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amc_adults · Adults With AMC (Arthrogryposis)
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Messages 3207 - 3236 of 3338   Oldest  |  < Older  |  Newer >  |  Newest
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3207
My daughter is 26 and has AMC. She under went a wrist fussion to straighten out her right wrist. My question is..Do any of you have problems getting IV's put...
msbells40
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Dec 6, 2008
5:21 pm
3208
Linda, I have the same problem with veins, but having to give blood every 6 months, I just got used to having them poke me until they find one. One thing they...
Betty Hicks
missbetty38
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Dec 6, 2008
5:54 pm
3209
I had my wrist fused in 1966, glad it was done. I've hand many other surgeries,and have also experienced the same difficulties with vein access.One other tip I...
katebythesea2000
katebythesea...
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Dec 6, 2008
7:09 pm
3210
Hi, I am glad to hear there are others with the same problems with IVs and blood draws. I have avoided doctors for many years because of this. Unless a doc...
Marijo Wimmer
mwimmer2006
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Dec 6, 2008
8:50 pm
3211
The vein problem is a chronic one for many who have AMC. I was told, because of the lack of muscles, the veins “roll away” when the needle goes in because...
Patty Clarke
a1a57995@...
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Dec 6, 2008
8:51 pm
3212
I don't have AMC, they think my veins look great, but they always roll. Ask for a pediatric butterfly and it goes a bit easier. And a good phlebotomist helps...
Beverly R Hanset-Burch
beverlyhanse...
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Dec 6, 2008
10:28 pm
3213
I am glad to know others have the same vein problem my daughter has. I will tell her to join this group. Today has been a better day for her. The pain meds are...
msbells40
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Dec 7, 2008
12:56 am
3214
Hi Linda, My name is Morne. I'm 33 and I have AMC too. I am surprised that your daughter has had surgery at such a late stage in her life. It is/was my...
morne vanWyk
vanwyk.morne
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Dec 7, 2008
2:06 am
3215
Her doctor said that hand writing comes from the Brain and she will be able to write just like before maybe even better. Her hands were in such a bad position...
msbells40
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Dec 8, 2008
12:17 am
3216
Hi, my names Ian i just joined this group today, or rather this morning (it's 3:40 A.M EST)Im 20 years old and luckily only have Arthropriposis in the wrists...
ianroloson
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Dec 11, 2008
1:57 pm
3217
I hope you all have a safe and wonderful holiday season! Chris Johnson Founder/Director, Mid-Atlantic AMC Support ...
Christopher
cpjohns964
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Dec 25, 2008
4:32 am
3218
Hi Bev, I had surgery to correct a dislocated left hip when I was 6 months old. I am 23 years old now and have no residual problems or pain. From my experience...
whopinwheels
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Dec 30, 2008
11:14 pm
3219
I had the surgrey every six months on both hips till i was three and was suppose to have it done every three years after but never had it again. i do have some...
Tiffany Holmlund
tiny292796
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Dec 30, 2008
11:37 pm
3220
Thank you. We have opted not at this time. Especially since Bonnie has issues with anesthesia. On a positive note, she did stand independently for 2 seconds...
Beverly R Hanset-Burch
beverlyhanse...
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Dec 30, 2008
11:41 pm
3221
thats cool i have issues with latev so i have trouble too with hospitals. i hope all goes good for u ... From: Beverly R Hanset-Burch...
Tiffany Holmlund
tiny292796
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Dec 30, 2008
11:46 pm
3222
My son Maddix is three he had surgery @ one year on his hip! It was dislocated. He has no trouble are pain. He has a little limp but he can walk. Email if you...
kimberlymoore000@...
kimberlymoor...
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Dec 31, 2008
12:00 am
3223
She has both dislocated. I was told 50/50 chance of success when I was researching this stuff. ... From: kimberlymoore000@... To:...
Beverly R Hanset-Burch
beverlyhanse...
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Dec 31, 2008
12:06 am
3224
That's the same chance we had. We where also told it could dislocate after surgery 2. As of now they are still in. He has to have an xray every three months 2...
kimberlymoore000@...
kimberlymoor...
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Dec 31, 2008
12:13 am
3225
Did you happen 2 have any surgery on your arms? Sent from my BlackBerry Smartphone provided by Alltel ... From: Tiffany Holmlund <tiny292796@...> Date:...
kimberlymoore000@...
kimberlymoor...
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Dec 31, 2008
12:15 am
3226
Hi Bev   Both of my hips were dislocated at birth. The sockets had not developed.  I had surgery on both hips, I believe at 18 months...  they were each...
Brenda
beekayn
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Dec 31, 2008
2:20 am
3227
I have a three year old his left hip didnt grow in the socket and had 2 be put back in. That was probably the best thing I could have done because he walkes...
kimberlymoore000@...
kimberlymoor...
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Dec 31, 2008
11:06 pm
3228
I would say if he seems to be learning to use his arms as they are there is no point in undergoing unnecessary surgery. most kids find pretty creative ways to...
whopinwheels
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Dec 31, 2008
11:41 pm
3229
yes i did but it did not work my left arm is still at 96 degrees and can't be fixed. it is smarter to leave it alone i think for pain ... From: whopinwheels...
Tiffany Holmlund
tiny292796
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Jan 1, 2009
7:26 am
3230
yes but no good came out of it sorry to say but my arm won't straghten and it hurts more now sence it was done when i was 16. ... From:...
Tiffany Holmlund
tiny292796
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Jan 1, 2009
7:30 am
3231
You are right! Its amazing the things that he has done Sent from my BlackBerry Smartphone provided by Alltel ... From: "whopinwheels"...
kimberlymoore000@...
kimberlymoor...
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Jan 1, 2009
7:20 pm
3232
Thanks a lot for the info on the arm surgery! Iam glad the I found this site so that I can talk 2 others about his condition. I have one friend that lives...
kimberlymoore000@...
kimberlymoor...
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Jan 2, 2009
3:26 am
3233
Happy new year! Sent from my BlackBerry Smartphone provided by Alltel ... From: kimberlymoore000@... Date: Wed, 31 Dec 2008 23:46:58 To:...
kimberlymoore000@...
kimberlymoor...
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Jan 2, 2009
3:26 am
3234
i live in decatur illinois ... From: kimberlymoore000@... <kimberlymoore000@...> Subject: Re: [Adults AMC] Re: Question To:...
Tiffany Holmlund
tiny292796
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Jan 2, 2009
4:30 pm
3235
Hi, I am wondering if there are any moms on this list who themselves have Arthrogryposis? If so, how did having arthrogryposis affect your pregnancy? Did you...
whopinwheels
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Jan 9, 2009
3:30 am
3236
Intimacy for the disabled..................................................... First I want to wish all a happy new year. This group is now going into in 7th...
who let the dogs out?
chris1h23
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Jan 9, 2009
5:38 pm
Messages 3207 - 3236 of 3338   Oldest  |  < Older  |  Newer >  |  Newest
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