Hello and thanks for the reply. We have a special bottle for Bailey that is called a haberman and it has an extra long nipple and flow control, when she wants...
Wow! What an amazing journey you've been on. My son Scott who is now 12 has an interesting story as well. Some day I will have to write it down like you've...
Thanks for writing. I definatly think that this is all probably harder on us than on our daughter especially because she's so young and doesn't know that...
Hi I had the same problem, but I was able to access the web site in google.com, just type in the address www.geocities.com/mellyc_69/justin.html. It is very...
What your son has sounds just like what my son Dreyson has. We were lucky to find out it was Arthrogryposis when he was a year old. You are especially lucky...
There are time when Sarah is acutely aware that she is "different". Most of the time she just acts like a "normal" kid. She has a few friends but she is a ...
Melanie, Why did it take so long to find out what your son had? Aidan's pediatrician referred him to Shriner's at his very first appointment because we knew...
Hi Bekki, I was reading your message to Melanie and you mentioned something about weight splints that you use on Aidan. What exactly are these? Are they used...
I would also love to know were to get weights for toddlers. Janelle's right leg is so much weaker and smaller than the left. She has just started taking steps...
... I live in a small community, not many of that doctors here had seen it . In fact it wasn't until our son was in the hospital for RSV that one of the other...
It's amazing when they do those things we wondered if they would ever do, especially if the doctors say they will never do them. I just wanted to let you know...
Hi there..I was also wondering about the weights you are using..Are they proving to be effective?? How are they tolerated...My son needs that too! Thanks for...
Are you all parents?? i am 28 with arthrogryposis .. i would love to chat with anyone who may have questions.. ... they proving to be effective?? How are they...
Yes I'm a mom of twin 2 year old boys, one is challenged by Arthrogryposis, on is not.....If there was thing you wanted your parents to know what would they...
Hey I would love to talk with you. I am a parent my daughter's name is Ebony she'll be a year old next week she's already been through 4 surgeries. She's had...
Hi Tina, My baby has arthrogryposis and she is affected in all of her limbs. At 17 months she has only had one surgery. You mention your daughter has had...
Hi All, I made a typo. In the statement about her casting, I meant to say the position achieved after surgery, not at birth. Oops! Susie ... From: Susie...
let him do everything.. my parents never limited me to anything.. i am currently a criminal investigator with the attorney gernerals office. i went thru...
Hi, it's Tina mother of Ebony, some of you may know me some may not. Anyway I am forwarding this e-mail that was sent to me and I am asking everyone to send it...
Hey Susie- Well like I said my daughter has had a few surgeries. Her first one was a muscle biopsy and G-tube placement. The muscle biopsy didn't show anything...
Kelli, What I was talking about was weight-bearing splints for Aidan to be able to bear weight on his arms. All they are are little splints that he rests his...
I know the other day we were all asking about were to find weights for the kids to put on their legs or arms, and no one knew. Any how I spoke with my ...
Good thinking Christina.....Thanks........... Lisa ... Do you Yahoo!? Check out the new Yahoo! Front Page. www.yahoo.com [Non-text portions of this message...
Hi, I'm 23 years old female, from Northern Ireland and I have Arthrogryposis. I don't know anyone else with the same condition as mine, so its great that...
Hi, I would like to chat with you sometime. My grandson is 16 months old and has arthrogryposis. What is your screen name on AIM? or the yahoo messenger? My...
-Melanie, My son Justin, who will turn 5 in a couple weeks, is affected the way that Dreyson is. He also has a club foot and wears an AFO full time. He has...
Hello, I am Hunter's mum. Hunter is now 6 weeks old. He was born 13 weeks early, so he is now about 33+ weeks gestational age! Medically he is doing very...
Hi, I didn't catch your name. My name is Tina and my daughter was born with arthrogryposis. So, what type do you have? What areas of you body does it all...
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