Justin and Heidi, Gosh I remember when you guys first came on the loop when Robbie was just a newborn. So sorry to hear of all you are going thru. I saw the...
1122
Susie Baker
susiebake2001
Aug 1, 2004 9:50 pm
Hi Sonya, Yeaaaaa!! So happy for you on the birth of your baby girl. And even more happy to hear the good news that she is doing so much better already....
1123
Georgia
arthrogrypos...
Aug 4, 2004 8:49 pm
Hi Everyone I received this email from a friend and I thought several members who reside in a nursing home might find this helpful to them. It is very long....
1124
sonya king
goody2shoes1...
Aug 6, 2004 2:08 pm
Hi Susie, Thank you for your email. By the way, her name is Bailey Payge. She is still in the nicu in St. Louis. She had a muscle biopsy, gastrostomy, and...
1125
kelli peasley
santiamor2002
Aug 9, 2004 7:03 pm
Hi Sonya, Congragulations on your new little baby girl. I know that you must be relieved to finally be able to start the ball rolling now that you know what...
1126
sonya king
goody2shoes1...
Aug 10, 2004 12:09 am
Hello Kelli, Thank you for your email. Bailey does not have any respiratory problems, she was on a ventilator, but that was only after surgery. She had a g...
1127
onlyamone2000
Aug 10, 2004 3:31 pm
My name is Lorenzo Crescini and I'm Italian. These "Flashes on Good and evil" reflect the same mood characterizing the Flashes on the Holy Gospels and Turin's...
1128
ptgouin4
Aug 12, 2004 12:21 am
Thank you Susie B. for your post a week or so ago. I didn't know what kind of message board this really was, I mean what you guys talked about so thank you all...
1129
Bekki
b_ekk_i21
Aug 12, 2004 3:12 am
Hi everyone-I've posted on here a couple times before-I have a 7 month old son named Aidan with Amyoplsia (a type of Arthrogryposis). It involves his arms...
1130
Beth W.
pcosmommie
Aug 12, 2004 5:03 am
Our daughter is pretty involved with both arms, but she does tend to use her right arm more. I like to hand toys on her carseat for her to reach for and play...
1131
Susie Baker
susiebake2001
Aug 12, 2004 5:26 am
Hi, My baby girl uses her right arm more than her left also. I just try to encourage her to use her left arm by handing things to her on that side, and just...
1132
kelli peasley
santiamor2002
Aug 12, 2004 9:14 pm
Hi Sonya, By now you are hopefully home and getting into a real routine. My baby also spent 1 month in the hospital, I went up three times a day to be with...
1133
pcosmommie
Aug 18, 2004 4:23 am
Hi! My friend has a newborn and called to tell me about a seat she had ordered for her daughter. She was excited and wanted Julia to try it out. We went to...
1134
Roger
rogerkroger2003
Aug 26, 2004 2:09 am
Hi, My name is Roger I am disabled with arthrogryposis, I am in 20s,living in London,single.I love meeting new people and make friends.I like to make friends...
1135
Brenda Quintana
b_quintana2001
Aug 26, 2004 4:57 pm
Hi Roger my name is Brenda Quintana and I have a 10 year old son with arthrogryposis he would love to know how you are doing now that you are twice his age. So...
1136
kelli peasley
santiamor2002
Aug 30, 2004 7:51 pm
Hello to everyone, I have a question concerning anesthesia for our AMC children. My child is being casted for sever infantile scoliosis and thus every three...
1137
Beth W.
pcosmommie
Aug 30, 2004 8:23 pm
Hey Kelli! I would love to hear how he is doing after his first cast! I am not sure about anestesia... we are looking at our first surgery soon. I would be...
1138
kelli peasley
santiamor2002
Aug 30, 2004 11:10 pm
Hi Beth, it is nice to hear from you. I was thinking about you the other day and wondered if you knew about Santis success with the cast or not. I am so glad...
1139
Susie Baker
susiebake2001
Aug 31, 2004 12:14 am
Hi Kelli, Unfortunately, I don't have an answer for you about the anesthesia. I just wanted to let you know I know what you mean about the vein thing. My...
1140
gammarena@...
gammarena
Aug 31, 2004 12:21 am
Susie Baker <ssbaker6@...> wrote:Hi Kelli, Unfortunately, I don't have an answer for you about the anesthesia. I just wanted to let you know I know...
1141
Beth W.
pcosmommie
Aug 31, 2004 3:28 am
Hi Kelli! Its great to hear he did so well! We are definitely leaning towards casting, but she needs her foot surgery first and to heal from that. I called...
1142
Betty Hicks
missbetty38
Aug 31, 2004 4:54 pm
Kelli, I too was put under a lot also and I personally feel that the stuff they used for the mask is very bad, I attribute to that for the cause of my seizures...
1143
Tricia Decker
crzynyldy
Aug 31, 2004 6:03 pm
Kelli, In my experiance with my daughter--- She has 2 surgery's on her feet and they put her under both times with the mask. I think that was the best way in...
1144
kelli peasley
santiamor2002
Aug 31, 2004 11:32 pm
Hi Marin, Believe it or not I just realized I had gotten a message from you, I am so sorry it took so long to respond.. Thanks for all the great ideas and...
1145
Sandi Waymire
sandiwaymire
Sep 1, 2004 4:24 pm
Hi all. I started working full time so have very little time to "chat". I did want to get in my 2 cents worth here though. On casting. We did casts on ...
1146
Georgia
arthrogrypos...
Sep 2, 2004 9:39 pm
Hello everyone, We are starting a conference group and would like to invite you to join us on Tuesdays from 11:00 - 3:00 pm Arizona time. The first conference...
1147
brent_a_p
Sep 3, 2004 2:34 am
My son Matthew is 3 1/2 and has had 5 surgeries so far. They do have trouble finding a vein, once they used a vein in his neck. They have always given him a...
1148
adelezee
Sep 3, 2004 2:35 am
Hello fellow list members, I am the parent of a 15 year old boy with Arthrogryposis. It's a long story but he was only diagnosed a few years ago. No one...
1149
maddiebb2
Sep 4, 2004 1:27 pm
Hi- gabriel is a 10 month old joy to our family and he has arthrogryposis. we are battling some other problems he has and are wondering if any others out there...
1150
kelli peasley
santiamor2002
Sep 5, 2004 7:32 pm
Hi Gayla, I was wondering what type of scoliosis does your baby have? What level of curve rate and RVA measurement, all important things to know. If he is...
