her some kind of answers. Anyone...
hi, my name is elizabeth and i'm 21 years old.i was born with arthrogryposis and when i was born my hips were out of place,i had hip surgery when i was six to...
Hi everyone. My name is Michelle, my daughter is Brenna in 1st grade. I am wondering how everyone manages at school? Brenna does well, she has an aide with...
Michelle, My daughter is 8. She is in regular classes except of math but that is because she has a problem with math. She recieved physical and occupational...
Michelle, I am an adult with AMC, and I had the same thing happen to me when I started 6th grade. I did great academically and they said I didn't need special...
My son is in 7th grade and has been part of the Special Ed program from the get-go. He does this so that he can recieve his therapy and for that purpose only....
Hi Michelle- Please be VERY CERTAIN about what changing over from an IEP to a 504 plan will mean before agreeing to do this. It's amazing- we were in the ...
... anyone ... Hello Elizabeth, Limitations,like what? I can do most everything,just different,or slower. I am married and have 2 kids.If you could be more...
Thank you so much for the input. I get so worked up over changes too. I just want what is best so I always double check everything. This week we are trying...
Thanks for the input. Can I ask what types of help does your son require during the day? We are suposed to recieve therapy during school but we have yet to...
Thank you for the input. So how is life for you now? Is there a lot of things that are difficult for you? I notice that most of the things Brenna needs help...
Thank you for getting back to me. I always say the more you know the better. Is your daughters knees affected? Brenna has about 70 degree bend in both. I...
Michelle, Her knees are not really affected. The one is a little stiffer then the other. We got her the KAFO's because her quad muscles are weak. Dr. said that...
Did you have to request an aide? My son will be starting Kindergarten in the fall. I have an IEP with the school at the end of May to discuss his needs. I...
Hello, My name is Tina,and i have a one month old little girl with AMC. I was wondering if anyone has gone to Shriner's Hospital for Children? If so did any of...
How do you feel your son will do on his own? The teachers have their hands full with the rest of the students and will not be able to stop and help your son...
Yes we go to the Shriners. They are absolutely wonderful!! We go once a year for check ups. They have seen more cases of AMC and can give different advice...
HI MICHELLE, MY NAME IS JAVA AND MY SON HAS AMC. HE TO IS QUITE SEVERE. HIS HIPS ARE OUT AS WELL AND HE TOOK HIS FIRST STEPS IN DEC/O4 AND NOW HE IS OFF AND...
Tina, my daughter is 8. We had taken her to Shriner's in Lexington, KY. The overall treatment for us was good but it is 5 to6 hours away from us and our wait...
He has two/three aides that help him throughout the day at school. They switch off between the other students that need help. They also try to use a daily...
Hi my name is Keeley, I'm 22 years old and I was born with AMC. At the mo' I am waiting for a hip replacement so that I have more movement to walk more....
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