Intimacy and relationship,Are you looking for relationship



But feel because of your disability no body would want you??or that
maybe you can't perform as the so call normal person?

This group might help you,In dealing with this problem you need to
first except yourself and build up your self esteem,,,Just because you
can't get erection don't mean your life if over,far from it..There
many other things to do to please your partner...

If your a person that complains all the time and blame the world for
your life,then its best not to join this group...

We look for people that are willing to take chances and work more on
being positive...

You need to have information on profile to join the group...This group
has been around for almost 6 years and we have over 1,700 member...


http://groups.yahoo.com/group/INTIMACYFORTHEDISABLED/

hi,
i'm sort of new to posting to group boards, so please forgive me if
this question has already been addressed.

i have amc, and use a specialized power chair with a seat elevator for
daily living.  i do have medicaid, but was told it won't pay to
replace such a specialized chair, which is now old.

i've been trying to research whether there are grants out there for
wheelchairs, but i'm having serious trouble finding any info.  i've
tried independent living centers, march of dimes and lists of
government grants.

if anyone knows of other places to try, i would really be grateul for
your advice.

thanks very much!

Sorry I can't help you directly but I suggest you contact your local library's
reference department and ask them to help you.  I'm sure they will be able to
come up with some suggestions for where to look.
Good luck!
Becky

--- On Fri, 9/12/08, s.w. <scar2d2w@...> wrote:
From: s.w. <scar2d2w@...>
Subject: [Adults AMC] equipment funding
To: amc_adults@yahoogroups.com
Date: Friday, September 12, 2008, 9:58 PM











             hi,

i'm sort of new to posting to group boards, so please forgive me if

this question has already been addressed.



i have amc, and use a specialized power chair with a seat elevator for

daily living.  i do have medicaid, but was told it won't pay to

replace such a specialized chair, which is now old.



i've been trying to research whether there are grants out there for

wheelchairs, but i'm having serious trouble finding any info.  i've

tried independent living centers, march of dimes and lists of

government grants.



if anyone knows of other places to try, i would really be grateul for

your advice.



thanks very much!





























[Non-text portions of this message have been removed]

hey becky have you tried independent wheelchair services exp,united rehab in tx 
but go to someone like that they helped me get a new one hope this helps

--- On Sat, 9/13/08, becky deaver <beck0912@...> wrote:

From: becky deaver <beck0912@...>
Subject: Re: [Adults AMC] equipment funding
To: amc_adults@yahoogroups.com
Date: Saturday, September 13, 2008, 2:01 PM






Sorry I can't help you directly but I suggest you contact your local library's
reference department and ask them to help you.  I'm sure they will be able to
come up with some suggestions for where to look.
Good luck!
Becky

--- On Fri, 9/12/08, s.w. <scar2d2w@yahoo. com> wrote:
From: s.w. <scar2d2w@yahoo. com>
Subject: [Adults AMC] equipment funding
To: amc_adults@yahoogro ups.com
Date: Friday, September 12, 2008, 9:58 PM

hi,

i'm sort of new to posting to group boards, so please forgive me if

this question has already been addressed.

i have amc, and use a specialized power chair with a seat elevator for

daily living. i do have medicaid, but was told it won't pay to

replace such a specialized chair, which is now old.

i've been trying to research whether there are grants out there for

wheelchairs, but i'm having serious trouble finding any info. i've

tried independent living centers, march of dimes and lists of

government grants.

if anyone knows of other places to try, i would really be grateul for

your advice.

thanks very much!











[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Have you tried appealing the medicaid denial?  I know it isn't common
but if you can get a healthcare professional to give detailed and
specific reasons why you need the seat lifter, and how it would be
cost effective to do so, they may agree.  It is important to include
areas where the seat lifter makes it so medicaid does not have to pay
for support personnel to do the same activity without the lifter.  If
you can, video the lifter in use and what happens if you don't have
the lifter.  (Pictues are worth so much as it makes you more than a
piece of paper but rather a functioning human with special needs.)
Explain the cost of the additional part in terms of medical dollars
spent for  support to do the activities with human support.

If the seat lifter makes you more employable, make sure they know
it.  If you can't be employed because your chair isn't working or it
isn't correct, it will ultimately cost much more than it would to
approve the upcharged parts and they should know that too.

If they are unwilling to pay for the adaptations, get them to agree
to pay for portions of that specific chair so you only have to find
find funding for parts of the chair rather than all of the chair.
Medicaid is tough as it hold vendors to a higher standard.  The
vendor can't balance bill you for a chair that they agreed to pay for
so the vendor is expected to take the hit on what is denied.  If you
can get it in writing from medicaid that they will pay for "x, y, and
z", then maybe you can get "a, b, and c" paid by someone else. Do not
look for that agreement until you have exhausted the first line of
action which is appeal with ammunition as defined above.

Hope this helps you and anyone else in this same quandry.  Strong
letter writing puctuated with pictures/ videos, really makes a
difference when appealing the 1st, 2nd, and 3rd time.

medicaid will replace motorized chairs every 7 years.
Medicaid will replace batteries, and other parts as long along the
way, per doctors orders.
The only way they will replace sooner is if the chair is utterly
irreparable.
With that you also need a well written document from your doctor/
therapist supporting this need.
If you need customization,  your doctor absolutely MUST include that
in the paperwork with specific reasons.
It is a lot of paperwork and time consuming, but in the end if that is
what you need it is worth it.
The key is to stay on the ball with the distributor as they are the
ones dealing with medicaid.
Also, make sure the distributor adhere's to all the customizations
your doctor has written up for you.

Is this your first replacement you are getting??
When was the last time medicaid paid for repairs on your chair?

good luck
mocha

On Sep 12, 2008, at 8:58 PM, s.w. wrote:

> hi,
> i'm sort of new to posting to group boards, so please forgive me if
> this question has already been addressed.
>
> i have amc, and use a specialized power chair with a seat elevator for
> daily living. i do have medicaid, but was told it won't pay to
> replace such a specialized chair, which is now old.
>
> i've been trying to research whether there are grants out there for
> wheelchairs, but i'm having serious trouble finding any info. i've
> tried independent living centers, march of dimes and lists of
> government grants.
>
> if anyone knows of other places to try, i would really be grateul for
> your advice.
>
> thanks very much!
>
>
>



[Non-text portions of this message have been removed]

these are great suggestions, everyone.  thanks so much!



[Non-text portions of this message have been removed]

Hi.

I have medicare medicaid and you were told right they will not pay over 4 grand
for a elec. w/chair. I'm not sure about you but I also have the elevate on mine
and ya it ran around 17 grand. I got mine covered through state/government
rehabilitation services. Since you are using gov health care coverage you
already meet the intial need for disability aides required to get aide for
assistive equipment, if you are in school or are actively pursuing
employment/employeed then you qualify and rehab services will cover all
equipment needed to be a productive member of society.


Ally



"Here I sit wondering what everyone wonders. The three questions that
no one seems to know how to answer. 3 top UNANSWERED questions of the
Universe are:

1. Why am I here?

2. What is my purpose?

3. What is that smell?"

--- On Fri, 9/12/08, s.w. <scar2d2w@...> wrote:
From: s.w. <scar2d2w@...>
Subject: [Adults AMC] equipment funding
To: amc_adults@yahoogroups.com
Date: Friday, September 12, 2008, 8:58 PM











             hi,

i'm sort of new to posting to group boards, so please forgive me if

this question has already been addressed.



i have amc, and use a specialized power chair with a seat elevator for

daily living.  i do have medicaid, but was told it won't pay to

replace such a specialized chair, which is now old.



i've been trying to research whether there are grants out there for

wheelchairs, but i'm having serious trouble finding any info.  i've

tried independent living centers, march of dimes and lists of

government grants.



if anyone knows of other places to try, i would really be grateul for

your advice.



thanks very much!





























[Non-text portions of this message have been removed]

Hi,

You can see a list of my groups on Grouply at the link below. Maybe you'll find
some you want to join.

Betty

Here's the link:
http://www.grouply.com/register.php?tmg=904210&vt=7286695





====================
This message was posted by a fellow group member who uses Grouply instead of
email to access this group. Grouply blocks additional invitations from being
sent to this group by anyone for 30 days. Group owners can permanently block
future invitations. For more on how Grouply maintains privacy and protects you,
see http://blog.grouply.com/protect/ .




[Non-text portions of this message have been removed]

Hello Everyone!

This is Tracy, I have a question for other AMC'ers...  I developed
asthma a few years ago i would say about 10 years or so... well
recently i was having a hard time breathing and shortness of breath
when i got up to walk and so forth...  i went to the er for a breathing
treatment but didnt seem to help much went to the family dr and she
sent me to asthma dr. he put me in the hospital to get rid of the
weezing and such and was sent home on oxygen... now i have had a
pulmonary test done and that showed my lung capacity at 38% so has
anyone else experienced this????  and if so can someone please explain
their experience?

Tracy

-------Original Message-------

From: Chris Molesworth
Date: 03/10/2008 19:30:12
Subject: Fw: I'll See If You Read my E-Mails



















What would you do if every time you wanted someone they would never be
there?

What  would you do if for every moment you were truly happy there  would be
10 moments of sadness?

What  would you do if your best friend died tomorrow and you never  got to
tell them how you felt?

So, I  just wanted to say, even if I never talk to you again in  my life,
you are special to me and you have made a difference  in my life.

I look up  to you, respect you, and truly cherish you.

Send this  to all your friends, no matter how often you talk, or how close
you are, and send it to the person who sent it to you.

Let old  friends know you haven't forgotten them, and tell new friends you
never will.

< /SPAN>Remember,  everyone needs a friend, someday you might feel like you
have  NO FRIENDS at all, just remember this e-mail and take comfort  in
knowing somebody out there cares about you and always will.

In times  of trouble, In times of need, If you are feeling SAD,

Y ou can  count on me.
I will  give you a wink,

Until you  smile,

give you  a hug ,

And stand  by your side.

I'll be  there for you till the end, I'll always and forever, be your
friend!

INSTANTLY  WHEN YOU RECEIVE THIS,  YOU MUST SEND IT TO AT LEAST 10  FRIENDS,

INCLUDING  THE PERSON WHO SENT  IT TO YOU!








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[Non-text portions of this message have been removed]

Does anyone know of a place that makes custom winter gloves? or what
solutions do you use?. I know with my hands being how they are. The
winter months are horrible, (I live in Canada). Luckly for my
Arthrogryposis is mild compaired to others, i have some use of my hands
though there about average for Arthrogryposis. Ill post more info if
needed.  Thanks in advance.

As many know, next years  Arthrogryposis Multiplex Congenita Support, Inc
convention is being  held in Philadelphia, PA.
Just released...........the dates are..
( Drum roll  please)....... July 16-19th, 2009!

To put your name  on the email list email _PA@..._
(mailto:PA@...)
We will post any  new info on _http://www.amcsupport.org_
(http://www.amcsupport.org)

To view pictures  from previous AMCSI conventions
  ~Pictures from Chicago,(2006) 1st AMC convention go to
_http://www.amcsupport.org/convention2006.htm_
(http://www.amcsupport.org/convention2006.htm)

~Pictures from Texas AMC Convention  (2007)
_http://www.amcsupport.org/texas.htm_ (http://www.amcsupport.org/texas.htm)




~Pictures from Ohio (2008)   _http://www.positiveexposure.org/amc_
(http://www.positiveexposure.org/amc)
BECOME A MEMBER OF AMCSI
http://_www.amcsupport.org/member_ (http://www.amcsupport.org/member)
(http://www.positiveexposure.org/amc)
~Theresa Lucas
_http://www.theresalucas.com_ (http://www.theresalucas.com)
(http://www.positiveexposure.org/amc)

Arthrogryposis Multiplex  Congenita Support, Inc~Vice President
_www.amcsupport.org_ (http://www.amcsupport.org/)
(http://www.positiveexposure.org/amc)
  (http://www.positiveexposure.org/amc) **************New MapQuest Local shows
what's happening at your destination.  Dining, Movies, Events, News & more.
Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002)


[Non-text portions of this message have been removed]

I currently have less than 18% lung capacity and am only using oxygen
at night. One thing I've learned is that if I keep my weight down, a
little on the skinny side, I can manage without the oxgyen. I also have
scoliosis and that's my problem. The lungs don't have enough room to
expand. It isn't asthma and most asthma medicines don't work. We call
it restrictive lung disease. I am currenly 4'10" and weigh around 78
pounds. If I get above 80, I breathe harder. You also need to be
careful with anesthesia. Your lungs might not work good enough to expel
the medicine.

I currently have less than 18% lung capacity and am only using oxygen
at night. One thing I've learned is that if I keep my weight down, a
little on the skinny side, I can manage without the oxgyen. I also have
scoliosis and that's my problem. The lungs don't have enough room to
expand. It isn't asthma and most asthma medicines don't work. We call
it restrictive lung disease. I am currenly 4'10" and weigh around 78
pounds. If I get above 80, I breathe harder. You also need to be
careful with anesthesia. Your lungs might not work good enough to expel
the medicine.

I need some information. I have AMC and scoliosis. I have been able to
walk and stand all my life. Now however, there is alot of pain in my
legs and it can't be explained. My leg has also been giving out and
I've nearly fallen many times. I can no longer climb stairs or even
steps without assistance.Has anyone else had this happen? If so, do you
mind sharing the doctor that is working on it so that my doctor can get
some information as to what to do? Sitting for a long period of time
isn't an option. Please help if you can.

Roxi

Hey Roxi

I can understand your frustration cause I am going thru that too... I am 34
going on 35 this month..  But in a way I have my caregivers helping me push
to keep mobile as much as possible.... Have you seen an orthopeadic.?  And
what are they saying now to you...  I had hip repacements on both hips to
help prolong the wheelchair but I still have to use it...

I want to thankyou too my lung capacity is 38% capacity...  If you want to
chat you can add me on yahoo... amc_jazzy_t

I am 4 ft 8 and over 200 lbs  trying to figure out how to get the weight off
..  How old are you???  Well I am gonna go for now hope to hear back from
you...

Tracy

-------Original Message-------

From: rocks0508
Date: 10/31/08 11:26:36
To: amc_adults@yahoogroups.com
Subject: [Adults AMC] Losing the Use of my Legs

I need some information. I have AMC and scoliosis. I have been able to
walk and stand all my life. Now however, there is alot of pain in my
legs and it can't be explained. My leg has also been giving out and
I've nearly fallen many times. I can no longer climb stairs or even
steps without assistance.Has anyone else had this happen? If so, do you
mind sharing the doctor that is working on it so that my doctor can get
some information as to what to do? Sitting for a long period of time
isn't an option. Please help if you can.

Roxi





[Non-text portions of this message have been removed]

I've been there.  I found that the problem wasn't my legs but my spine.  I
limped and it finally wore our the lower vertebrae to the point that it pressed
on the nerves.  I'm using crutches and a manual wheel chair for long distances. 
The only other option available to me was to fuse the spine.  By doing that I
would lose a lot of movement, so that really is not a good option for me. 
 Denise
Dogs are not our whole life,
But they make our lives whole.

[Non-text portions of this message have been removed]

IN THE LAST YEAR MY LEGS ARE DOING THE SAMETHING AND MY DOCTOR JUST BLEW IT OFF
SAYS ITS NORMAL WITH AMC BUT SHE HAS NO IDEA. I SHOULD NOT BE GETTING WORSE BUT
I AM AND I CAN'T EXPLAIN IT EITHER. SO ANY HELP IS COOL WITH ME. TINY TIGER

--- On Fri, 10/31/08, rocks0508 <rocks0508@...> wrote:

From: rocks0508 <rocks0508@...>
Subject: [Adults AMC] Losing the Use of my Legs
To: amc_adults@yahoogroups.com
Date: Friday, October 31, 2008, 11:26 AM






I need some information. I have AMC and scoliosis. I have been able to
walk and stand all my life. Now however, there is alot of pain in my
legs and it can't be explained. My leg has also been giving out and
I've nearly fallen many times. I can no longer climb stairs or even
steps without assistance.Has anyone else had this happen? If so, do you
mind sharing the doctor that is working on it so that my doctor can get
some information as to what to do? Sitting for a long period of time
isn't an option. Please help if you can.

Roxi


















[Non-text portions of this message have been removed]

I am 4' 10" and 78 pounds and 38 years old. My hips are fine except for some
rotation and arthritis. My orthopedic doctor has never seen a case of this
except me so a little lost.




________________________________
From: Tracy Rousar <mountaingirl32@...>
To: amc_adults@yahoogroups.com
Sent: Saturday, November 1, 2008 6:03:30 AM
Subject: Re: [Adults AMC] Losing the Use of my Legs


Hey Roxi

I can understand your frustration cause I am going thru that too... I am 34
going on 35 this month.. But in a way I have my caregivers helping me push
to keep mobile as much as possible.... Have you seen an orthopeadic. ? And
what are they saying now to you... I had hip repacements on both hips to
help prolong the wheelchair but I still have to use it...

I want to thankyou too my lung capacity is 38% capacity... If you want to
chat you can add me on yahoo... amc_jazzy_t

I am 4 ft 8 and over 200 lbs trying to figure out how to get the weight off
.. How old are you??? Well I am gonna go for now hope to hear back from
you...

Tracy

-------Original Message----- --

From: rocks0508
Date: 10/31/08 11:26:36
To: amc_adults@yahoogro ups.com
Subject: [Adults AMC] Losing the Use of my Legs

I need some information. I have AMC and scoliosis. I have been able to
walk and stand all my life. Now however, there is alot of pain in my
legs and it can't be explained. My leg has also been giving out and
I've nearly fallen many times. I can no longer climb stairs or even
steps without assistance.Has anyone else had this happen? If so, do you
mind sharing the doctor that is working on it so that my doctor can get
some information as to what to do? Sitting for a long period of time
isn't an option. Please help if you can.

Roxi





[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

I already have a steel rod fused to my spine and have since I was 10. I'll
mention the nerve test to my doctor. If either you are jazzy_t wouldn't mind
sharing your doctors so that my doctor can contact them and ask questions about
my case and maybe get a different prospective on my situation, you can email
their info to me privately. If not, that's ok. At least I can pass this along.
Thanks




________________________________
From: Denise Patterson <jrtowner2008@...>
To: amc_adults@yahoogroups.com
Sent: Saturday, November 1, 2008 8:28:33 AM
Subject: [Adults AMC] Re: Losing the Use of my Legs


I've been there.  I found that the problem wasn't my legs but my spine.  I
limped and it finally wore our the lower vertebrae to the point that it pressed
on the nerves.  I'm using crutches and a manual wheel chair for long distances. 
The only other option available to me was to fuse the spine.  By doing that I
would lose a lot of movement, so that really is not a good option for me. 
 Denise
Dogs are not our whole life,
But they make our lives whole.

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

I am 4' 6'' and 85lbs i'am 32 and i have aways had trouble with hips but the
pain and weakness just keeps getting worse

--- On Sat, 11/1/08, Roxi McCutchan <rocks0508@...> wrote:

From: Roxi McCutchan <rocks0508@...>
Subject: Re: [Adults AMC] Losing the Use of my Legs
To: amc_adults@yahoogroups.com
Date: Saturday, November 1, 2008, 12:35 PM






I am 4' 10" and 78 pounds and 38 years old. My hips are fine except for some
rotation and arthritis. My orthopedic doctor has never seen a case of this
except me so a little lost.

____________ _________ _________ __
From: Tracy Rousar <mountaingirl32@ sbcglobal. net>
To: amc_adults@yahoogro ups.com
Sent: Saturday, November 1, 2008 6:03:30 AM
Subject: Re: [Adults AMC] Losing the Use of my Legs

Hey Roxi

I can understand your frustration cause I am going thru that too... I am 34
going on 35 this month.. But in a way I have my caregivers helping me push
to keep mobile as much as possible.... Have you seen an orthopeadic. ? And
what are they saying now to you... I had hip repacements on both hips to
help prolong the wheelchair but I still have to use it...

I want to thankyou too my lung capacity is 38% capacity... If you want to
chat you can add me on yahoo... amc_jazzy_t

I am 4 ft 8 and over 200 lbs trying to figure out how to get the weight off
.. How old are you??? Well I am gonna go for now hope to hear back from
you...

Tracy

-------Original Message----- --

From: rocks0508
Date: 10/31/08 11:26:36
To: amc_adults@yahoogro ups.com
Subject: [Adults AMC] Losing the Use of my Legs

I need some information. I have AMC and scoliosis. I have been able to
walk and stand all my life. Now however, there is alot of pain in my
legs and it can't be explained. My leg has also been giving out and
I've nearly fallen many times. I can no longer climb stairs or even
steps without assistance.Has anyone else had this happen? If so, do you
mind sharing the doctor that is working on it so that my doctor can get
some information as to what to do? Sitting for a long period of time
isn't an option. Please help if you can.

Roxi

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

i'm not trying to be rude but does the rod help or make it worse? i have to
decide if thats a option or not because i have 2 kids and i need to keep being
active. So please let me know something good or bad. Tiny Tiger

--- On Sat, 11/1/08, Roxi McCutchan <rocks0508@...> wrote:

From: Roxi McCutchan <rocks0508@...>
Subject: Re: [Adults AMC] Re: Losing the Use of my Legs
To: amc_adults@yahoogroups.com
Date: Saturday, November 1, 2008, 12:38 PM






I already have a steel rod fused to my spine and have since I was 10. I'll
mention the nerve test to my doctor. If either you are jazzy_t wouldn't mind
sharing your doctors so that my doctor can contact them and ask questions about
my case and maybe get a different prospective on my situation, you can email
their info to me privately. If not, that's ok. At least I can pass this along.
Thanks

____________ _________ _________ __
From: Denise Patterson <jrtowner2008@ att.net>
To: amc_adults@yahoogro ups.com
Sent: Saturday, November 1, 2008 8:28:33 AM
Subject: [Adults AMC] Re: Losing the Use of my Legs

I've been there.  I found that the problem wasn't my legs but my spine.  I
limped and it finally wore our the lower vertebrae to the point that it pressed
on the nerves.  I'm using crutches and a manual wheel chair for long distances. 
The only other option available to me was to fuse the spine.  By doing that I
would lose a lot of movement, so that really is not a good option for me. 
 Denise
Dogs are not our whole life,
But they make our lives whole.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

I think it depends on each situation... I have a rod due to scoliosis and also
have restrictive lung disease.  I had the rod put in 1991.  I know they have
made a lot of advances and improvements since then. 
 
Realistically, the Rod saved my life because it stopped the progression of the
curve.  During the surgery they also improved the curvature somewhat.  But the
main point of the surgery was stop the progression of the curve.... if left it
could have smothered my lungs and crushed my heart.  Even adults can experience
a worsing of the curve so it's good to have it checked.
 
So... my advice would be to see if you can see a scoliosis specialist and
discuss with him or her your case.
 
If you have questions about my experience let me know.
 
Brenda
Beekayn@...

--- On Sat, 11/1/08, Tiffany Holmlund <tiny292796@...> wrote:

From: Tiffany Holmlund <tiny292796@...>
Subject: Re: [Adults AMC] Re: Losing the Use of my Legs
To: amc_adults@yahoogroups.com
Date: Saturday, November 1, 2008, 11:46 AM






i'm not trying to be rude but does the rod help or make it worse? i have to
decide if thats a option or not because i have 2 kids and i need to keep being
active. So please let me know something good or bad. Tiny Tiger

--- On Sat, 11/1/08, Roxi McCutchan <rocks0508@yahoo. com> wrote:

From: Roxi McCutchan <rocks0508@yahoo. com>
Subject: Re: [Adults AMC] Re: Losing the Use of my Legs
To: amc_adults@yahoogro ups.com
Date: Saturday, November 1, 2008, 12:38 PM

I already have a steel rod fused to my spine and have since I was 10. I'll
mention the nerve test to my doctor. If either you are jazzy_t wouldn't mind
sharing your doctors so that my doctor can contact them and ask questions about
my case and maybe get a different prospective on my situation, you can email
their info to me privately. If not, that's ok. At least I can pass this along.
Thanks

____________ _________ _________ __
From: Denise Patterson <jrtowner2008@ att.net>
To: amc_adults@yahoogro ups.com
Sent: Saturday, November 1, 2008 8:28:33 AM
Subject: [Adults AMC] Re: Losing the Use of my Legs

I've been there.  I found that the problem wasn't my legs but my spine.  I
limped and it finally wore our the lower vertebrae to the point that it pressed
on the nerves.  I'm using crutches and a manual wheel chair for long distances. 
The only other option available to me was to fuse the spine.  By doing that I
would lose a lot of movement, so that really is not a good option for me. 
 Denise
Dogs are not our whole life,
But they make our lives whole.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Intimacy for the
disabled....................................................



Have been around for almost six years and has been over the course
active,not like most that are now full of spam and porn sites,,We deal
with the positive aspects of life and dealing with mainly physical
disability...

Just because you might have problems with erection and maybe also have
very little control of bladder and other function of your body.don't
mean you can't find someone for intimacy...Intimacy has more of a
meaning then just the sex act alone...and there many ways to please
your partner...

To join you must have information on your new yahoo profile.

http://groups.yahoo.com/group/INTIMACYFORTHEDISABLED/

--- On Sun, 11/16/08, jbernius <jbernius@...> wrote:
From: jbernius <jbernius@...>
Subject: Fw: [Fwd: FW: 7 years old with Cancer From Lake Charles Louisiana]
To: TYGERBAM@..., "Dominick Stoll" <dstoll4@...>, "Cindy Sanford"
<luvvy64@...>, SamJMcGrew@..., "Marcell Rodriguez"
<rodri200@...>, "Tammy Millet" <Ttammy1432@...>, "David McCann"
<dmccann@...>, Leahwestwego@..., "Chris Haar"
<chrishaar60@...>, "Carolyn Haar" <cmhaar@...>, "Allyson Haar"
<allycat70001@...>, "Blaine Fury" <fury_b@...>, "Father Luke"
<frlukecm@...>, "sherri eck" <ecksherri@...>, "Carol d'Aquin"
<csoutherland2@...>, "Craig Collongues" <collonguescraig@...>,
"sheila butler" <rjbutlerpt@...>, "Paul Butler"
<pdbutler21@...>, "Kristen Butler" <blueeyes72280@...>, "Brian
Butler" <brian@...>, "jonathan bernius" <airb23@...>,
"David Bernius" <davidbernius@...>, B8jj@...
Date: Sunday, November 16, 2008, 5:12 PM






 
----- Original Message -----
From: Debbie Waltz

To: John Bernius ; momseven@...
Sent: Sunday, November 16, 2008 4:44 PM
Subject: Fw: [Fwd: FW: 7 years old with Cancer From Lake Charles
Louisiana]


 


-----Original Message-----
From: maryloubou@...
Sent: Sat, 8
Nov 2008 16:38:29 -0600
To: dwaltz57@...
Subject: Fw:
[Fwd: FW: 7 years old with Cancer From Lake Charles Louisiana]




 
----- Original Message -----
From: Joann Chandler

To: rebecca zeringue ; Teressa Lofton
Williamson ; Pfeiffer_reno@... ; marilyn ; MANDY ; Maddy29@... ;
hoochie ; Johnny Hayes ; Carol
Hayes ; gina
hammonds ; Kelli Flanagan ; SHANNA
COOPER ; brandy ; MARY BOURGEOIS ; BETH ; kelli bell

Sent: Friday, November 07, 2008 10:17 AM
Subject: Fw: [Fwd: FW: 7 years old with Cancer From Lake Charles
Louisiana]


 
----- Original Message -----
From: Mark

To: Annie Price ; Barbara &
JL ; Diane ; Chris & Liz ; Leland ; Valine ; Carolyn ; P.
Dianne ; S & F ; Frances ; JoAnn Chandler

Sent: Friday, November 07, 2008 11:04 AM
Subject: Fw: [Fwd: FW: 7 years old with Cancer From Lake Charles
Louisiana]


 
----- Original Message -----
From: annie_price@...
To: mary honshul ; Debbie
Curtis ; Mark Chandler ; Charles
Cazes Jr
Sent: Friday, November 07, 2008 9:45 AM
Subject: FW: [Fwd: FW: 7 years old with Cancer From Lake Charles
Louisiana]



 
--------------
   Forwarded Message: --------------
From: Joe Stano <joe@...>
To:
   undisclosed-recipients:;
Subject: [Fwd: FW: 7 years old with Cancer From
   Lake Charles Louisiana]
Date: Fri, 07 Nov 2008 05:27:28 +0000




--------
   Original Message --------


       Subject:
       FW: 7 years old with Cancer From Lake Charles Louisiana

       Date:
       Wed, 5 Nov 2008 20:23:09 -0600

       From:
       John Mestayer <john3378@...>

       Reply-To:
       <john3378@...>

       To:
       John Mestayer <john3378@...>



    




   : Tuesday, November 04, 2008 6:08 PM

   Subject: FW: 7 years old with Cancer From Lake Charles
   Louisiana





        

        

          

           ]










Subject: FW: 7 years old with
           Cancer From Lake Charles Louisiana








           s
           Louisiana




























                               Subject: 
                               7 yr old with Cancer




 



 
Subject:
                               7 yr old with Cancer (this child is
                               local)

Hi, my name is Amy Bruce. I am 7
                               years old, and I have a large tumour on my brain
                               and severe lung cancer. The doctors say I
                               will
die soon if this isn't fixed, and my
                               family can't pay the bills.  'The Make A Wish
                               Foundation' has agreed to donate 7 cents
                               for
every
  tim e this message is
                               sent on. For those of you who send this along, I
                               thank you so much.  But for those who don't
                               send it, I will still pray for you. Please, if you
                               are a kind person, have a heart.  Please,
                               please, PLEASE HIT THE FORWARD
                               BUTTON
 


                               Thank
                               You
Amy
                               Bruce



 









                                  




 


                           









 




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Checked by AVG - http://www.avg.com
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           AM
        



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[Non-text portions of this message have been removed]

To those who received the spam FW chain letter,

I'd like to apologize to all whom received the forwarded chain letter:

Subject:
                               7 yr old with Cancer (this child is
                               local)

Hi, my name is Amy Bruce. I am 7
                               years old, and I have a large tumour on my brain
                               and severe lung cancer. The doctors say I
                               will die soon if this isn't fixed, and my
                               family can't pay the bills.  'The Make A Wish
                               Foundation' has agreed to donate 7 cents
                               for every
  tim e this message is
                               sent on. For those of you who send this along, I
                               thank you so much.  But for those who don't
                               send it, I will still pray for you. Please, if you
                               are a kind person, have a heart.  Please,
                               please, PLEASE HIT THE FORWARD
                               BUTTON
 


                               Thank
                               You
Amy
                               Bruce
It seems the computer i was using to check my email had a virus on it and
forwarded every email i received to my full address book instead of too the Make
a wish foundation. this is a hoax email that has been going around since 1999.
so sorry about that.

Ally

information on the hoax can be found here.
http://www.wish.org/about/chain_letters




[Non-text portions of this message have been removed]

I want to talk specifically to people that have had this surgery, or have had
their children have this surgery. I want the good, the bad the ugly.

I also want to talk to anyone that pursued nonsurgical methods.

I am finding most people move on once their jaw problems are remedied. This
makes perfect sense since it is no longer a burning issue. For us though it
makes it difficult to impossible to find information.

Ditto with any g-tube information.

Thanks.

[Non-text portions of this message have been removed]

My daughter is 26 and has AMC. She under went a wrist fussion to
straighten out her right wrist. My question is..Do any of you have
problems getting IV's put in? My daughter has always had a horrible
time giving blood and getting IV's. This last surgery was terrible for
her. They poked her so many times in her hands, feet, arms and could
not get a vein. They finally put a central line in her neck. They tried
putting in it near her collar bone and said they couldnt find anywhere
to put the line because her collar bone is thickened. They were going
to put a block on her right arm to ease the pain also, but couldnt find
a vein there either. According to the anesthesiologist her veins are
all in the wrong spot and are VERY deep.He says this is part of her
AMC. I have never had any doctor tell me this. My daughters had
numerous corrective surgeries. She's scheduled to have the other wrist
done in the near future and I don't want her being in so much pain that
she's hyperventilating. No matter how old you kids get, it still hurts
to see them suffer and theres nothing I can do. Thanks for reading
this. Linda

Linda,

I have the same problem with veins, but having to give blood every 6 months,
I just got used to having them poke me until they find one.  One thing they
use is either a hot towel to draw the veins up to the surface or one of
those hotpacks that people use while they're skiing.  You can actually buy
those in a ski shop or outdoors specialty shops and you can reuse them over
and over.  After each use, you have to boil it in hot water for 10 minutes.

The question I have is why did she opted to have her wrist fused at 26?  She
will have to relearn everything with her wrists fused.  At 26 I had things
figured out on how to do things, they may not be how others would have done
them but I got it done my way and if I had my wrists fused I would have had
to relearn everything over again and I wouldn't have done that.





[Non-text portions of this message have been removed]