I am the mother of a 25 yr old daughter (Kelly). Kelly has been in Germany for the past 4 yrs and is now living with my husband and I.She has bilateral club...
3154
Allyson
allycat70001
Jun 11, 2008 1:45 am
i'd get a 2nd opinion, and perhaps see a pediatric that specializes in foot deformities. i say pediatric, because in my experience so far they seem to have...
3155
msbells40
Jun 11, 2008 1:56 pm
Allyson, I tried the pediatric route. No one wants to see a 25 yr old. When Kelly had all her surgeries as a baby and teenager we lived in GA. She went to...
3156
Allyson
allycat70001
Jun 11, 2008 7:25 pm
yes i've had trouble too getting Dr. to see me. my pediatric orthopedic at children's hospital in new orleans saw me until i was 26 ish and did offer to see me...
3157
Allyson
allycat70001
Jun 11, 2008 8:03 pm
oh also have you seen a neurologist i know i have a ton of nerve damage from my surgery along with circulation issues in my feet, they tend to stay blue/purple...
3158
msbells40
Jun 12, 2008 6:37 pm
Kelly hasnt seen a neurologist, but shes like you..cold feet and tingly. I have found her doctor in Ga that she saw as a child and called the office and spoke...
3159
Lala
lalabonita
Jun 16, 2008 9:08 pm
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
3160
Tracy
amc_jazzy_t
Jun 19, 2008 2:49 am
Hi Everyone, My name is Tracy, and I was born with arthrogryposis, tightening up in the muscles and joints... I have gone through 30 surgeries all from the age...
3161
Brenda
beekayn
Jun 19, 2008 4:35 pm
Hi Tracy. This is Morne and Brenda. We are both affected by AMC as well. We are so sorry to hear about what happened to you. Just a question, are you...
3162
Andrea
sweethoney7483
Jul 2, 2008 12:36 am
... up ... also ... seen ... have ... be ... and ... live ... for ... can ... Hi my name is Andrea. You r not alone i was abused by my soon (as in tomorrow...
3163
Linda
msbells40
Jul 3, 2008 8:31 pm
Hi Andrea and Tracy, My names Linda and my daughter Kelly has AMC and was abandoned in Germany by her husband. I don't like even calling him "husband." Anyway,...
3164
TERRY2745@...
terry2745
Jul 4, 2008 12:49 am
AMCSI is coming to Dublin Ohio July 17-20th, 2008!!!!! Go to _www.amcsupport.org/ohio_ (http://www.amcsupport.org/ohio) for all the details! This will be our...
3165
TERRY2745@...
terry2745
Jul 13, 2008 10:14 pm
?We are excitingly getting ready for our 3rd annual AMC Convention~ & cannot wait to meet many of you who are attending! Its in 4 days!!!! July 17-20 in Dublin...
3166
jen11582
Jul 14, 2008 12:18 am
Hi everyone, My name is Jen and I am 26. I have noticed that many of you are married with children and my question is...where did you find your ...
3167
Kenzie Harrison
kenz_1988
Jul 14, 2008 3:36 am
Hi Jen, I am 19 and I am curious about that also. I have never been in a relationship or even been kissed before because I don't think they could get passed...
3168
Michelle
lamaking2000
Jul 14, 2008 11:45 am
Hi Jen and Kenzie, There is no one place to "find" the right person. It's all about how you see yourself. You have to get comfortable in your own skin first....
3169
TERRY2745@...
terry2745
Jul 14, 2008 12:09 pm
Thanks Lori! I sure wish you, Everrett & Masha were coming!! I miss u guys! I'll deff take loads of pics & they will be posted after the convention!! ~Theresa ...
3170
S Armstrong
sarmstrong12@...
Jul 14, 2008 12:11 pm
Dear amc people my name is Sharon Iam 36 years old would you like to chat to me feel free ,I can let you know how arthrogryposis effects me . [Non-text...
3171
becky deaver
beck0912
Jul 14, 2008 3:11 pm
Hi Jen I met my husband 12+ years ago online. However it wasn't a dating site nor a chat. It was at something called a telnet talker - which for the most...
3172
S Armstrong
sarmstrong12@...
Jul 14, 2008 3:11 pm
Dear AMC people hello my name is Sharon <Iam 36 years old Ilive here In Perth Western Australia ,I am wondering how AMC effects you, I was born with stiff...
3173
Brenda
beekayn
Jul 14, 2008 6:02 pm
Hi Sharon! Sounds like we are effected in similar ways... my knees are fairly flexible but not completely. Also had dislocated hips and club feet. My...
3174
Jen Sylvester
jen11582
Jul 14, 2008 9:09 pm
Thanks everyone. ... From: Michelle <lamaking2000@...> Subject: [Adults AMC] Re: Dating To: amc_adults@yahoogroups.com Date: Monday, July 14, 2008,...
3175
Mala Corley
mala924
Jul 23, 2008 2:39 pm
I am so glad I found this group I have questions and no one to ask. I have the deformities in hips, knees, and elbows being the most severe. I always thought...
3176
TERRY2745@...
terry2745
Jul 23, 2008 2:54 pm
I HAVE to tell you all that didnt get to attend the 3rd annual Arthrogryposis multiplex Congenita Support, Inc Convention in Dublin Ohio last week missed out...
3177
katebythesea2000
katebythesea...
Jul 23, 2008 9:26 pm
I have all four limbs affected (and bi-lateral club feet) and had a hemilamenectomy last summer. I had put it off for 10 years (I'm 52) and it has completely...
3178
katebythesea2000
katebythesea...
Jul 23, 2008 9:31 pm
These past few months I have been experiencing severe bi-lateral tingling from my knees to my toes (to the point it hurts) upon reclining on a chair/couch or...
3179
who let the dogs out?
chris1h23
Sep 2, 2008 6:43 pm
Intimacy and relationship,Are you looking for relationship But feel because of your disability no body would want you??or that maybe you can't perform as the...
3180
s.w.
scar2d2w
Sep 13, 2008 6:10 pm
hi, i'm sort of new to posting to group boards, so please forgive me if this question has already been addressed. i have amc, and use a specialized power chair...
3181
becky deaver
beck0912
Sep 13, 2008 7:04 pm
Sorry I can't help you directly but I suggest you contact your local library's reference department and ask them to help you. I'm sure they will be able to...
3182
curtis graves
cgraves81
Sep 13, 2008 7:50 pm
hey becky have you tried independent wheelchair services exp,united rehab in tx but go to someone like that they helped me get a new one hope this helps ... ...
