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Messages 2738 - 2767 of 2767   Oldest  |  < Older  |  Newer >  |  Newest
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2738
Thank you for the insight. I have talked to my daughter about notifying shriners and there is one in Boston, not too far from us. I am glad to hear that each...
Danette Bashaw
danette_bashaw
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Sep 22, 2009
3:08 pm
2739 Danette
danette_bashaw
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Sep 22, 2009
3:21 pm
2740
My daughter has a feeding tube, write me off list. I can even call you. Bev...
Beverly HansetBurch
beverlyhanse...
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Sep 22, 2009
3:40 pm
2741
I took my 2 year old daughter Ruthie (elbow and wrist arthrogryposis) to Scottish Rite in Dallas yesterday and they recommended wrist surgery where they would...
preachertx2002
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Sep 23, 2009
10:29 pm
2742
Has anyone with an infant that has arthro ever experience swelling at all? If so, did they know the cause and what course of action do you know they took,...
Danette
danette_bashaw
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Sep 24, 2009
12:28 am
2743
Scottish rite is a great hospital that's were they been seeing my son since he was 3 days old . I really recommend u put your daughter in there hands although...
Zayra
delsweet2003
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Sep 24, 2009
8:34 pm
2744
Check out http://www.shrinershq.org/hospitals/main/ 100% free service. They will transport you for free too. Excellent service. They have dealt with...
j_figlio
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Sep 24, 2009
10:48 pm
2745
Hi Ginnie! Reading your post was like reading what our 2 year old son, Aaron, just had done here in San Antonio in July. He also has Arthrogryposis affecting...
casdog2003
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Sep 24, 2009
10:49 pm
2746
Thanks Lisa.  I would love to continue to hear how your son does.  One thing I wanted to make sure is that Ruthie will still be able to flex her wrist for...
Trent Henderson
preachertx2002
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Sep 24, 2009
11:35 pm
2747
Ginny, My son also goes to Scottish Rite in Dallas, the people there are nothing short of angels on earth. He had surgery in March on his feet and the whole...
jaimedunstan
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Sep 25, 2009
11:01 pm
2748
My only advice is talk to your doctor about the pros and cons of waiting a year.  A recent Mayo clinic study has linked multiple surgeries before the age of...
hilary sallee
hils4x4
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Sep 26, 2009
5:09 am
2749
Now that his left wrist is in the neutral position, we are doing ROM exercises that he's not too crazy about. I think flexion will come in time, however, his...
casdog2003
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Sep 28, 2009
8:48 pm
2750
Lisa- So is he not able to actively flex anymore?  One of my concerns too is that they are going to cast her above her elbow and I am worried that she will...
Trent Henderson
preachertx2002
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Sep 29, 2009
12:22 am
2751
Dear Danette, First of all, congratulations for your grandson. My best to you and your children. I have a daughter, 10yo with AMC, AMyoplacia (clubfeet,...
Dimitra Giannopoulou
gem25396
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Oct 1, 2009
6:29 pm
2752
Danetta, Congratulations again on your new bundl of joy. I know your family will be getting all kinds of suggestions and ideas. My oldest child who is now 13...
Emily Diehl
e_kay_d
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Oct 1, 2009
6:43 pm
2753
hello im sorry i havent responded i didnt find my password i would like to share pictures with u if you would like...my son is the same way he is very...
cynthia reyes
cindy_reyes12
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Oct 26, 2009
2:57 am
2754
Hello Sandi thank u for the advice this is so true only we know how our kids feel and what they really need we know them better than any doctor best of luck. ...
cynthia reyes
cindy_reyes12
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Oct 26, 2009
3:02 am
2755
Yup, our Son is 4 and it was always a battle to get him to eat. He's very picky, but will opt for a spinich leaf over a sweet. I guess that's a good thing. The...
Jake Steingart
reontv
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Oct 26, 2009
1:06 pm
2756
Yes, the feeding problem is common.  I have twin boys, one with AMC and one without.  The twin without eats like a horse, eats whatever you put in front of...
hilary sallee
hils4x4
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Oct 26, 2009
3:22 pm
2757
Hi my name is Steinunn and im from Iceland. Im 35 weeks Pregnant and the doctors found out when i was 22 weeks pregnant that something was wrong because the...
steinunnhlin
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Nov 1, 2009
2:24 pm
2758
My son was born with Arthrogryposis, please check out our blog at baby-Jackson.blogspot.com & amcsupport.org, lots of great ppl Willing to help there Sent from...
Doris Heckert
dijdheckert
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Nov 1, 2009
2:42 pm
2759
My Bonnie was born at 35 weeks with arthrogryposis. We also knew about it before her birth. Although scary, it did get easier. She is quite the kid now! She...
Beverly R Hanset-Burch
beverlyhanse...
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Nov 1, 2009
4:20 pm
2760
First of all our best wishes for your upcoming baby. My daughter was not diagnosed before birth. I had a c-section because I was not going on labour, giving...
Dimitra Giannopoulou
gem25396
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Nov 1, 2009
7:32 pm
2761
I was born only 2 weeks early... Rgds! Urska ________________________________ From: Dimitra Giannopoulou <dimigian@...> To:...
Urska Markelj
vran_uncas
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Nov 1, 2009
7:38 pm
2762
our son has it in his knees too. He was late, 44 weeks and he did not have to stay in the hospital after birth as it's not a life threatening thing, or...
Jake Steingart
reontv
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Nov 2, 2009
1:00 am
2763
Hi Steinunn. Welcome to this group.. Just to let you know I lived in Iceland Reykjavik for one year in 1986, have so many great memories of your beautiful...
kelli peasley
santiamor2002
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Nov 2, 2009
1:26 pm
2764
Thank you so much for that Kelli Peasley . Yes its nice to live in Iceland. My boyfreind is from Ireland and he thinks its very nice to live here. The doctors...
Steinunn Hlín Ţ...
steinunnhlin
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Nov 2, 2009
3:51 pm
2765
I am sorry to hear about your diagnosis, and I know that it is hard for you right now.  My son Jack was born with Distal Arthrogryposis, and at first he...
hilary sallee
hils4x4
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Nov 2, 2009
4:21 pm
2766
Does anyone know where to buy CHEAP elastic waist pants but that have an easy to open fly for boys? At an easily available place, not a specialty store....
gumyee
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Nov 6, 2009
7:35 pm
2767
WALMART ... From: gumyee <gumyee@...> Subject: [Arthrogryposis Support Group] elastic waist pants with fly? To:...
Jill Dude
freakydude1357
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Nov 7, 2009
9:34 pm
Messages 2738 - 2767 of 2767   Oldest  |  < Older  |  Newer >  |  Newest
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