With a condition so rare that only one in 3000 babies born have this muscular disorder it's easy to comprehend how alienated anyone with Arthrogryposis...
Dear Lala Are you from amcsupport. org. i am a member there also.i can't afford to come although really want but it costs me a fortune.but for my sake please...
Hello,everybody, i am from China and a father of a boy 3 years old. My son has AMC and also spine curve. The baby suffered a lot from this disease and also...
Having trouble with intimacy?Being physical disabled. Maybe this group could help you with support and understanding.A lot of this problem is first accepting...
I'll be 46 this year, I can hardly believe it myself as i still think im in my 30s lol, but I have noticed im getting stiffer and getting more pain, but I also...
Hi. My name is Erica and I am 27 years old. I have AMC in both arms, but have come A LOT farther than the doctors at Shriners ever said I would. In the...
My name is Amanda and I'm 28 yrs old and was told the same thing.. I would need help.. but to my stubborn attitude.. I too have been married for 8 years with 3...
Yes, I was the same way too. When I was younger I had so much engery and I was able to do whatever I wanted. Now I'm getting older, I can tell that I do have...
I tried the celebrex tablets, they didnt help me so i stopped but theyve been withdrawn now because a few people had heart attacks, im on painkillers but am...
Just recently I was prescribed Darvocet (for pain) and Flexiril (a muscle relaxer). They seem to work ok, but I can't take them as often as the directions say...
Hello, I can relate to this thread big time, when i was in highschool and younger i was down to walking with one cane in school and getting around with my...
Tracy I can really relate to what youre saying, some days I feel like you and if you feel like that I think you should just tell your friends and family that...
I'm happy to say I've reached the age of 51 yrs old, and it wasn't all that easy, kind of like being on a roller coaster, with ups and downs. But now it's...
Tribbey, I didnt know we lived so close(I am in Tacoma), I like you have gotten slower and am looking at the soon approach of living in a wheelchair(I will...
Oh boy do I relate to this also!! I'm 55 now and not only have I gotten stiffer, but I've gained weight which makes lots of things more difficult also. My...
Im 42 years old with AMC, I have not had to take any kind of prescription meds for pain, thankfully, YET. I keep VERY active & really try to keep my weigh at...
Theresa Are your massages covered by medical insurance? I too find them very helpful. Thanks, Becky TERRY2745@... wrote: Im 42 years old with AMC, I have...
no, mines not. But my Massage Therapist is also a good friend so that helps! Some Ins. Co's are starting to cover them I think. I need to look into that ...
Do you have a Arthrogryposis Text Atlas that is sitting on your bookshelf collecting dust? Are you no longer using it because your child with AMC is older? If...
What: 3rd Annual Arthrogryposis Convention put on by AMC Support Inc http://www.amcsupport.org When: July 17-20 2008 Where: Columbus Ohio United States Who:...
I am the mother of a 25 yr old daughter (Kelly). Kelly has been in Germany for the past 4 yrs and is now living with my husband and I.She has bilateral club...
i'd get a 2nd opinion, and perhaps see a pediatric that specializes in foot deformities. i say pediatric, because in my experience so far they seem to have...
Allyson, I tried the pediatric route. No one wants to see a 25 yr old. When Kelly had all her surgeries as a baby and teenager we lived in GA. She went to...
yes i've had trouble too getting Dr. to see me. my pediatric orthopedic at children's hospital in new orleans saw me until i was 26 ish and did offer to see me...
oh also have you seen a neurologist i know i have a ton of nerve damage from my surgery along with circulation issues in my feet, they tend to stay blue/purple...
Kelly hasnt seen a neurologist, but shes like you..cold feet and tingly. I have found her doctor in Ga that she saw as a child and called the office and spoke...
The 3rd Annual Arthrogryposis Convention is just 4 weeks away, if you plan on attending or are seriously considering it, read below to make sure you have done...
Hi Everyone, My name is Tracy, and I was born with arthrogryposis, tightening up in the muscles and joints... I have gone through 30 surgeries all from the age...
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