I'm happy to say I've reached the age of 51 yrs old, and it wasn't all that easy, kind of like being on a roller coaster, with ups and downs. But now it's...
3144
miss_purple1962
May 17, 2008 6:54 pm
Tracy I can really relate to what youre saying, some days I feel like you and if you feel like that I think you should just tell your friends and family that...
3143
Tracy
amc_jazzy_t
May 17, 2008 5:42 pm
Hello, I can relate to this thread big time, when i was in highschool and younger i was down to walking with one cane in school and getting around with my...
3142
Erica
malchirstarr
May 15, 2008 9:15 pm
Just recently I was prescribed Darvocet (for pain) and Flexiril (a muscle relaxer). They seem to work ok, but I can't take them as often as the directions say...
3141
miss_purple1962
May 15, 2008 5:45 pm
I tried the celebrex tablets, they didnt help me so i stopped but theyve been withdrawn now because a few people had heart attacks, im on painkillers but am...
3140
Ilyce Treger
ilycet
May 15, 2008 5:30 pm
Yes, I was the same way too. When I was younger I had so much engery and I was able to do whatever I wanted. Now I'm getting older, I can tell that I do have...
3139
Amanda
cabart1
May 15, 2008 11:58 am
My name is Amanda and I'm 28 yrs old and was told the same thing.. I would need help.. but to my stubborn attitude.. I too have been married for 8 years with 3...
3138
Erica
malchirstarr
May 14, 2008 12:54 pm
Hi. My name is Erica and I am 27 years old. I have AMC in both arms, but have come A LOT farther than the doctors at Shriners ever said I would. In the...
3137
Michelle King
lamaking2000
May 13, 2008 10:29 pm
Forwarded Message: Re: amc and getting older Re: amc and getting olderTuesday, May 13, 2008 5:19 PMFrom: "Michelle King" <lamaking2000@...>To:...
3136
miss_purple1962
May 13, 2008 4:25 pm
I'll be 46 this year, I can hardly believe it myself as i still think im in my 30s lol, but I have noticed im getting stiffer and getting more pain, but I also...
3135
who let the dogs out?
chris1h23
May 13, 2008 3:58 pm
Having trouble with intimacy?Being physical disabled. Maybe this group could help you with support and understanding.A lot of this problem is first accepting...
3134
david qian
davidqian12
May 5, 2008 11:47 am
Hello,everybody, i am from China and a father of a boy 3 years old. My son has AMC and also spine curve. The baby suffered a lot from this disease and also...
3133
TERRY2745@...
terry2745
May 2, 2008 7:55 pm
Hello , _syed_rasul_engr@..._ (mailto:syed_rasul_engr@...) Im Theresa, Amcsupport.org vice president. We totally understand that there are a lot...
3132
Syed Rasul
syed_rasul_engr
May 2, 2008 6:32 pm
Dear Lala Are you from amcsupport. org. i am a member there also.i can't afford to come although really want but it costs me a fortune.but for my sake please...
3131
Lala
lalabonita
May 1, 2008 10:08 pm
With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
3130
Ken Kassner
kenrailfromatob
Apr 12, 2008 10:19 pm
HI Debbie, Why don't you tell more about distal arthrogrypois. I for one would love to learn about it and I am sure others here would too. Nothing is too rare...
3129
Denise Patterson
deedee638
Apr 11, 2008 1:23 am
I have AMC-Distal so you're in the right group. We are a mixed group of every kind of AMC. Denise Dogs are not our whole life, But they make our lives whole. ...
3128
Beverly R Hanset-Burch
beverlyhanse...
Apr 10, 2008 8:07 pm
There are a lot more than two forms! The Text Atlas says 150! ... From: debbielanderbaker To: amc_adults@yahoogroups.com Sent: Wednesday, April 09, 2008 7:02...
3127
debbielanderbaker
debbielander...
Apr 10, 2008 5:54 pm
Thank you everyone for writing me back, your stories helped. I'm still learning that there is alot I either did not understand or genetics has come a long way...
3126
Denise Patterson
jrtowner2008@...
Apr 9, 2008 4:48 pm
http://www.tagonline.org.uk/articles/International_Arthrogryposis_Symposium_for_Professionals.pdf Found an article and though the AMC's would be interested ...
3125
Neal Goldsmith
askher7
Apr 7, 2008 4:27 am
Hey this is Neal from Canada. I have AMC also I am 60 yrs old and have 2 perfectly normal childern. I also have a grandson and a granddaughter on the way. My...
3124
katebythesea2000
katebythesea...
Apr 6, 2008 8:50 pm
Hi Debbie, I'm 52 have all four limbs affected. No real manual dexterity in either hand, bi-lateral club feet and a dislocated L hip. I went for genetic...
3123
debbielanderbaker
debbielander...
Apr 6, 2008 1:17 pm
My daughter is 24, born w/AMC. She is getting married this May. Future plans down the road are having children. I would like some advice or direction for her....
3122
TERRY2745@...
terry2745
Mar 20, 2008 1:30 pm
just wanted to remind everyone that AMCSI Convention 08 is near!! this years convention, our 3rd annual, will be located in Ohio in July. for more info go to...
3121
Denise Patterson
jrtowner2008@...
Mar 14, 2008 2:53 pm
I saw this advertised on another group. Could this be of any help to AMCers that have limited use of hands or arms? I have not used the product or ordered...
3120
Brenda
beekayn
Mar 9, 2008 2:00 am
Hi Lea, Welcome to the group!!! I think it's soooo cool that you participate in BB and canoe. I think it is normal to feel frustrated at times. I know I have...
3119
morne vanWyk
vanwyk.morne
Mar 7, 2008 6:46 am
Hi Lea, Welcome!!! My name is Morne, and I'm 33 years old from South-Africa, and I'm an intern psychologist. Yep, like yourself I live with AMC but mildly...
3118
lea_pettit
Mar 7, 2008 1:32 am
hi everyone! i just found this group.. my name is Lea and i was born with AMC (lower extremities). i am 24 years old & from Hawai'i. I'm married & am an...
3117
who let the dogs out?
chris1h23
Mar 4, 2008 4:44 pm
Do you need help in finding intimacy and love?? Do you have a physical disability and differences and think you might never find anyone for a intimate ...
3115
Brenda
beekayn
Feb 2, 2008 12:18 am
Hi Tracy! Im Brenda. I also have AMC. Im glad to hear your depression has improved! In your post you mentioned that your feet swell and that you have...
