Having trouble with intimacy?Being physical disabled. Maybe this group could help you with support and understanding.A lot of this problem is first accepting...
3136
miss_purple1962
May 13, 2008 4:25 pm
I'll be 46 this year, I can hardly believe it myself as i still think im in my 30s lol, but I have noticed im getting stiffer and getting more pain, but I also...
3137
Michelle King
lamaking2000
May 13, 2008 10:29 pm
Forwarded Message: Re: amc and getting older Re: amc and getting olderTuesday, May 13, 2008 5:19 PMFrom: "Michelle King" <lamaking2000@...>To:...
3138
Erica
malchirstarr
May 14, 2008 12:54 pm
Hi. My name is Erica and I am 27 years old. I have AMC in both arms, but have come A LOT farther than the doctors at Shriners ever said I would. In the...
3139
Amanda
cabart1
May 15, 2008 11:58 am
My name is Amanda and I'm 28 yrs old and was told the same thing.. I would need help.. but to my stubborn attitude.. I too have been married for 8 years with 3...
3140
Ilyce Treger
ilycet
May 15, 2008 5:30 pm
Yes, I was the same way too. When I was younger I had so much engery and I was able to do whatever I wanted. Now I'm getting older, I can tell that I do have...
3141
miss_purple1962
May 15, 2008 5:45 pm
I tried the celebrex tablets, they didnt help me so i stopped but theyve been withdrawn now because a few people had heart attacks, im on painkillers but am...
3142
Erica
malchirstarr
May 15, 2008 9:15 pm
Just recently I was prescribed Darvocet (for pain) and Flexiril (a muscle relaxer). They seem to work ok, but I can't take them as often as the directions say...
3143
Tracy
amc_jazzy_t
May 17, 2008 5:42 pm
Hello, I can relate to this thread big time, when i was in highschool and younger i was down to walking with one cane in school and getting around with my...
3144
miss_purple1962
May 17, 2008 6:54 pm
Tracy I can really relate to what youre saying, some days I feel like you and if you feel like that I think you should just tell your friends and family that...
3145
Tribbey
mrpeaches98382
May 18, 2008 5:40 am
I'm happy to say I've reached the age of 51 yrs old, and it wasn't all that easy, kind of like being on a roller coaster, with ups and downs. But now it's...
3146
David
Adiohound
May 18, 2008 8:52 pm
Tribbey, I didnt know we lived so close(I am in Tacoma), I like you have gotten slower and am looking at the soon approach of living in a wheelchair(I will...
3147
becky deaver
beck0912
May 19, 2008 11:59 am
Oh boy do I relate to this also!! I'm 55 now and not only have I gotten stiffer, but I've gained weight which makes lots of things more difficult also. My...
3148
TERRY2745@...
terry2745
May 19, 2008 1:01 pm
Im 42 years old with AMC, I have not had to take any kind of prescription meds for pain, thankfully, YET. I keep VERY active & really try to keep my weigh at...
3149
becky deaver
beck0912
May 19, 2008 2:20 pm
Theresa Are your massages covered by medical insurance? I too find them very helpful. Thanks, Becky TERRY2745@... wrote: Im 42 years old with AMC, I have...
3150
TERRY2745@...
terry2745
May 19, 2008 2:45 pm
no, mines not. But my Massage Therapist is also a good friend so that helps! Some Ins. Co's are starting to cover them I think. I need to look into that ...
3151
tracey_schalk
May 29, 2008 11:38 pm
Do you have a Arthrogryposis Text Atlas that is sitting on your bookshelf collecting dust? Are you no longer using it because your child with AMC is older? If...
3152
tracey_schalk
May 29, 2008 11:54 pm
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc http://www.amcsupport.org When: July 17-20 2008 Where: Columbus Ohio United States Who:...
3153
msbells40
Jun 11, 2008 12:55 am
I am the mother of a 25 yr old daughter (Kelly). Kelly has been in Germany for the past 4 yrs and is now living with my husband and I.She has bilateral club...
3154
Allyson
allycat70001
Jun 11, 2008 1:45 am
i'd get a 2nd opinion, and perhaps see a pediatric that specializes in foot deformities. i say pediatric, because in my experience so far they seem to have...
3155
msbells40
Jun 11, 2008 1:56 pm
Allyson, I tried the pediatric route. No one wants to see a 25 yr old. When Kelly had all her surgeries as a baby and teenager we lived in GA. She went to...
3156
Allyson
allycat70001
Jun 11, 2008 7:25 pm
yes i've had trouble too getting Dr. to see me. my pediatric orthopedic at children's hospital in new orleans saw me until i was 26 ish and did offer to see me...
3157
Allyson
allycat70001
Jun 11, 2008 8:03 pm
oh also have you seen a neurologist i know i have a ton of nerve damage from my surgery along with circulation issues in my feet, they tend to stay blue/purple...
3158
msbells40
Jun 12, 2008 6:37 pm
Kelly hasnt seen a neurologist, but shes like you..cold feet and tingly. I have found her doctor in Ga that she saw as a child and called the office and spoke...
3159
Lala
lalabonita
Jun 16, 2008 9:08 pm
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
3160
Tracy
amc_jazzy_t
Jun 19, 2008 2:49 am
Hi Everyone, My name is Tracy, and I was born with arthrogryposis, tightening up in the muscles and joints... I have gone through 30 surgeries all from the age...
3161
Brenda
beekayn
Jun 19, 2008 4:35 pm
Hi Tracy. This is Morne and Brenda. We are both affected by AMC as well. We are so sorry to hear about what happened to you. Just a question, are you...
3162
Andrea
sweethoney7483
Jul 2, 2008 12:36 am
... up ... also ... seen ... have ... be ... and ... live ... for ... can ... Hi my name is Andrea. You r not alone i was abused by my soon (as in tomorrow...
3163
Linda
msbells40
Jul 3, 2008 8:31 pm
Hi Andrea and Tracy, My names Linda and my daughter Kelly has AMC and was abandoned in Germany by her husband. I don't like even calling him "husband." Anyway,...
3164
TERRY2745@...
terry2745
Jul 4, 2008 12:49 am
AMCSI is coming to Dublin Ohio July 17-20th, 2008!!!!! Go to _www.amcsupport.org/ohio_ (http://www.amcsupport.org/ohio) for all the details! This will be our...
