... From: Chris Molesworth Date: 03/10/2008 19:30:12 Subject: Fw: I'll See If You Read my E-Mails What would you do if every time you wanted someone they would...
Does anyone know of a place that makes custom winter gloves? or what solutions do you use?. I know with my hands being how they are. The winter months are...
As many know, next years Arthrogryposis Multiplex Congenita Support, Inc convention is being held in Philadelphia, PA. Just released...........the dates...
I currently have less than 18% lung capacity and am only using oxygen at night. One thing I've learned is that if I keep my weight down, a little on the skinny...
I currently have less than 18% lung capacity and am only using oxygen at night. One thing I've learned is that if I keep my weight down, a little on the skinny...
I need some information. I have AMC and scoliosis. I have been able to walk and stand all my life. Now however, there is alot of pain in my legs and it can't...
Hey Roxi I can understand your frustration cause I am going thru that too... I am 34
going on 35 this month.. But in a way I have my caregivers helping me...
I've been there. I found that the problem wasn't my legs but my spine. I limped and it finally wore our the lower vertebrae to the point that it pressed on...
IN THE LAST YEAR MY LEGS ARE DOING THE SAMETHING AND MY DOCTOR JUST BLEW IT OFF SAYS ITS NORMAL WITH AMC BUT SHE HAS NO IDEA. I SHOULD NOT BE GETTING WORSE BUT...
I am 4' 10" and 78 pounds and 38 years old. My hips are fine except for some rotation and arthritis. My orthopedic doctor has never seen a case of this except...
I already have a steel rod fused to my spine and have since I was 10. I'll mention the nerve test to my doctor. If either you are jazzy_t wouldn't mind sharing...
i'm not trying to be rude but does the rod help or make it worse? i have to decide if thats a option or not because i have 2 kids and i need to keep being...
I think it depends on each situation... I have a rod due to scoliosis and also have restrictive lung disease. I had the rod put in 1991. I know they have...
Intimacy for the disabled.................................................... Have been around for almost six years and has been over the course active,not...
To those who received the spam FW chain letter, I'd like to apologize to all whom received the forwarded chain letter: Subject: 7 yr old with Cancer (this...
I want to talk specifically to people that have had this surgery, or have had their children have this surgery. I want the good, the bad the ugly. I also want...
My daughter is 26 and has AMC. She under went a wrist fussion to straighten out her right wrist. My question is..Do any of you have problems getting IV's put...
Linda, I have the same problem with veins, but having to give blood every 6 months,
I just got used to having them poke me until they find one. One thing they...
I had my wrist fused in 1966, glad it was done. I've hand many other surgeries,and have also experienced the same difficulties with vein access.One other tip I...
Hi, I am glad to hear there are others with the same problems with IVs and blood draws. I have avoided doctors for many years because of this. Unless a doc...
The vein problem is a chronic one for many who have AMC. I was told, because of the lack of muscles, the veins “roll away” when the needle goes in because...
Patty Clarke
a1a57995@...
Dec 6, 2008 8:51 pm
3212
I don't have AMC, they think my veins look great, but they always roll. Ask for a pediatric butterfly and it goes a bit easier. And a good phlebotomist helps...
I am glad to know others have the same vein problem my daughter has. I will tell her to join this group. Today has been a better day for her. The pain meds are...
Hi Linda, My name is Morne. I'm 33 and I have AMC too. I am surprised that your daughter has had surgery at such a late stage in her life. It is/was my...
Her doctor said that hand writing comes from the Brain and she will be able to write just like before maybe even better. Her hands were in such a bad position...
Hi, my names Ian i just joined this group today, or rather this morning (it's 3:40 A.M EST)Im 20 years old and luckily only have Arthropriposis in the wrists...
Hi Bev, I had surgery to correct a dislocated left hip when I was 6 months old. I am 23 years old now and have no residual problems or pain. From my experience...
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