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amc_adults · Adults With AMC (Arthrogryposis)

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Group Information

  • Members: 604
  • Category: Disabilities
  • Founded: Jul 4, 2001
  • Language: English
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Messages 3219 - 3248 of 3624   Oldest  |  < Older  |  Newer >  |  Newest
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3219 Tiffany Holmlund
tiny292796 Send Email
Dec 30, 2008
11:37 pm
I had the surgrey every six months on both hips till i was three and was suppose to have it done every three years after but never had it again. i do have some...
3220 Beverly R Hanset-Burch
beverlyhanse... Send Email
Dec 30, 2008
11:41 pm
Thank you. We have opted not at this time. Especially since Bonnie has issues with anesthesia. On a positive note, she did stand independently for 2 seconds...
3221 Tiffany Holmlund
tiny292796 Send Email
Dec 30, 2008
11:46 pm
thats cool i have issues with latev so i have trouble too with hospitals. i hope all goes good for u ... From: Beverly R Hanset-Burch...
3222 kimberlymoore000@...
kimberlymoor... Send Email
Dec 31, 2008
12:00 am
My son Maddix is three he had surgery @ one year on his hip! It was dislocated. He has no trouble are pain. He has a little limp but he can walk. Email if you...
3223 Beverly R Hanset-Burch
beverlyhanse... Send Email
Dec 31, 2008
12:06 am
She has both dislocated. I was told 50/50 chance of success when I was researching this stuff. ... From: kimberlymoore000@... To:...
3224 kimberlymoore000@...
kimberlymoor... Send Email
Dec 31, 2008
12:13 am
That's the same chance we had. We where also told it could dislocate after surgery 2. As of now they are still in. He has to have an xray every three months 2...
3225 kimberlymoore000@...
kimberlymoor... Send Email
Dec 31, 2008
12:15 am
Did you happen 2 have any surgery on your arms? Sent from my BlackBerry Smartphone provided by Alltel ... From: Tiffany Holmlund <tiny292796@...> Date:...
3226 Brenda
beekayn Send Email
Dec 31, 2008
2:20 am
Hi Bev   Both of my hips were dislocated at birth. The sockets had not developed.  I had surgery on both hips, I believe at 18 months...  they were each...
3227 kimberlymoore000@...
kimberlymoor... Send Email
Dec 31, 2008
11:06 pm
I have a three year old his left hip didnt grow in the socket and had 2 be put back in. That was probably the best thing I could have done because he walkes...
3228 whopinwheels Send Email Dec 31, 2008
11:41 pm
I would say if he seems to be learning to use his arms as they are there is no point in undergoing unnecessary surgery. most kids find pretty creative ways to...
3229 Tiffany Holmlund
tiny292796 Send Email
Jan 1, 2009
7:26 am
yes i did but it did not work my left arm is still at 96 degrees and can't be fixed. it is smarter to leave it alone i think for pain ... From: whopinwheels...
3230 Tiffany Holmlund
tiny292796 Send Email
Jan 1, 2009
7:30 am
yes but no good came out of it sorry to say but my arm won't straghten and it hurts more now sence it was done when i was 16. ... From:...
3231 kimberlymoore000@...
kimberlymoor... Send Email
Jan 1, 2009
7:20 pm
You are right! Its amazing the things that he has done Sent from my BlackBerry Smartphone provided by Alltel ... From: "whopinwheels&quot;...
3232 kimberlymoore000@...
kimberlymoor... Send Email
Jan 2, 2009
3:26 am
Thanks a lot for the info on the arm surgery! Iam glad the I found this site so that I can talk 2 others about his condition. I have one friend that lives...
3233 kimberlymoore000@...
kimberlymoor... Send Email
Jan 2, 2009
3:26 am
Happy new year! Sent from my BlackBerry Smartphone provided by Alltel ... From: kimberlymoore000@... Date: Wed, 31 Dec 2008 23:46:58 To:...
3234 Tiffany Holmlund
tiny292796 Send Email
Jan 2, 2009
4:30 pm
i live in decatur illinois ... From: kimberlymoore000@... <kimberlymoore000@...> Subject: Re: [Adults AMC] Re: Question To:...
3235 whopinwheels Send Email Jan 9, 2009
3:30 am
Hi, I am wondering if there are any moms on this list who themselves have Arthrogryposis? If so, how did having arthrogryposis affect your pregnancy? Did you...
3236 who let the dogs out?
chris1h23 Send Email
Jan 9, 2009
5:38 pm
Intimacy for the disabled..................................................... First I want to wish all a happy new year. This group is now going into in 7th...
3237 tammy
wheeliemama2003 Send Email
Jan 9, 2009
7:49 pm
Hi my name is Tammy and I have a son and I have amc I just wanted to tell you how it was being pregnat please email me back ok tammy ... From: whopinwheels ...
3238 katebythesea2000
katebythesea... Send Email
Jan 10, 2009
2:03 am
Hi Lauren, I have AMC with all 4 limbs affected and am 5ft tall. I had my daughter when I was 26, I am now 53. Aside from back pain I had no problems during my...
3239 Amanda Bartunek
cabart1 Send Email
Jan 10, 2009
6:05 pm
Hi   I have AMS and affected in all 4 limbs.. w/ very limited mobility and I have given birth to 3 beautiful blonde hair girls.. Pregnancy went great! Regular...
3240 hatem adgam
ha4402002 Send Email
Jan 10, 2009
9:31 pm
Is there any treatment for this desease ?   [Non-text portions of this message have been removed]...
3241 Lisa Shardlow
final_destin... Send Email
Jan 11, 2009
12:26 am
It is not a disease, it is a physical disability To: amc_adults@yahoogroups.com From: ha4402002@... Date: Sat, 10 Jan 2009 13:31:27 -0800 Subject:...
3242 Denise Patterson
deedee638 Send Email
Jan 11, 2009
2:12 am
There is no known cure.  Right now children are treated with physical therapy, splinting,  and if necessary surgery.     Denise Dogs are not our whole...
3243 S Armstrong
sarmstrong12@... Send Email
Jan 11, 2009
3:08 am
Dear AMC people Thankyou Lisa for correcting that AMC is a Disability not a disease ,people might get confused Feel free to email me , I live in Perth. Western...
3244 Theresa Lucas
terry2745 Send Email
Jan 11, 2009
3:10 am
its not a disease, Its a condition?.......A ?"Diff"ability Is there any treatment for this desease ? ~Theresa Lucas http://www.theresalucas.com Arthrogryposis...
3245 Lisa Shardlow
final_destin... Send Email
Jan 11, 2009
2:14 pm
you're welcome Sharon, i just don't like when people call AMC, or any other disability, a disease because it makes it sound contageous or something. i live in...
3246 S Armstrong
sarmstrong12@... Send Email
Jan 11, 2009
3:41 pm
Dear Lisa Its sounds like you are doing very well , How does amc effect you ?I have stiff knees , My ankels are fused through having club feet ,my hips were...
3247 Lisa Shardlow
final_destin... Send Email
Jan 15, 2009
3:35 pm
hi Sharon sorry, i've been really busy with college and my boyfriend so i haven't been able to check my computer much. AMC affects me in all 4 limbs, my ankles...
3248 S Armstrong
sarmstrong12@... Send Email
Jan 16, 2009
2:30 am
Hi Lisa Thanks for your email ,I saw your photo very nice , You are very brave ,you have the whole package when it comes to AMC , How is the weather in the UK,...
Messages 3219 - 3248 of 3624   Oldest  |  < Older  |  Newer >  |  Newest
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